Fibromyalgia Action UK
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Pain, Pain and More Pain

Not a good day. Pain in left side of my throat is bad. I tell people I haven't got a cold type of sore throat. I have pain in my throat. This is usually accompanied by my voice going from nothing to a sexy husky sound. Although my voice can change or disappear without pain. I seen various ologists over the years before fibro was diagnosed and nothing could be found. However once I was diagnosed I was told it was fibro causing it as it affecting the muscles in my throat. And the best thing to do is not talk ( something I like to do) drinks fluids and rest. Family and friends never comment when my voice is off their are so used to it. In fact people avoid talking to me as they say I've to rest my throat. I don't want to rest my voice I want to participate in the world. I feel I live in bubble where life is happening on the outside and I can't take part. When it disappear completely it makes me feel vulnerable when I have to out. And if the phone rings I just look at it and think " yeah and what am I suppose to do with you."

I did have one stranger who called trying to sell me something offering to come around to my home because I was making him horny

Sorry it's a long moan but my throat really hurts and my voice is hardly there. But it's ok because my ESA as been stopped because I should be looking for work. With no voice a lot of the time would be interesting what job I can do.

Thanks for being there. It's good to let rip occasionally with people who understand. After all I LOOK WELL

3 Replies

You let rip all you like Ms Fed up that is what this board is for after all lol

i guess Receptionist be out the window & town cryer (sorry) trying to give a giggle as not nice when fed up and you get told you should look for a job!

You are sufering as well having your p/t vocals.

I get a bit husky or crokey or what evr since i started all this rubbish but i do not lose my voice as such and do not really have any pain in my throat. i get a band around my throat and i struggle with swallowing quite a bit these days especially at my worst in evening tends to bother me.

Our voices are special so i guess you will have to type and send msgs .i feel i can talk better typing than i can talking as i send alsorts of unusual words out there that i never even wanted to say and family/friends laugh even though end of day what comes out of our mouth is down to this a lot.

Charades witht he family can be quite fun if gets too bad at times .

really hope something some where in the futere can help with your problem



Sending you hugs... please look up myofascial pain syndrome...

fibro does not make your voice go husky ... keep pushing for assistance if you can... I am so sorry you are suffering.. xxx


Thank you for your comments and the smiles I did at your message fairycazzie it made me think of other jobs I should consider like opera singer,radio presenter. The reason my eta as been stopped. Is because I been on it for a year and as my husband works We cannot get anything else. So I m a kept woman whose husband keeps telling me to shut up and rest my voice. What is funny is when my voice is very low. Other people start talking to me with a whisper. When they don't need to.

I may not always write blogs etc but I get a lot from just reading the site. As it makes me realise I m not alone. Xx to you all


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