I was diagnosed in 2005, prob due to car crash 26 years ago. I have had 5 or 6 bad flare ups over last 3 years, months off work due to deppression, fibro fog ruined my career in the NHS, I had a fall due to my knee givin way at the top of the stairs putting me in A+E, on crutches for 2 weeks with badly bruised knee. I came off crutches sat before we flew to greece for 14 day holiday. Whilst there i got shingles, Flare up of IBS, it was a nightmare, panic attack on the plane.. the whole 2 weeks was awful. I got home and was so ill, depression, fatigue and hurrendous pain in my legs and back.
The year after we went to greece again, we went with friends had a good holiday.. got back and it floored me... off work again with fatigue, pain...3 months it was bad. Then again they year after, went to greece i was fatigued on holiday the temps were 40 plus, i was drained... couldnt wait to get home, ill again to the point my gp told me i prob has MS !!! I was mortified, brain scan gave me all clear i was just having a flare up "a bad one" again... Im still working 40hr wks, could i get working disability? and work part time to take some strain off me... I cant afford to not work so thats not an option and every time off off work it costs me money and i get behind on bills.. I dont know what else i can do.
I'm working 30hrs a week for the NHS,iv applied for DLA and was refused so put in an appeal twice,iv just had my medical at home to see what I can and can't do,I will await the decision which probably be refused so will appeal again.
You can put in a claim form for DLA even if you work but it does take time,so I think you should try for it but they are pretty tough as you are probably aware by reading some of the post.
I dont know a lot about ESA,I think that's if you work up to 16 hrs a week,that's something I will be looking into soon because iv either got to except re-deployment,but I'm finding it really difficult to work so may have to reduce hours.
Thanks for your reply, Ive yet to hear anyone say they got it for fibro and working, I know pple who get it for fibro but dont work at all, i enjoy working when im not under pressure to work 40 hr as a week and theres no way on this earth am i goin to give up and sit at home alday on benefits... I wish you well with the claim, keep appealing dont give up xxx
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