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Experiences with
Mitomycin
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Trabeculectomy failed … 5 bleb needlings 3 in last 6 weeks . Ophthalmic surgeon recommends aqueous flow shunt very soon.
July 23 Jan 24 bleb needlings .Feb24 steroid induced cataract occluded the vision IOP 26 .March 24 cataract removed and further bleb needling and
mitomycin
C . 2 weeks later IOP raised further bleb needling and avastin .2 weeks later this was repeated .
July 23 Jan 24 bleb needlings .Feb24 steroid induced cataract occluded the vision IOP 26 .March 24 cataract removed and further bleb needling and
mitomycin
C . 2 weeks later IOP raised further bleb needling and avastin .2 weeks later this was repeated .
Alfiwestie
in
Glaucoma UK
3 months ago
All clear after EMDA with Mitomycin
I’ve been having EMDA with
Mitomycin
treatment for the past few months ( initially once a week x 6 then 3 months break then monthly x6). On Monday I had a cystoscopy and NMP test and I’m NED. Very happy as this makes a year tumour free. Yay. I hope you’ve had good news recently too.
I’ve been having EMDA with
Mitomycin
treatment for the past few months ( initially once a week x 6 then 3 months break then monthly x6). On Monday I had a cystoscopy and NMP test and I’m NED. Very happy as this makes a year tumour free. Yay. I hope you’ve had good news recently too.
PaMul
in
Fight Bladder Cancer
3 years ago
EMDA with Mitomycin
Hi all After my turbt in July I’ve been recommended EMDA with
Mitomycin
. There was one small tumour TaG1. But it’s my 5th low grade recurrence.
Hi all After my turbt in July I’ve been recommended EMDA with
Mitomycin
. There was one small tumour TaG1. But it’s my 5th low grade recurrence.
PaMul
in
Fight Bladder Cancer
4 years ago
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Mitomycin maintenance longer than 3 years?
Hi everyone I’ve been having
Mitomycin
for almost 3 years now and despite a couple of small low grade recurrences have been recommended to stay on it. My 3 years are soon up but as my last recurrence was in July 2019 Ta G1 and G2 I feel it’s too soon to stop.
Hi everyone I’ve been having
Mitomycin
for almost 3 years now and despite a couple of small low grade recurrences have been recommended to stay on it. My 3 years are soon up but as my last recurrence was in July 2019 Ta G1 and G2 I feel it’s too soon to stop.
PaMul
in
Fight Bladder Cancer
5 years ago
Low grade
So there’s no change to my current treatment of
Mitomycin
. They said the tumour was small and well defined. I’m happy to be home and relieved still hoping it’s the last time it comes back. Onwards and upwards getting fit again after surgery.
So there’s no change to my current treatment of
Mitomycin
. They said the tumour was small and well defined. I’m happy to be home and relieved still hoping it’s the last time it comes back. Onwards and upwards getting fit again after surgery.
PaMul
in
Fight Bladder Cancer
5 years ago
Another tumour 😩
The fourth return since 2016 looks like the
Mitomycin
isn’t working for me. I’m thinking BCG is the next step after the operation on 3 September. Hoping it’s another benign one like the last time 🤞🌻 Hope you’re having a more positive start to the week
The fourth return since 2016 looks like the
Mitomycin
isn’t working for me. I’m thinking BCG is the next step after the operation on 3 September. Hoping it’s another benign one like the last time 🤞🌻 Hope you’re having a more positive start to the week
PaMul
in
Fight Bladder Cancer
5 years ago
PBC and bladder cancer
Have had tumour removed and awaiting treatment plan possibly chemo using
mitomycin
into bladder or immunotherapy using BCG Wondererd if options might be limited due to having PBC?
Have had tumour removed and awaiting treatment plan possibly chemo using
mitomycin
into bladder or immunotherapy using BCG Wondererd if options might be limited due to having PBC?
jrobertson1
in
PBC Foundation
5 years ago
Back to Mitomycin not BCG
I’m happy to say that there’s no new growth and the path report was NED 😀as the previous one was so small and G1 I’ve been recommended to continue with 3 monthly check ups and
mitomycin
. A relief I must say as I’d always seen BCG as a last resort.
