It amazes me !!!!

[jenniferuk]

It amazes me, at the moment things with my condition just seem to be getting worse, and everyone just looks at me as though I am putting it on. I had a cry last night, because of the pain and others ignorance, and I am crying now because of the pain and others ignorance. I just wish I could stop the palnet and jump off it.

[djclark]

hang in there, I think all fellow suffers feel the same, I am having a really bad flare up at the moment and took my fit note into work (Dr signed me off for a week)... just got blank stares, ok, I had my make up on (never go anywhere without that!) but people just don't seem to understand the condition. We are here for you, take care x

[jenniferuk in reply to djclark]

Thankyou for encouragement dj x

[Dixiesdaughter]

Oh jennifer know xactly how your feeling!! Had a massive row with my 22 yr son last nite and as usual the stress and annoyance has multipled by 100% my pain and anxiety. I couldnt sleep last night as I kept replaying the row and im a complete wreck this morning. I dont even have the luxery of going back to bed and tuning out the world as im due into work for 1pm. My son suffers from an anti social personality disorder, anxiety disorder and addictions and his behaviour can be intimidating aggressive and very hurtful and distressing and over the yrs it has worn me out

After the row I ended up in tears for hours while he sauntered off to meet his girlfriend completely oblivious to the devastation he left behind!!! Sometimes like you I just want to stop the world and get off. Nxt time round im comming back rich childless and carefree lol

Fingers crossed things improve for both of us today take care xx

Dixie

[jenniferuk in reply to Dixiesdaughter]

I know what you mean Dixie you take care today xxx

[Hidden]

Hi Jennifer, I am so sorry that you are feeling very down at the moment. I think most of us on the forum have been where you are just now so you do have our genuine sympathy. Life is not easy with this wretched illness is it? This is just the place to let of steam when feeling sad, angry or frustrated because we too have been through the same emotions and frustrations. However, you really shouldn't be in so much pain that it is reducing you to tears on a regular basis. Your GP should be able to prescribe medications that can at least keep the pain under control so if you continue to suffer, why not ask them for a review of your meds? Have you been referred to a pain clinic? That might be another option to help you cope with Fibro and your GP should be able to help with that too.

I do hope that you are feeling a bit brighter very soon. Keep us posted as we will worry about you! Jane x

[jenniferuk in reply to Hidden]

Hi Jane, I have just come back from seeing my G.P, i have been put on more tablets, as she reckons that i am depressed (is there any wonder) and that i have to go back and see her next week. She is also getiing me a wheelchair ordered as its to painful to walk anywhere now. I was referred to a pain clinic, but i was unable to get there at any of the times that they had appoinments. And they coudlnt/wouldnt change any of the clinic times. xxx

[Hidden]

Sending you a hug too as I know how you feel..I have rang in sick today after weeks make that months of carrying on...i'm tearful and not feeling well at all and simply need to rest up a little and put me first....

[jenniferuk in reply to Hidden]

Gentle hugs to you Mum xxx

[Hidden in reply to jenniferuk]

Thanks...doctor gave me a two week sicknote and also put on antidepressants to help me sleep...

[Akasha72]

I can relate to painting on the face and people saying "but you look so well!" Recently I've stopped painting on the face and letting the world see the dark circles under my eyes from lack of sleep. How small my eyes look without mascara and the pain behind them. I've stopped doing something with my hair aswell and just scraping it back. It's amazing how many of those people who told me I look well with my face on now say I don't look so good without it.

Next time you go into work when your unwell be brave and try going without the face on. I know it's hard to do but we need to let people see the condition and how washed out it makes us look without make-up.

Also sending you a gentle hug as you sound like you need it. Take care

Akasha

[jenniferuk in reply to Akasha72]

Hi Akasha im afraid i do not work as my condition stops me from doing so. Wish i could though. And i have done it today, i have actually not warn any make up at all. Thanks for the hug gentle one back to you xxx

[trixter]

hay, dont feel like that, im in the same boat as u, and im sure others are, it is annoying when u think people dont understand our pain, all it means is that they need educating by you, just how uncomfortable we get, with pain, not sleeping etc, dnt give up, stay strong, we all have our good and bad days, and im having a bad1 today, my body is in pain, my shoulders, hands, feet legs, but its a day when i do nothing. you are not on your own, just part and parcel of our condition xx

[jenniferuk in reply to trixter]

Tell me about it xxx

[vikki]

No don't do that as my mom would say dont do that you will make a mess, she has a plaster for every sore bless her...I am new on here and I can honestly say every one is fantastic so just put your feelings on here there is always some one who has either gone through what you are going through or is going through it now, you are definitely not alone there is always some one to chat too..take care of you

kind wishes vikki xx

[realsorelady]

I too never seem to get any understanding from anyone including family. I havent heard from anyone in ages and when I row with my daughter of boyfriend, I feel terrible and get whingy and feel like Im on my f*&king own. Thinking of you and hope you feel better soon x

[Ozzygirl64]

I think we all get that way from time to time and the fact we cannot make others understand is so frustrating too. Hang in there hun and you know where we are should you need to vent xxxxx

[michaelb62]

I certainly know how you feel there have been nights when i have cried myself off to sleep as i am in so much pain and can do nothing to stop it there are days when i have said i would happily have an amputation from the waist down just to get rid of it. The partner i have at the moment is deaf so he doesn't even hear me crying although he is very understanding of the illness we were discussing it last night as he saw how bad things were last week when i had been shopping with him and drove back but then couldn't get out of the car i walk with one crutch (used to be two but I had surgery on one hand so could only use one) he had to come indoors and get my other stick as there was no way i could move and every step was so excruciating i was actually doubled over with it. As we were discussing it last night he was saying is it that people can't see it that they don't understand which he obviously gets because he is almost totally deaf well he is at the moment as his one hearing aid which gives him a bit of sound is too uncomfortable for him to wear and as people can't see deafness they don't understand how hard it is for him when he goes to a shop or cafe and asks for something and may not understand what they have asked him as they may turn away and ask or look away which means he can't lip read. Then if you tell them he's deaf they talk to him as if he is stupid ( which he isn't not by a long shot). I try not to go on too much to my family about it two of my sons have fibro and my daughter has also been diagnosed with it. My sons have started with the same problems i began with which is knee trouble my daughters is her hips.

Gentle hugs to everyone who is suffering at the moment and jenniferuk don't be so tough on yourself even though your partner is also suffering you are both there for each other thats what relationships should be about being there through thick and thin. take care xx