Keep fighting

[672530]

Hi when I was first diagnosed with bladder cancer I thought this is it. In my head I started making plans for what was to come. It was strange how many people didn’t want to know oh they seemed interested but didn’t like the thought that the outcome may be bad. I’ve been in and out of hospital over the years having them removed. Just had another flexi yesterday there are a couple of points to look out for but they haven’t grown in the last six months. My next is in 12 months time. I don’t know if I’ve got used to it keep coming back but talking about it and keeping busy helps a lot.

[Blueboy7]

Hi, I’ve just had my third install of BCG and the after effects range from mild to severe you can never quite legislate for the way your body is going to react to the next install.

I have just resided now to the fact that I am going to have 2 rough days and hopefully the others are okay up to the next install.

3 more to go before the next rigid Cystoscopy for the biopsy’s which I actually dread more than anything because I have gone into retention really bad and the pain from that is just non - bareable.. Trips to A&E to be catheterised with the usual wait is beyond words.

But head up and onwards I keep saying it will be okay at the end of the treatment..

Stay positive that’s the key.

[westseajoe in reply to Blueboy7]

staying positive is the key for sure- remind yourself that it usually takes less than 2 minutes- the worst part of it all is in our minds, our imagination

[672530 in reply to Blueboy7]

It’s hard but being positive is the key.

[Jim47]

Keep up the good fight. There are always new advances. My bladder cancer metastasized into my lungs two years ago. At that point I was told to "get my affairs in order", because I only had a year or two. I did, but kept fighting. I had a year of chemo..until my sole remaining kidney was too weak to continue. Then my oncologist recommended immunotherapy with Keytruda. Now, over two years later, there are no signs of tumors anywhere in my body. I'm still being treated because this is such a new treatment they don't know enough about it. Never give up--and good luck to you, going forward.

[672530 in reply to Jim47]

So true Jim never give up.

[Rienij70 in reply to Jim47]

What is Keytruda?

[Jim47 in reply to Rienij70]

Keytruda is the brand name for pembrolizumab, an immunotherapeutant. It is now an approved treatment for bladder cancer that has metastasized.

[Rienij70 in reply to Jim47]

Sounds fantastic. Hope it keeps working for you. Rienij xx

[Jim47]

Hang in there and try to stay positive. There are always new advance — and hope!

[Rienij70]

Hi I am going in tomorrow for another TURBT. For aggressive bladder cancer. I know what you mean. Some people can’t handle talking about it. And it would be so helpful to be able to just talk normally about our fears. Etc. After tomorrow I will know know wether I am ok to have BCG treatment or wether my bladder will have to be removed.

[Bladdercancerman]

You are fortunate you have people to talk to, that is a blessing. Keep possative.