Hi well we are back to square 1 as usual!!
My health has really deteriated this last six months ..from me driving and living with Fibro CVFS only to name a few.....I cannot walk so have a scooter,My husband is my main carer who dresses me, cooks cleans and helps me move from chair to stairlift and to the loo.
Over the past week alone if he had not caught me or already been holding me up I would have fallen 16 times and had to call for help on my alarm,as he cannot lift me!!
My reason for telling you this is. My OH has PTSD and has to go into a remedial treatment centre for 6 weeks a year for therapy just to cope.I used to look after him for the last 21 years.
A social worker came to see us last November and said we will cover your care when he goes away! Nov he was in hospital no one came! Then they said we can get a payment in jan for us to pay a carer to come in.....It was rejected because I have a call button and if I fall paramedics will come within the hr...( gee thanks!! )............. She then re applied and we were offered 3 half hr stints to help me and to give him a break ( no good at all )..... then last week in jan they said that it would cost £200 a night for night care and it was too much,so they sudgested I stayed in bed all night till the carer could get me up between 7 and 11. No good either. ..............Then last week the woman called again and I said I have found someone to be here all night for 14 nights for £500.....and day carers at £10 an hr so the bill instead of being 4 grand would be £1500.................................YES you guessed it they turned that down too,saying I don't need anyone there all the time because I have the alarm..............................Worried sick now as he goes away april 2nd and I have no cover except the 3 half hr visits!!!
What on earth they think I will do is beyond belief, I cant always walk from the loo to my bed,and when I get there I cannot lift my legs into bed as the don't move and my OH lifts them in for me. So they sudgested I have a commode by my bed.....er I cannot get back into bed,,......Oh I know I can call out a paramedic....SORTED!!!!
Sorry to go on but at the end of my tether so to speak. ;-(
Gentle hugs (((((((((((((((((((((((((((((((( )))))))))))))))))))))))))))))))))))
Rainbow x x x x