All the way up until 2 years ago I worked 1 or 2 full time jobs. Now I work 2 4 hour shifts a week. It takes me a day or 2 to recover from 4 hours on my feet. I feel like I have lost my real self.
Have any of you had night mares as a result of medication? Mine have continued now for 3 weeks. It's hard to sleep and go back to sleep when you wake up from one. K
I've had a very difficult winter this year and would say I also feel as if I am in a continuous flare... I've had 4 colds (never used to get colds) and this last one has wiped me out completely. In fact I've spent the last 6 weeks more in bed than out. Yesterday I thought that I'd never be up on my feet again and was beginning to feel very very down but today I managed to get up during the later part of the morning and do a few chores and write a letter!! Not much I know but from a place of nothing achieved it's a start. I just hope it lasts and I don't catch another cold - the last one I brought home from my monthly visit to the doctor, which is due again on Monday, so think this time I'll wait in the car!!
I really hope you feel better soon too; just be gentle with yourself and don't feel as if you are failing or "losing yourself"... <3 Quite honestly for me this is the worse thing about FM, the never ending unpredictable nature of it and the unrelenting fatigue. I so often feel a burden to my husband as it's so easy to measure your worth by what you "do" and when you don't actually do anything it's so easy to feel worthless... So if I'd share anything at all with you it would be to take each day at a time, celebrate every small achievement and breathe easy over the rest. Wishing you well. xx
Thank you so much. I am finding that I can almost guarantee myself 3 solid hours a day. I have to use them wisely but I too feel like I can be a burden most of the time. I appreciate your response