Another knock back from DLA - Fibromyalgia Acti...

Fibromyalgia Action UK

59,449 members66,495 posts

Another knock back from DLA

dizzyduck profile image
18 Replies

Even though my own GP, OT&Rhuemo says I should be getting it. The DLA Government Depts say NO, NO, & NO again. I have a massive bruise where I fell trying to shower, however they say I am not at risk of falling. One ANGRY women, in pain, in despair. I MUST FIGHT ON........... XXXX

Written by
dizzyduck profile image
dizzyduck
To view profiles and participate in discussions please or .
18 Replies
webby profile image
webby

I work in a gp centre and can tell you that you are not alone they are just refusing all with any disability, but what is concerning is pts who have a partner who has been resused and have no benefits coming in at all as they are in this no mans land of being refused dla but not getting any other benefits WHAT IS GOING ON WITH THIS GOVERMENT DISCRIMITATION THAT IS WHAT IT IS AND WE MUST FIGHT. So dizziduck u keep on fighting its time we all wrote to our mp and make them them publicise it in parliament

Hey dizzyduck, gentle hugs.

I too, fought to get my DLA - and like you my GP's (2 off them) and the Rheumatologist I only saw once, told me to claim as I was NOT fit for work. It took me 2 years before they actually agreed as well!

Like you, I too, had massive bruises - but from falling into the bath as I was trying to get out of it - I applied - and got - a disability shower - but I do m=not feel safe in it - even sat in the chair it's damned slippery and I'm worried I'll slip and really hurt myself. I miss being able to soak my joints and muscles in a tub. Sigh :-(

Don't give up sweetie - I'm certain you will win out in the end.

Love,

Carol xx

dizzyduck profile image
dizzyduck

Thank you Carol. I'm very emotional today,tears are falling as I type this. XXXX

dizzyduck profile image
dizzyduck

Sorry I meant Cadee. Fyobro fog!!! and Webby, I think this will be part of my next step, Seeing the CAB for a welfare officer and my local MP. How dare they make me feel as though I have nothing wrong with me!, XX love and gentle hugs to all. This family gives me the energy I need tokeep the big fight going.

jazher profile image
jazher

I am sorry dizzyduck,

I too have been turned down last week for dla. I expected it though after hearing the terrible stories. I have someone helping me with mine through the me association, but she has been off and not back in till monday so i have to wait and see what she says before phoning them. I am just not strong enough to fight this on my own.

I hope you get somewhere with it soon hun. I wouldnt take it too personally hun as i think its everyone they are turning down. I know exactly how you feel though.

hugs, kel xxxx

Jane64 profile image
Jane64

I was advised to fill out the form as it is on THE VERY WORST DAY I've suffered.

I never did go ahead with it as I've since started to feel a lot better and there's no reason I can't work....AT THE MOMENT!!!!

IF it gets bad again, then i will do it and I hope that before long, FMS is recognised for what it is for many people, an extremely debilitating illness.

I hope you get some positive outcome soon.

Take care of you xxxxxxxxxxxxxx

dizzyduck profile image
dizzyduck

Jane64, DLA is for people who work with a disability as well as those who cannot work at all due to their disability. XXXX As you can see it takes its toll, and when your at your worst most of the time you don't feel worthy or have the enthusiaism to fight the government purses. XXXXXXX do what you hav to do now babe. it seems from the Fybro family blogs that is going to take years!!!!!

rosehip profile image
rosehip

IT MAKES ME SO MADDDDDDDD !!!!!!! I AM WATING RESULTS OF MINE ITS A MONTH NOW AND AVNT HEARD A THING X

in reply to rosehip

me too but it says up to 8 weeks on my letter then call them if you heard nothing they are awaiting an answer from my GP but i still dont hold out much hope on getting it my daughters mothin law ah=has just been told she is losing her money in november she is panicking as it is £500 a month alot of money i dont know wether she is getting anything else or it is jus stipping all together i believe they are stopping it completely it is awful at least i never have had it so if they say no i wont be worse offf but wont be any better of either love to you diddle xxxx

