Hospital: Has anyone been admitted to... - Fibromyalgia Acti...

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Amanda profile image
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Has anyone been admitted to hospital because of fibro?

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Amanda profile image
Amanda
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phlebo123 profile image
phlebo123

Hi Amanda -- yes -- before I was diagnosed I was suffering such excruciating abdominal pains -- had my appendix taken out years ago, so was not that -- (they felt like intense "labour pains" ) that my GP sent me straight away in an ambulance to A&E -- they kept me in over night (after I saw a gynaecologist in case it was endometriosis and then a Bowel consultant) -- it was decided that it was " just" a bad bout of IBS and was given Buscopan and sent home. I also had a 2 laparoscopys to look for signs of endometriosis and barium meals to look for any bowel disease. I now realise that it was prob due to the IBS part of the Fibro. Now my life revolves around the well-known (and hard to stick to!!) "pacing" regime and mostly I can keep the pains at bay!! Have you ever been admitted? take care xx

I too have been admitted over night with my bowels which they thought was appendicitis, turns out i was just full of it. I also ended up in casualty for it as well. I react to enemas and sapositories so find it very difficult to deal with when i get to that level of pain.

Have you been admitted to hospital then? xxxx

Mrscats profile image
Mrscats

I was admitted with excrutiating loin to groin pain as suspected kidney stone. My care was a disgrace...ended up being readmitted and given a ct scan which showed nothing. Ultrasound showed ovarian cyst on opposite side,

Consultant shrugged, gave me a bottle of morphine and sent me away. Been flat out for 5 weeks but ope to return to work next week as I'm really fed up lol.

Sadly, the consultants see the word fibromyalgia and think any pain you have is that. Whether it is or not, fibro makes nerve endings super sensitive so any problems you have are magnified and take longer to sort. I will be attending pain clinic for first time at end of the month and have repeat of ultrasound in December, I have also been referred to a neurologist for other sensory/neuro symptoms.

In hospital I found the nurses t be so so caring wonderful and understanding. Sadly the consultants let everyone down with their own self importance (luckily not all of them are like this and I have met a coup,e of gooduns!)

Sorry this is so long!

Oh hell ovarie cysts can be so painful i used to suffer from polycystic ovarian syndrome and my ovaries loved to grow these extra big ones called dermatoid cysts and they are hard and are full of hair, skin, bones and teeth and don't go away i had 3 operations to remove them and the last resulted in full hysterectomy at 29 so you stand your ground with them, they work for you remember so get what you are entitled to.

I'm extrmly sensitive to foreighn objects in my body i tried the coil twice in my past and both times had to have it out as i could feel them inside me all the time not nice, yet can never tell when i'm sat on the tv remote mmmm lol xx Take care honey and stay strong xxxx

Mrscats profile image
Mrscats in reply to

Thanks Hun...bit scary when we have a family history of ovarian cancer as well.

I think when I'm finally allowed to start trying for kids and had my family, il ask if I can just get rid of them to reduce the risk x

Amanda profile image
Amanda

I was admitted for 3 days in August with a queried viral lower respiratory infection and fluid retention (over a stones worth) I think that things were exacerbated by fibro.Just been to Dr today and she thinks I have oral thrush again.I explained that my mouth is really dry and sore and I have been finding it hard to swallow and have been choking on food and drink.I have a thick film in my mouth also.Dr looked in my mouth and said "Ergh how did it get that bad,you have fissures on your tongue" charming! She gave me a weeks worth of antifungle tablets and if they don't work I'll have to go and have a camera down my throat to investigate as it could in theory spread to my intestines great I can't wait!

Ozzygirl64 profile image
Ozzygirl64

I have never been admitted to hospital with fibro. I won't allow it. This is no slur on those who have but I refuse to let it hospitalise me as I am needed too much here at home because of my daughters ill health xxxxx

sheena123 profile image
sheena123

About four years ago I had a heart attack?. I was at my GPs at the time, my blood pressure zoomed up to 240/190, then my gullet went into spasms, ambulance to hospital, five days in Coronary Care, then sent home with no after care, next day kept pukking up even though not eaten for 4 days, my husband called ambulance and back I went into hospital, had a camera put down into the stomach, just a small hiatus hernia. I told consultant that it must be Fibromyalgia. Then I kept getting heart problems back and forth to hospital, put on 24 hr heart monitor and was told I have an extra heart beat (where did that come from) and sent on my way, I have given up on the NHS. I had an MRI scan about 10 years ago and was told that everything was alright and go back to work. I phoned the hospital complaints dept. and got an appointment with a different Rheumatologist, who sent me to see a Neurologist, he said to me 'you have a lot of problems with you neck', I said I have but how did you know and he told me he was looking at the result of my MRI scan, which said I have an extra disc in my neck and the bottom of my spine is fused together, he said it did not sound right and he wanted to see the actual scan and to come back in 6 weeks, which I did and would you believe it my MRI scan was lost. About a year later my husband had a bad back and went to a chiropractor, I went with him and when the chiropractor saw me walking with a stick, she asked me why so I told her. She knew all about FMS and asked if she could take some x-rays of my neck and spine. I do not have an extra disc, I have Osteoarthritis. Now I know why the hospital has lost my MRI scan, at £600 which is what it costs, it is no wonder the NHS has no money

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