.....and list all the rpoblems I have so we can see exactly what we are up against with the government we have now. From my list you will see or summise that I never have one single day without pain of some sort. What I am hoping is that members will come here and list their FMS and other things that cause them medical grief.
1. Fibromyalgia-chronic to the point I am never out of pain
2. COPD/Emphysema and Chronic Bronchitis- either one of the first two WILL kill me in time
3. Hemiplegic Migraines, normal migraines, cluster headaches and severe headaches
4. Failing vision-both eyes and occular migraines up to four times a day
5. Menieres disease-causing extreme balance problems, tinnitus and severe hearing loss
6. Hiatus Hernia, Stomach & Duodenal ulcers, internal scarring of the intestines and stomach, intestinal adhesions & IBS
7. Gout
8. No working pulses in the feet-meaning cold swollen feet that break open and skin falls off
9. Osteoarthritis of the upper spine & no movement in lower spine
10. Chronic muscle spasms, cramps, itchiness, cold and hot patches, tics and numbness and wide awake fits(total loss of control of the body rendering me basically a puppet on a string and then hit the deck, but I am fully aware)
So as you can see I have a fair bit going on medicalwise but I know there are others out there far worse off than me and I will never dispute that fact.
Now I may have days where only one illness, the fibro may be showing, other days I may have several things going on, as I have now with a fibro flare and emphysema flare going on at the same time, plus popped heel and clusterheaadaches.
So I ask you to pop by and share your ills, if not too personal for you and we can maybe fathom out just where exactly are we going wrong on the ESA front.(this is prompted by getting an email froma friend to say she has qualified for ESA support group for her bad back! I do not in anyway say she should not have it, she should, her back is bad) But I get the impression that people in some areas are more liely to get it than other, I could be wrong xxxxx
Written by
Ozzygirl64
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Oh my goodness,
I dont know what to say, its all so gloomy and I think you are right about "if your name comes out of the hat"
I have fibro, quite bad. My legs on a good day let me hobble about on a bad day they freeze from the knees down and ache to the point of tears.
I have epilepsy, reasonably well controlled. severe headaches, blurred vision and oh the best one IBS I daren't go out on my own, the times I have soiled myself and so embarassing, I wonder how those who judge and condemn people like us would cope with some of the problems and to add insult to injury have your symptoms ignored or told "Well you could be exagerating"
I know Im exasperated!!!!!!!!!!!!!!!!!!!!!!!!!!!!
sorry for the rant, got myself on a roll there. lol
Thanks for the reply Susan. The sad thing is is that we do not seem to just have the one thing going on, if we did I could understand their reluctance to give us anything. But I think when someone has more than one thing going on then they should be prepared to listen just a little bit more xxxxx
Arthritis in hips, knees, ankles,elbows and hands ( not officially diagnosed yet)
Suspected anklosing spondylitis
Ibs
Severe stress
I'm in shock right now! Seeing it all written down really brings it home. 4 years ago I was a gym instructor and lifeguard, had completed most of the course to make me a nutritionist and was Bout to learn to teach swimming lessons. I was bright and full of the lust for life, no debt, single and happy. I had bought my house on my own and was very independent. Then it all came crashing down because of a whim. I decided to have a boob job and tummy tuck. This got infected with mrsa which left quite a lot of scarring and this, I believe is what triggered it for me. Within 3 months of the op, I had moved my partner in, taken on my 2 grandsons, given up my job and was in debt. It's been q major struggle ever since. Ive fought off 5 possession orders in the last 2 1/2 years and yesterday I got another so the battle starts again. The anxiety is because vote my mum and dad had heart attacks in the same week although thankfully they are fine now.my brother in laws dad was found dead in bed which was caused by his diabetes and when his mum heard, she also had a heart attack. My mum has lost 3 pets and I've lost several too in te last few months. My beautiful kitten who had only been here 2 months was killed by a car a couple of weeks ago and I mis her terribly, but I imagine her doing the things she loved and it makes me smile!
It's no flippin wonder im depressed!
