Hi I am new to this page, and I have not actually been diagnosed with fibromyalgia at the moment as they are still investigating my problems, but having had a look at some of the post I seem to have many of the symptoms. This all started about 9 months ago when I suffered from a very bad back, this gradually got worse and worse spread to my neck hips shoulder, and is very painful. I have always had pain in my back and hips since I was about 16 but it has been manageable, then when I was 25 I started having problems with my hands swelling, going numb, and pins and needles, and was told it was carpel tunnel syndrome. Then when I was 27 all these other problems started. I struggle to do the most basic task, and when I do I seem to suffer even more the next day. Every time I try and do exercise e.g. walking riding bike, the pain for the following few days sometimes weeks is so intense I really struggle to get through the days. I have a history of rheumatoid arthritis in my family so at the moment they are trying to rule out anything like that. I have had an x-ray MRI, and just this week been for a bone scan, but the x-ray and MRI didn't show anything.
The whole process seems to be taking so long, and I just want answers which they don't seem able to give me. When I go to my doctor she just tells me that I am young and that I will just have to deal with it and get back to work, (I haven't been able to work since this happened) and it is so upsetting as it feels like they think I am just making it up and lying about the whole thing.I wish I was then I wouldn't be in so much pain on a daily basis. I have been taking co-dydramol for months now but it doesn't really kill the pain it just seems to take the edge of the worst of the pain. When I told my doctor that the pain killers don't really work she said well you just have to go out and start exercising more. Before this happened I was pretty fit and worked out but now every time I try it means that I really suffer pain wise the following few days, and when I tell the doctors this they really don't seem to listen or care. They just say you are to young you just need to get on and live with the pain, but I don't feel like I can.
I constantly feel like they think I am making the whole thing up because I am lazy and don't want to work, which is just not the case. I am so tired all of the time, especially if I go out and do a few things I come back feeling like I have just run a marathon.
I guess I am just wondering if people have had the same problems with diagnosis, as I have found it such a frustrating time, not really sure what to do with myself. I don't even know what is wrong with me yet!