Has anyone been given Levothyroxine t... - Fibromyalgia Acti...

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Has anyone been given Levothyroxine tablets.

Abbeystead profile image
18 Replies

As well as the ME/FM/CS have now been diagnosed with hypothyroidism - well I think that's what it is. Dr said bloos counts are all over the place and put me on Levothyroxine. Also my blood pressure is going sky high. Have noticed I am more tired than usual (and that's saying something). Anyone out there with any advice they could offer me and are in the same situation. Dont know if the reason I am more depressed than usual is also down to it. Got to go back next week for weekly BP reading and in 3 weekst o see how I'm responding to Levoth...

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Abbeystead
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18 Replies
susie59 profile image
susie59

i was diagnosed with hypothyroidism 7 months ago, when you first start on the levo, it takes a while for you to feel better, i cant do links but thyroid uk is part of this health unlocked site and i would highly recommend you go to it, i was given so much help from them and i am on my right dose now, good luck, :)

getactive profile image
getactive

Hi If you have an underactive thyroid it can have a huge impact on your health and well being I am on thyroxine and if my levels drop I am so tired my hair and skin go very dry my mood is low so hope you get sorted Sue x

Abbeystead profile image
Abbeystead

Aar,thanks Susie and get active fory our quick replies. Read some oft he side effects this can have and got a bit scared. A little knowledge and all that........So thought I'd see if anone on here could put my mind at rest. Only been taking tabs (50mcs) for 3 weeks and am expecting miracles. But that's me all over - impatient. So this on top of all my other ailments is the final straw. Just another thing to tolerate. Apologies for the sticky keys on here. No not another ailment, just this bloody pc. LOL. X

julieevh profile image
julieevh

Thyroxine is brilliant - I was diagnosed with an underactive thyroid 18 years ago and until my stroke in 2007 it gave me my life back.

It can take a time to get the dosage right - but persevere .... it will be well worth it

Julie xx

Abbeystead profile image
Abbeystead in reply to julieevh

Many thanks Julie. I take it you're on Levothyroxitine. Have a bit of a headache at the moment and dont know whether its associated with tabs. Anyway thanks for answering, it means a lot.

Maladjusted profile image
Maladjusted

I've been taking Thyroxine now for 16 years. It does take a while to feel the benefits. I am very anti drug, but wouldn't be without it now. Luckliy I haven't had any side effects from the medication, just from the hypothyroidism. Now if I forget to take it I am completely without energy and my skin itches quite badly. Getting the dose right can take a while Speaking personally if my doese is too high the night sweats are much worse than normal, too low and I can shiver mid summer and gain weight even whilst dieting.

Good luck with it, I am sure you will soon feel much better in yourself for taking it, without it your body has to work so much harder.

Abbeystead profile image
Abbeystead in reply to Maladjusted

Thanks for your reply,I appreciate it. Have only been on it about 3/4 weeks now.Feel very lethargic and a bit of a headache,but this may be due to my other complaints. As you say it's getting the dosage right. Have always had trouble losting weight and now I have a good excuse!!! Have a sensitive tummy as well with IBS and didn't have a very good night so am inclined to think maybe its the Levo., They dont call me Mrs.Hypercondriac for nothing. Cant wait for the next few weeks to pass to see if it really does its job. Have been given Amlodipine tabs as well as my blood pressure is see-sawing. Like a chemists shop in my house.

Thanks again

Flips profile image
Flips

I was diagnosed with hypothyroidism 10yrs ago and fibro for just 2,altho I expect I've had that for as long. When diagnosed I was offered thyroxine. Thankfully it only took 3 weeks to see effects fully and at 75mg I've been on since day one and had no probs with it. (I think lol) apart from that I have spondilosis on the C1-C5 vertebre, high blood presure as well as the fibro and thyroidism. The amount of drugs I take is sickening but tbh I couldn't be without any of them now. :-( altjo if I had one wish it would be to be completely healthy again!