Sorry, I went well off topic there! It's just that seeing the list above has made me painfully aware how much my life has changed. I'm very grateful to fibro in a way. it's made me slow down and that in turn has made me see the beauty that surrounds us every day. I thought I paid attention before but I was just glancing and not really SEEING. Our lives are a gift and I want to squeeze every bit out of it that I can!
Yes same here re: no continuity in decisionmaking. I have many fibro mates realtime across the country, most of whom suffer baddly but to their own admission are not at the same level of disability as me. They ALL get hogher levels of DLA and benefits than me (most of them came to me to help them with their govt forms!) I am stuck getting £18 per week low level care and 0 mobility! It isnt a fair system FULL STOP. Its like the old addage about folk passing their driving test, they can only let a certain few through! I havnt given up, but its a hard fight and an unfair one. All the while the govt pays agencies like ATOS to "examine" us we arre all on a hiding to nothing. Their practices are deffinately unfair and certainly in my case after reading the pack of downright lies they wrote uunlawfull. But I live another day to fight the fight and try for justice. I was visited by a DWP employee for my autistic son the other day, and she offered to look into my case. That was 6 weeks ago and not heard anything and have chased, but she said she could actually SEE I had severe mobility issues and would help. I live with hope but lack faith! Not surprising.
Rather than list my ills.......... Im sending you some hugz and alot of love dear affliction sharer
I had a very large ganglion removed afew years ago now. And I forgot about the allergies I have due to the COPD. We all seem to be going through the mill xxxxx
They put pressure on the carpal tunnel area as far as I know, it depends where it is situated. Normally ganglions are on the top of the wrist. Mine was on the underside and was around the size of a sprout. I have one on the other wrist, same area, same size but I am not getting it done as I have seizures after aneasthetic. Hence my GP says I am not suitable for operations unless it is amedical emergency xxxx
It actually made me feel sick when I read thro mine again, as I had always been full of energy before I got ill. and now its as much as I can do 99% of days is manage to drag myself out of bed, and into my little dayroom/office/restroom that my lovely hubby made for me, Its 6 yrs since I have been further than 50yds on my own, as I panic, don't know where I am going or what I am doing, I have had to hand in my driving licence, due to this and the sleep apeona,
don't laugh to much I took the pup on the grass out front and fell asleep. one of the neighbours went and fetched my hubby, we all giggle at it but it could have been a disaster. I feel around 95 not 55, bloody illness,
IBS I also have accidents, very embarassing, Migraines and optical migraines, weakness in muscles, muscle spasams, fibro, altering hearing and sight, virtigo, depression, panic attacks, confusion and brain fog, Raynaulds in feet, hands and nose, depression and probably a few things that I have forgotten. Gosh reading all that I wonder how I get up in the morning.
Carpel tunnel (affecting whole arm on right apparently)
Brain fog
Short-term memory problems
Short tendons in my toes (causes pain and I can trip over my own shadow!)
Bladder problems
Low thyroid levels
I could go on but I'm tired and can't think clearly at the moment. We had our Uni annual exhibition trip yesterday and as you can imagine I'm definitely NOT having a good day today
you are very welcome. Everyone wants a good day and I have not had a good day for 20 years now. I wake up each day and think 'is today going to be a good day?'. I put my feet out of thebed and think 'nope, not today it aint'. I have got used to having nothing but bad days but I just have to get on with it, to a point we all do but I am doing it without pain meds but not through choice lol xxxxx
I know what you mean, once upon a time I had good days and bad days, but these days I get bad days and worse days, but at least I made the trip yesterday (thanks to the helper I have when I'm at Uni) and today I've spent the day in bed with my cat curled up nearby keeping me company I shall have to try and get moving at some point over the weekend as I need to start taking some photos for my uni assignments, but I need to be able to move first! It usually takes me about two weeks to get over these trips and I sometimes wonder why I do it, but then if I didn't push myself to do these things every once in a while, it would be very easy to just hide away at home all the time.
Sorry you can't tolerate meds, I can't take them either - the side effects are way worse than the fibro!
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it will indeed be interesting to see just how many health conditions we have between us!! Heres mine 
Here I go!!!
What were your first symptoms of fibro?/Initial reasoning you saw doc? 99% sure I may have it. 
Neck pain bad migraines
ESA no medical worried sick
I think I am going mad ....
