Invited for another ATOS meeting - No... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,448 members66,492 posts

Invited for another ATOS meeting - No tea & cake I suppose.

hobbbllliiingaround profile image

The envelope has arrived , my second one this year , after the last one I am dreading it. This time I paid extra detail to the form filling - included letter from Mental health - one from my Physiotherapist. Two Rheumatology reports Made sure I filled every box --- 16 rs of M.E & Fibro ...Severe Depression ......absolutely no way I can hold a job down and I cannot believe that there would be any firm out there that would consider hiring me.

This has been the worst year for constant flare ups & a dreadful time with my Anxiety levels sending me round the twist almost completely ......................Surviving on £71 .00 per week....feeling like a leech on my daughter who keeps helping me out and now I see an article in the local paper saying that they are going to deduct money again for the spare room -- ( the one my grandchildren occasionally stay in ) Are we really gonna be left to starve......freeze.........there isn,t gonna be long to wait Mr Cameron at this rate we will all be dying of cold & hunger..................if we are strong enough not to do it ourselves.

Written by
hobbbllliiingaround profile image
hobbbllliiingaround
To view profiles and participate in discussions please or .
Read more about...
6 Replies

I totally agree but they are destroying people and as back in 1939 people are watching and not believing the extent of this horrendous action that is being taken against the poorest and most vulnerable......................................They might as well send the buses to gather us up for camps the way my life is going ............. I have nothing...nothing at all.......and to be judged that this is a life choice is so so humiliating and soul destroying. I was a hard working person pre- illness working full time factory as well as four evenings a week - dragging a Karaoke disco around clubs & pubs..I paid into the system..as did most..I USED to be proud to be British but not any more !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

ginge profile image
ginge

im the same i darnt have the heating on, the bills have crippled us, as i also was paying for my scripts as well, [ untill recently i had the free prescription card], im just freezing, had a massive flare up of the M.E. and the fibro, was just feeling slightly beter this wk and then yea u guessed it, a bloody traped nerve in me neck, afecting my right arm...cant even nibble the chocolate off the edge of me buiscuit and its so painfull........gods sake what ever are we going to do.....anyone know of a cheap gass and electric....im with eon...and its £88 a mnth....

hobbbllliiingaround profile image
hobbbllliiingaround in reply to ginge

Has your supplier got a warm front scheme, I have just managed to get it from British Gas, It gives £130. pounds back to you if you are on low income/benefits. although I will say this is about the third year I have tried to get (complained to supplier this year) Also got them to work out my cheapest tariff & swapped to it. Should save a £100 there too. I,ve been sat without heating most of this autumn absoluely dreaded the winter months. & not had hot water until absolutely needed. I am disgusted at the treatment we are receiving. And I am lucky enough to have family , who feed me regularly.Feel like a bit of a Beggar at times..it is such a horrid situation we are being forced into........WE are sick people being FLOGGED by.......the .....government..............SICK

hobbbllliiingaround profile image
hobbbllliiingaround in reply to ginge

Hi ginge

I have got the warm front discount and will be getting the £130 toward my winter bill, at the weekend I contacted my fuel company and got told I was not on the cheapest tariff - I have in the past asked about tariffs as I find them confusing. Decided to e-mail a complaint that in the past had not received enough help. I have now got a further £60 being put in my account next april. Make sure you are on a good Tariff and pester about the price of bills & warm front...it may be worth your while...x

Benjamina profile image
Benjamina

I know what you mean..they are causing untold stress and hardship...they are in fact making our illnesses worse..and you need your psychiatrist to state this in your evidence.

hobbbllliiingaround profile image
hobbbllliiingaround in reply to Benjamina

MY psychiatrist gave me a pretty good letter & was very apologetic that I had to pay for it ( she obviously knows my situation ) But at a tenner a time it is the only one I,ll be getting so I have taken many photo copies of it. No doubting this system that ATOS has come up with I will need them time and time again. WE are not allowed to be sick in PEACE anymore..............................................The stress of the brown envelopes coming is enough to send you over the edge......knowing how they treat us....This is my second round of appeal.......!!!!!!!!!!!!!!

You may also like...