I haven't had a good night's sleep in 17 years!, on crutches, can't sit for longer than 10 minutes, can't lie in the same position for no more than 20 minutes; I am constantly tired, in constant pain (on enough painkillers to knock an elephant out by the way). i attended an ATOS appointment (b4 I found out about this wonderful community) with someone who could barely speak English and with no medical qualification. To add insult to injury I was placed in the work support group and now have to attend a work focussed interview! I don't mind working if I can be productive and not fall asleep at my desk or in meetings due to sheer exhaustion from the lack of sleep (after all, I continued working for 16 years with the condition - only stopped a year ago when stress and high blood pressure took an unusual interest in my body and life!). Sometimes I feel being 6ft under will be better, but how can I when I have the kindest and most sweetest ever 9year old son there ever was. He gives me loads of hugs and kisses and tells me he loves me all the time. When he grows up, he is going to find the cure for fibro, so watch this space! They have all the letters from the healthcareprofessionals, but what do the professionals know! An English as a second language speaking Administrator is qualified to diagnose according to the DWP! In the words of Victor Meldrew "I DON'T BELIEVE IT!" It must be Friday the 13th!! Yes it is!!!!
Have a good day y'all.