Missing......: ......I haven't been on... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Missing......

RealTSM profile image
9 Replies

......I haven't been on here for ages....I've been lost in try a get my life back 2gether!! In the process I've been put into therapy to learn how to cope with Fibromyalgia n life in general....I've lost my car (long story)....realising that I have to move as I can't manage the stairs anymore, marvelling at my growing grandchild and realising that someone I trusted and thought was there for me really wasn't!!

I really hope that things will get better....I've got to believe they will...have faith they will because I don't wanna end up in a dark place again.....

I dunno....so many things going on at once......

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RealTSM profile image
RealTSM
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9 Replies

I am sorry to hear so much has gone on for you so wanted to send you a gentle dyslexic hug

Ginsing profile image
Ginsing

Hi Real TSM bless you you are having it tough hope you manage to see the good at the end of your long struggle. Coping with Fibro is ghastly try to be positive if you can push the dark place and thoughts away. Try to find some simple enjoyment out of life - something to make you smile :) gentle hugs from me x gins

RealTSM profile image
RealTSM

Hi Lexie n Gins.....thank you both for ur kind words. I don't think I've truly grasped what Fibro is....trust me I feel it but each day is different. The only thing that keeps me sane r my Lil family, knowing that things will get better and that I have an outlet n inlet from FibroAction.

Big juicy, gentle hugs x x

rainbowdancer profile image
rainbowdancer

(((((((((((((((((((((((( Big Hugs )))))))))))))))))))) to you ...I know where you are at the darkplace is not good and it is very hard to be positive...Fibro brings new unwanted challenges everyday, hope you soon feel lots better ......I for one am so glad I found these guys and in less than a week I feel so much better for thier support !!!

Love and Light

Rainbowdancer x x x x

hamble99b profile image
hamble99b

I have a stairllft that was 3rd hand and it means I don't have to move.

take care,

sandra.

Hi sweetie,

I hope you dont go anywhere near a dark place, sometimes I feel as though they follow me around so I know a bit of where you are coming from.

You just keep coming on here as we all try our best to keep each other going.

Lots of gentle squidgy hugs

Susan x

So good to see you back with us RealTSM, I am sorry you've had such a hard time of it lately. Don't be too hard on yourself being in a dark place. I am sure we have all visited there once in a while with all we have to contend with on a daily basis.

We are always here for you to offer support where we can, to discuss our own experiences and to try to help each other realise we are not alone with the problems we face. Draw strength from your family, count your blessings and whenever you feel things are getting tough, pop in here and find understanding, support and friendship. We are all in the same boat so we understand.

Take care RealTSM, here's a hug for you. :)

RealTSM profile image
RealTSM

Rainbowdancer (lovin' the name), Sandra99b, SusanY and LibertyZ....cannot thank y'all enough for all the hugs n kind words....it feels so reassuring...believe me. Once again, n I know y'all will get this....because I look normal I'm treated like there's nothing wrong with me! On loosing my DLA appeal I visited a charity organisation for help with filling the form out....the lady that helped me had earlier been behind me as I walked up the stairs and commented when I explained to her about the adjustments to my home which she 'assumed' I didn't have because I climbed the stairs, that I didn't seem disabled in any way!! As we Fibroits know....each day is SO different!! I must admit that it hurts when peeps say things like tha t because if you really look in my eyes you can see the pain although I try so hard to hide it.....even though I was recently told that I shouldn't compare my pain n fatigue to a reasonably healthy person as I have no right...the pain is evident in my eyes but I was still expected to babysit her child when I'm blatantly having difficulty with looking after my own with zero support whereas the healthy person has support!! Sorry to go on but I was devasted with this response....torn apart....that when I visited the dark place....but as my therapist once said 'u cannot control peoples responses to u' so after a while.....I dusted my shoulders and am striving to dig myself out of the hole seeking love n light.....it's reassuring to have such kind n sweet people to turn to on this page n I thank you all wholeheartedly x x

P.S. I can't get a stairlift as my stairs are too narrow ??

Big juicy, soft hugs to you all x x

That's the spirit RealTSM! Pop in here whenever you can, we're always here for you, just to listen or to help and support where we can, also to offer friendship.

Take care and I hope things settle down for you and all work out in your best interest. :)

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