i would love to know if anyone else is around me that i can keep in touch with locally as its lonely feeling like this and no one to understand the extent of what it is like .
i seem to always be rough and ahving too many flares (relapses ) it is not nice and feel such a burden on my family as much as they do not think so ..
i do not socialise musch i have become a hermit really, i only deal with work and come home and jsut feel ohhhhh please give me life back again ..
i am strong independant but at same time i have emotions and try nto to put upon those around me .
i have BHMS too so be nice to know if anyone else does too as this is added to the problem like anyone else wiht health issues ..
sick of going round and ppl saying how ya doing ??? ohh fine thanks and you?? ffs i am not fine i just plod on! then that scares them off lol .