dizzyduck profile image
dizzyduck

Rosehip, I do hope you have a better result than I did, I waited 2 and half months for them to say no....... Even though my GP showed me what she wrote and said I am definatley struggling through each day. Wishing you the best of luck Rosehip Darling XXX

in reply to dizzyduck

Hi i think i am goging to have the sme outcome as you my GP tpld me to apply so i know they are writing to her asi type this and she will back my case BUT after seeing peoples blogs i have got it in my head that i am not getting it and i think that is what the outcome will def be but will see love to you diddle xx

soulsusie profile image
soulsusie

FiGHT FOR OUR RIGHTS LET US STAND AND BE COUNTED AND GET RID OF THIS JOKE OF GOVERNMENT.

RANT...................................................

mumziepauline profile image
mumziepauline

i have given up applying after doing so twice., they refused me e s a, and have put me on jsa which means i have to be actively seeking work, im so frightened of taking on a job because i never know how im going to feel when i wake up in the morning. could be good or seriously bad pain. its ridiculous that we are made to feel like this, the government have got it terribly wrong this time. so many people with disabilities are being forced into work when they clearly are not fit to do so, i cant see no way out and the stress is making me worse im now feeling like i have no where to turn

dizzyduck profile image
dizzyduck

mumziepauline please don't give up hope. I know it's awful that we have to fight like this. I have worked all my life as a teacher and now that I am sick, depressed and in so much pain, I, like everyone on this fybro family site has to fight. DO NOT GIVE UP, go back to your GP (hopefully an understanding one) and explain how you r feeling, when depression is very bad it affects our moods and our ability to see things straight, we cannot be bothered to get out of bed and we are so tired. How can you possibly work feeling like that together with your pain? I was blogging all day yesterday and today I have the fight in me that had been ground down. This blog is the best thing my GP told me about. Like the words of a song 'pick yourself up and get back in the race' (well slow pace snail) but you get the idea. Try the CAB and welfare officers, local MP. FIGHT BACK. xxxxxx love and gentle hugs to you :)

luvmybabies profile image
luvmybabies

Mumziepauline feel for you hun. I have just reapplyed for ESA for the 2nd time. Like every1 is sayin plz dont give up there is no way you could start a job!!!! I really wish some jumped up suit would like to swap just 1 day with 1 of us who has to deal with all the pain we go through, and then lets see what they will have to say!!!! When b/days or xmas comes around & my partner will ask what id like for a present, my answer is always the same. Just 1 day without pain would be lovely ~:-( and he gets so upset because he carnt do anything about it!!! With all this tryin to get benefits is so very stressfull & upsettin we dont need it ontop of everything else. Maybe we should send all these blogs to the goverment!!!! x gentle hugs every1 :-) xx

wiccamom profile image
wiccamom

Hi, i am just waiting to re- hear about my claim, i had dla for the last few yrs but my claim runs out at the end of this month. I am heavily depending on a yes as i need a mobility scooter to get out of my house and they they take payments direct from dla!

I got refused the first time i applied but instead of fighting it alone i went directly to welfare rights and after the lady helped me fill it all in again, i got a yes!

Dont give up, it really is worth the fight!!!!

I will certainly be keeping fingers crossed for us all!

xx

lynnybear profile image
lynnybear

my hubby is a welfare rights worker he suggested you go to ur local adult social services and ask to their welfare rights worker or if not go to your local citezens advice bereau lynnybear xxx

dizzyduck profile image
dizzyduck

Thank you Lynnybear. I have an appointment with the CAB. XXX

You may also like...

Another knock back

for a woman of my age ... he then went on to say that my pain was down to my fibromyalgia and he...

DLA...Well you could have knocked me over with a feather!!

although we all have constant pain each day. Good luck to all filling out the DLA form. We all...

Change from dla to pip

don't want to go and they say you are fine on my worst day being in complete pain it's a...

An amusing comment from DLA

dont have much hope. As u all know everything is a fight!!

DLA. HELP FROM FIGHTBACK. MORE INFO D L A etc fight back