Dreaded Letter :(: Hi all well I`ve had... - Fibromyalgia Acti...

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Dreaded Letter :(

sadoldred profile image
6 Replies

Hi all well I`ve had my dreaded letter from DLA this morning telling me that I can keep my lower rate care but got nothing else! :( Advise please it says I can ring then if i disagree and yes i do I had a Doc who has never met me do my letter because my own Doctor has left the surgery so how can someone who has never sat in front of you do a letter! Do i ring them and expain to them and tell them i will get a letter (paid) from my Doctor who left and send in?? HELP feel so down and alone at this present time :( x

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sadoldred
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6 Replies
Extremelygrumpy profile image
Extremelygrumpy

Umm well I get low rate care dla and after reading so many posts on here about people getting nothing from dla that I take it gratefully glad I actually get something...

VG x

fairycazzie profile image
fairycazzie

hi sorrry your not pleased on outcome but as VG says something is better than nothing and yeah disagree if not happy you can all but keep trying xx

linlit profile image
linlit

yws do and if no good appeal go see new doctor he should be able to write letter he has your medical records

phoebedweeby profile image
phoebedweeby

Hi I dont often leave a post on here but I am a regular reader of everyone elses and very helpful they were indeed. Can i just say, appeal, appeal, appeal. Get as many letters as you can, I even had a letter from my friend that comes in and helps me. Last year I was awarded lower rate care. I had to put in another questionnaire 6 weeks ago and I was honestly thinking they would take that away as well. I had kept a copy of my last succesful set of paperwork so I thought I would just copy them and then they cant really say no and hopefully I would keep the lower rate. Can you imagine my shock when the letter came through saying I will be getting higher rate mobility and lower rate care. I cried tears of joy, it has been a long 5 year fight, exhausting and demeaning sometimes but I am so glad I kept on. Please dont give up if I can do it, you can.

sadoldred profile image
sadoldred

Thank you phoebedweedy that post has just cheered me up a bit. Yes after Christmas I`m making an appointment at the CAB going to get my old Doctor to do my letter even if I have to pay, and appeal, but I am waiting for one appeal date concerning my DLA already. But will carry on fighting and I`m not settling for second best when I know I am entitled to it :) x

Ozzygirl64 profile image
Ozzygirl64

I am presently on high mobility and low care, but in your situation I would appeal if you feel you should, but like VG says I would be glad to have just that if push came to shove and I was at risk of getting nothing. Eventually DLA will be abolished and everyone on it will be invited to claim PIP instead, unless age 64+, then it will AA. That of course will make it even harder for us fibromites to get what we should be entitled to xxxx ( I wish you luck)

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