Tumour in bladder

[jrobertson1]

After 3 instances of gross haematuria with clots in my urine and no UTI, I have had a cytoscopy and a tumour has been found in my bladder. It looked like a sea anemone. I have to wait 4-6 weeks for surgery then a further 3 weeks to find out if it's malignant. I am very worried because the first instance of very visible blood (to thick to test for a UTI) was in January. I live in Scotland. Has anyone else had this experience? What was the outcome?

[ilovecountrymusic]

I had one month of urinating almost pure blood then huge clots..Unfortunately I had an xray that was misreported on as clear...After more tests later I was found to have a very aggressive tumour and was diagnosed as T4 Malignant. That was eight years ago in June My bladder was removed I have a stoma with the related issues but I am alive thanks to the talented medical people who looked after me Not ideal and I was very cranky at being misdiagnosed but what do you do but be grateful to be alive ...Good luck and kee

p asking questions!!!

[jrobertson1 in reply to ilovecountrymusic]

Thanks ilovecountrymusic, I will keep asking questions. Have found out that I now have low haemaglobin and sent for a repeat blood test. Best wishes to you for the future

[rosietheriveter]

Why does it take 3 weeks to get the results?? I am t1 high grade aggressive.No muscle invasion..

Now 3 years out NED. Don't stress out (easy to say) . There are many treatments.

Hang in there. One day at a time. Wishing you the very best.

[jrobertson1 in reply to rosietheriveter]

Thanks Rosie. Have no idea why it is a 3 week wait for results. Want everything to happen faster as first bleed was in January. Now have a letter to say 10th August is deadline for surgery! Hope all continues to go well for you.

[Dragonslayer in reply to jrobertson1]

My Dr. was a lot faster than that... I was having my tumor removed 4 days after seeing it on the cystoscope.

[seawolf48]

Had the same ten years ago, had my bladder removed and a neobladder installed ( made from my intestines). Doctors did a great job, no regrets.

[jrobertson1 in reply to seawolf48]

Amazing what can be done. Are you in the UK?

[Rossi68]

Hi ... All hospitals have different waiting times ... If they've found a tumor I'd have thought they wouldn't leave you.. as I was told in a month there would be hardly any difference.. I had about a 3 week wait for results x

[jrobertson1 in reply to Rossi68]

Hoping it will be sooner rather than later. Fingers crossed. Have bone pain in my pelvis on right side which I believed to be just wear and tear. Now worried it is possibly the tumour pressing or spread of cancer to the bone. Probably overreacting. Are you cancer clear?

[Rossi68 in reply to jrobertson1]

Aye with every pain it's hard not to fear the worst .. I remember having a pain in my toe and was convinced it had spread ... Fingers crossed for early appointment x

[westseajoe]

I am 72 and 6 plus yrs ago was diagnosed with BC. Then 2 surgeries, and many years of BCG infusions. No signs of it returning...next inspection Sept 15th. Hang in there. Amazed that it would take 3 weeks to determine if it was malignant .

Frank

[scamperoo]

I had same as you J 3 years ago was high grade malignant no evasive they removed and have been having BCG treatment ever since have now almost come to the nd of that and was given all clear on 26 April on latest cystoscopy you will be fine keep positive