I’m happy to say that there’s no new growth and the path report was NED 😀as the previous one was so small and G1 I’ve been recommended to continue with 3 monthly check ups and
mitomycin
. A relief I must say as I’d always seen BCG as a last resort.
PaMul
in
Fight Bladder Cancer
6 years ago
Reoccurrence despite mitomycin
I’d been on
mitomycin
monthly for two years after 8X
mitomycin
kick off. Previous tumours all non- invasive and low grade 2 or 1. Obviously i have to wait for the pathology to know next steps but I’m curious about what others have had. Does the reoccurrence mean BCG or a higher dose of
mitomycin
?
I’d been on
mitomycin
monthly for two years after 8X
mitomycin
kick off. Previous tumours all non- invasive and low grade 2 or 1. Obviously i have to wait for the pathology to know next steps but I’m curious about what others have had. Does the reoccurrence mean BCG or a higher dose of
mitomycin
?
PaMul
in
Fight Bladder Cancer
6 years ago
PPC 2nd surgery go around with HIPEC treatment
For chemo during the treatment he used
MITOMYCIN
-C. He filled my abdomen area with chemo for a long time. After the surgery I was able to get up the next day. I spent about 2 weeks at the hospital then was release to come back to Florida.
For chemo during the treatment he used
MITOMYCIN
-C. He filled my abdomen area with chemo for a long time. After the surgery I was able to get up the next day. I spent about 2 weeks at the hospital then was release to come back to Florida.
Mariahmd
in
My Ovacome
6 years ago
Mitomycin treatment
I have just had my week five session of my
Mitomycin
treatment, each week seems harder in respect of side effects of this six week program of treatment Last week I had a lot of blood and debris a couple of hours after leaving hospital, but this week no blood just a dull ache and feeling tired.
I have just had my week five session of my
Mitomycin
treatment, each week seems harder in respect of side effects of this six week program of treatment Last week I had a lot of blood and debris a couple of hours after leaving hospital, but this week no blood just a dull ache and feeling tired.
laughingboy
in
Fight Bladder Cancer
7 years ago
Good news
Big relief and good to know the
mitomycin
therapy and plant based diet are working. Best wishes to all and hope you get good news too soon!
Big relief and good to know the
mitomycin
therapy and plant based diet are working. Best wishes to all and hope you get good news too soon!
PaMul
in
Fight Bladder Cancer
7 years ago
SUBGLOTTIC STENOSIS - this rare condition has been included on this site due to it's implication in gastric reflux syndrome*****.
The handling and disposal of the
mitomycin
-C should be per the hospital protocol for chemotherapeutic agents. Care should be taken to avoid contact with unprotected skin.
The handling and disposal of the
mitomycin
-C should be per the hospital protocol for chemotherapeutic agents. Care should be taken to avoid contact with unprotected skin.
gutlesswonder
in
Oesophageal & Gastric Cancer
7 years ago
Still bleeding after TURBT
I am still bleeding, no clots, a week after my TURBT and
mitomycin
-C. I get pain but no burning when I wee, no temperature. Should I contact my GP or put up with it until I get the four week check up?
I am still bleeding, no clots, a week after my TURBT and
mitomycin
-C. I get pain but no burning when I wee, no temperature. Should I contact my GP or put up with it until I get the four week check up?
bizli
in
Fight Bladder Cancer
8 years ago
The story so far
So a week after my Cystoscopy I had my first treatment, Transurethral Resection of Bladder Tumour (TURBT) and an intravesical infusion of
Mitomycin
-C.
So a week after my Cystoscopy I had my first treatment, Transurethral Resection of Bladder Tumour (TURBT) and an intravesical infusion of
Mitomycin
-C.
wac1
in
Fight Bladder Cancer
8 years ago
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