Fibro convention ,,

[jjojay]

We need a fibro convention. Where we can all meet up somewhere . I know there's local groups . But it would be great . With really good experts that' have written books ect,, really wish there could be one moving around the country ,,,

[jjojay]

I'm such a bit wit , Gibsons wrong way round

[Hidden]

Good idea but I think a disabilty government would be better idea if we made a political party of disabled people of all conditions and rose to government now that would be a result...

VG x

[jjojay in reply to Hidden]

I like that idea ,, we could really change things eh ,, x

[Fibrofoggiest]

Hi jj, loved the way Gibson is upside down......hehehe. I like the idea of a group but I think we are all so far apart, like VG,I think a disability government would be ideal, a lot of empathy with people's situation from experience, I think would be a good thing for this country instead of the beuocracy that is now.

Foggy x

[Angeldancea812]

Great idea, a disability govt. Which if us is healthy enough for Parliament? I suppose we could ban the house when we're in power and do it all on the net?

[jjojay in reply to Angeldancea812]

Talking of power ,, we could really make a difference and make sure everyone with fibro and other conditions get a really good discount on all utility bills ,,heee

[fairycazzie]

net power FM power Disability power .

We are all over the place and different time zones too as i find i use another site for my other condition and just dont feel to fit the place and must admit is more Americans.

I am so comfy on here and relaxed and we all are sat on sofa talking or on our beds or chairs so we are a group!

Who would listen to us i often scribble things down and want to write to the government but then its like throwing a needle in a hay stack and i just do not have the brain i used to it has changed to pertty much as simple as possible makes life easy for me. i get so confused with a lot of things.

i have joined another group on fb with friends who used to be on here and i cannot get my head round any of it for some reason.

So for me personally am happy just to help and read and talk to anyone who needs support because no one will listen to us!!!

i set up my own little group and its not worked at all i wanted to hopefully through my own fb get locals around and i post lots about what the conditions are and how they affect us it goes public but nothing i do not know why its like that.

You have a great idea so only the future will tell where it will all go as there are only certain illnesses that hit the limelight.

Theres lots and lots of conditions so it would be a fight to get our condition noticed when theres so many more out there but all should just be united!!

That is what mine is for lots of differnt types not just one type. perhaps thats why..

ok i waffle and make no sense thats why am a fairy i just flutter round flutter flutter flutter lol

hugs xxxxxx

[jjojay]

Hi , can't reply to posts it just says can't find that page, so will just comment instead . Yeh a fibro government lol ,, that's great . If there was a convention that moved around the country one place at a time,,with real specialists and people who have written books like MDs giving up to date research and advise. I just would love it. Then other medics will take more notice ect,,

I love this group on here it's been a relief for me and yes we can be ill in bed or sat and be intouch with everyone whenever we like. The people who run this online are soo lovley and i feel happy and relaxed here . I think it's helped me get on with this condition easier , we are never alone with this fibro we have each other. There's a Facebook page for fibro too. Although I don't chat much on there I use this site . I enjoy reading all messages I find it both funny makes me laugh,, and interesting too. Have to say informative to listen to people's breakthrough in their treatment. I know if I'm down I can put something out there. I also like to help others , think its making my life with fibro , happier x

[jjojay]

Hi , can't reply to posts it just says can't find that page, so will just comment instead . Yeh a fibro government lol ,, that's great . If there was a convention that moved around the country one place at a time,,with real specialists and people who have written books like MDs giving up to date research and advise. I just would love it. Then other medics will take more notice ect,,

I love this group on here it's been a relief for me and yes we can be ill in bed or sat and be intouch with everyone whenever we like. The people who run this online are soo lovley and i feel happy and relaxed here . I think it's helped me get on with this condition easier , we are never alone with this fibro we have each other. There's a Facebook page for fibro too. Although I don't chat much on there I use this site . I enjoy reading all messages I find it both funny makes me laugh,, and interesting too. Have to say informative to listen to people's breakthrough in their treatment. I know if I'm down I can put something out there. I also like to help others , think its making my life with fibro , happier x

[hamble99b]

love the convention idea, could Birmingham be a possibility or somewhere central?

sandra.

[jjojay in reply to hamble99b]

Hi Sandra, they move around the the states in America having conventions . They do it for all kinds of things wish it could be done over here all big city's and large towns then everyone can have a chance to get there. Rekon it would just show how many people have this condition . When I look on amazon there are so many books on fibro . All online book stores have loads of books on fibro. I was surprised to see not as many on MS I thought there would be a lot more as its a well known condition . I wanted to find more about MS because there is a lot of comparisons to that particular condition .

If there could be a convention it would be so wonderful to see and talk to experts who are there because they want to help people not because there giving you ten minuets of their time because there paid for it. They'll be doctors whom have it themselves ect. I bet there's much more to learn about it. I know am going on but can't help it . I've had to change so much about my life since I became ill. I was x bit low for a while , now I can focus again , I'm hopeful and want to help others to be. I can see how it effects people . Our lives are so important why should we be bullied by the people who decide whether we can have DLA ect, just because we have a disability and it is a disability. I'm not at that stage yet for DLA but I can't see it been long.

You know in America they do have these conventions and people put ideas forward . Think ad put one in for free help for tribunals , I've heard they may be taking that away from us soon. Can't remember where I heard it , it may if been on here. I bet there is people who are qualified that would do it for free you know.

Anyways am rabbling now.

Joanne x

[katherine107]

I am going to a fibro convention in a Chichester hotel for 3 days in April. I have been going for the last 3 years. They have lots of doctors and speakers there' some from america also a benefit adviser. My husband comes with me. It costs about 300 pounds for 2 , that includes all you food and accommodation and the speakers and doctors. It is on all day for 3 days. I saw it advertised on FM UK website.

Katherine

[hamble99b in reply to katherine107]

can anyone send me the link please?

sandra.

[hamble99b in reply to hamble99b]

Found It

fibromyalgia-associationuk....

I need someone to share a twin room.

[katherine107 in reply to hamble99b]

glad you found it, might see you there . i am katherine. hope you find someone to share with

[hamble99b in reply to katherine107]

thanks Katherine,

it's all sold out but I'm on the cancellation list, but I need a room-buddy.

sandra.

[Jjudith]

There is an annual fibroymalgia conference in Chichester every year, they have very good speakers and in a hotel where you can take hubby if you want to, and you can have pamper treatments, massages and the like. I think it is organised by fibromyalgia awareness uk.

[rosylyn in reply to Jjudith]

i went last year it was great.met dr kevin white brought his book he also signed it. the speakers was great. xx