HealthUnlocked now provides online communities for over 100 organisations like FibroAction. Have you explored the HealthUnlocked network to see if any of the other communities might be able to help you too?
To find other communities, hover the cursor over 'My communities' on the green bar at the top of the screen. A drop down box should appear. Select 'Browse other communities' and you can see the full list of HU communities.
Some other HU communities that may be of interest include:
National Migraine Centre
Pelvic Pain Support Network
Raynaud's & Scleroderma Association
Restless Leg Syndrome with RLS-UK
Quit Support - for help stopping smoking
National Rheumatoid Arthritis Society
Thyroid UK Support
Hughes Syndrome Foundation
The Australian Sjögren's Syndrome Association
There are many more, so check out the full Directory of HU communities,