Hang in there mate. You should see results shortly xxx

Abbeystead profile image
Abbeystead

Thanks Flips. Well if anyone is qualified to give advice you certainly are after taking them for that long. Seems we are both suffering from the same complaint FM/Cervical Spondilitis and now I have this thyroid problem. Thanks very much for answering my query. This site is so helpful through peopple like yourself and everyone one this page. I'm only on 50mg at moment. Just trying to work out my dosages. Oh well, Happy days . Anyone got a gun out there.LOL and thanks.

Hi Abbey, I have been on Thyroxine for about 10 years and can't say I've noticed any side effects. As others have said, it does take a few weeks to work and a while to get the dosage right. I was referred to an endocrinologist because my levels weren't settling down and was but on an additional thyroid hormone liothyrinine and so have a combination of both and my thyroid function tests are usually OK now. I don't know if you are being managed by your GP or seeing a specialist but people are often referred to an endocrinologist and once they get your dosage right, your GP can look after you then.

I did feel so much better when I started taking the meds.

It does seem to be pretty common amonst us fibromites.

I hope you start to feel the benefits soon.

Christine

Abbeystead profile image
Abbeystead in reply to

Thanks Christine for that. I'm such an impatient person I want thing to happen immediately as I say patience is not one of my virtues.

No,just being monitored by GP at the moment and see her again in 3 weeks time.

Maybe then if there's no improvement she will refer me on. I am so tired though and that along with my FM and CFS doesn't help.

Thank you for your reply.

Cheers.

Avril.

in reply to Abbeystead

Any time Avril, you can always PM me if you want any more of my experience. I won't confuse you with the details just now but if you have trouble getting your levels to settle, I'll be happy to share my journey.

Christine

Abbeystead profile image
Abbeystead in reply to

Thanks Christine, I appreciate that. Its all gobble-de-goock to me at the moment.

tulips123 profile image
tulips123

thyroid went haywire after birth of my 2nd daughter (23 years ago) 1st diagnosed severe post-natal depression, like trying to wade through cotton wool & constantly in tears even though i loved being a mum couldn't work it out myself, they finally did simple blood test 18 long months later. within a few weeks felt like new woman the relief is impossible to describe been on tablets ever since, they will i'm sure really help you!

Abbeystead profile image
Abbeystead in reply to tulips123

Hy Tulip. Is it the Levothyroxidine you're on? So Glad you're now OK>

tulips123 profile image
tulips123

Yes I have 200mg Levothyroxine daily. They may adjust/re-adjust a few times according to blood test results, but i dont think you'll know yourself after a few weeks! Hormones have a lot to answer for (or at least the ones that misbehave do!) :)

Abbeystead profile image
Abbeystead in reply to tulips123

Thanks Tulip. God that sounds a big dosage you;re on. Expect my dosage will have to be adjusted in the near future. I'm one of those impatient people who expects things to kick in right away. Have asked for a print out of my readings. This is all new to me so any advice anyone gives me is much appreciated.

Thanks for replying.

Avril.

tulips123 profile image
tulips123

Just really glad to help. Been on these for about 23 years now, bloods checked annually, but would imagine once your levels are stabilised they may want to check more often for a while. Also to bear in mind, you cant really know how long your thyroid function has been gradually dropping, but before long I think you should start to notice as you become more clearheaded, perhaps less tearful or down, more energetic, hopefully joints will loosen and become less stiff/painful. Actually just had another thought come from the depths of a 23 year old memory :) - if you start to feel really agitated, sweating/hot flushes and unable to sleep you may have gone too far the other way and must contact your gp for advice/may need blood test to check on it. I do hope I haven't scared you, i'm positive you will be fine and your quality of life will improve so much. It's such a fine balancing act and i'm sure your doctor will want or rather expect to monitor carefully until they stabilise and know just what dose is right for you. I'm sure better times are just around the corner :) :) Dawn x

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