Well I think Tuesday last week was when the reality of fibro and ME starting setting in. I've lost the rebellious and fighting bit now....feel quite empty if I'm honest.
I've found these that brought me to tears but think are worth a look.
butyoudontlooksick.com/arti...
know
I did enjoy the peoms but dont forget that we do have good days too
gentle dyslexic hugs
Very moving but try and remain Positive x x x x x
Please don't lose hope...have you been suffering for a while? I find that with time, you learn so much about what causes your flareups and what helps you to "close the pain gateway" and you can try your best to help ease the pain eg heatpacks, massage whatever works for you. It gets better with time I promise. Build a good support network of friends - they're less judgemental than family - call people who make you fell good - try to go out for a few minutes if your pain allows you to. Hope the suggestions help. I find that looking out of my window and listening to the birds sing every day in the spring and summer and just breathing slowly helps me to relax and helps my pain a little too. Hope those suggestions help ....
it is verytough to accpet, I have my bad days when the black cloud descends, I was talking to someone from Dr Barnardos and she said Im entitled to have bad days were things look bleak, so Ive decided to accept them, its impossible for us all to stay happy all the time
I think I'm just grieving for the person I was before. I'm very good at blocking things and pushing through but I don't think even I can push through fibro/CFS. Things have changed so much in just 7 months, I don't even remember much of who I was before but I know that this has thrown a spanner in the works for me. I am having to re-learn things I've done forever and can't work as a teaching assistant anymore. So everything is different, we've moved so I don't have to do stairs, I seem to have crutches constantly attached to my arms, and rely on pain meds to get me through the day with the constant feeling of 'roll on bedtime' I should be having the time of my life, I'm 28 not 88.
Sorry guys 
bad day xxx
Hi i understand every thing you have put. I found out i had fibro last year. Its not easy to live with. But we are all in the same boat on here, and what a caring bunch we are. So your not alone hunni.
You will get back to feeling happy, it takes time to understand this cond.
Take time to pace your self. And remember we are all here for you.
Big hug & love to you. Helen xxx
I have had fibro for 14 years and when I was 1st diagnosed the illness was not really recognised at all and everyone kept telling me to pull myself together, nowadays at least on the whole people relalise its real not imaginary, I found it very hard to cope in those early days I was very depressed but have learnt to live with it now, you just have to take each days as it comes and not overdo things on your good days as I do sometimes feel really well go mad do lots of housework and things and then I am wiped out for 2-3 days after so its really learning to live with the illness good luck dont let it get you down you will be ok you will get over the bad days honestly dont give up xxx
OMG that's exactly how it is!! Don't view it as depressing but inspirational Once something is named and expressed it can bring a great deal of relief!!! And as others have said there are "good" days or should we say "better days"
Gentle hugs xxxx
Is anyone involved in the FMA Genetic study
FGF21 the stress hormone in the pancreas is also low in FM sufferers. 
Where Is the Poetry Blog!!!!
7 years ago and in still fighting the good fight 
PAIN OR BRAIN ? THAT IS THE QUESTION.
