just joined Hi to you all: I have just... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,855 members66,979 posts

just joined Hi to you all

jaffercake profile image
11 Replies

I have just found this web site and i find is amazing and also comforting. I was diagnosed last year although i have had it some 5 to 6 years. I thought i was going made. The more i went to the doctors the more they fobbed me of. You have coccydynia that why you are in pain. I have had that since i was 15 years old! You have S. V. T. That's why you have chest pain and feel faint. I have had that all my life! Its your sciatica playing up. NO i have had that for ages too...WHAT IS WRONG WITH ME!!

They even said i was addicted to pain killers?

At this stage i was beginning to think it must all be in my head. I even began to doubt myself. Am i going mad?

Then after years of different tests and adding more and more labels to my condition ( arthritis too ) they finally told me it was FB . At last someone believed me that it was not all in my head.

Written by
jaffercake profile image
jaffercake
To view profiles and participate in discussions please or .
Read more about...
11 Replies

we ve all been there, Ive had diagnoses of migraine , trapped nerve, siatica,arthriis,flat feet, anything bar what it was, I hope youll enjoy this site as much as we all do

Vicki1 profile image
Vicki1

A warm welcome jaffercake, I'm fairly new to the site too. I think it's invaluable and wish I had found it much sooner.

Take care xx

mystique profile image
mystique

welcome jaffercake i am new too n I love talking to people lol there are so many lovely people on here and they have all cheered me up no end - I really do feel n know I am not alone when I come on here - love the name btw - take care hope to chat to you again soon xxxx

roxyroo profile image
roxyroo

Hi Jaffercake, welcome everyone is so friendly on this site. Hope you find it as good as i do. Hug and love to you. Helen xxx

rosehip profile image
rosehip

Hi and a big warm welcome and a gentle hug xx

paula1967 profile image
paula1967

Hi Jaffercake

i only joined 2 weeks ago and foung loads of information on here and so friendly soft hugs paula x

paula1967 profile image
paula1967

should be found lol my typos are bad x

jaffercake profile image
jaffercake

thanks to all of you and yes i find you all friendly and welcoming hugs to all x

harvey12 profile image
harvey12

hi jaffacake welcome to our fibro family soft gentle hugs to you xxx

jaffercake profile image
jaffercake in reply to harvey12

thank you harvey hugs to you too

lynnh profile image
lynnh

Welcome to the site xx

Not what you're looking for?

You may also like...

hi all :)

sorry i havent been on for what must be years! its been not a very good time i lost both parents my...

Hi, I’ve joined here because I’ve just been diagnosed with fibromyalgia I’m desperate to know I’m not alone in this.

Hi, I’m Holly. 32 years old & ive been living with on and off chronic pain since my very early...

Hi all

My name is Jan. I was diagnosed with FM a good 15yrs ago now, although I was told I had RA & even...

Hi to you all

Hi my name is ann, iam 56 years old,iam a retired district care nurse, after 25 years doing a job I...

Just joined today!

Hi all, I have just joined today. I have had Fibro for about 6 years and am struggling more and...