Still awake.

[BlueBunny]

But at least now I have the confidence to be adding FM stuff to my facebook page, it almost feels like I'm coming out !!! so many people in my life who think they have all the answers and I'm just lazy or too stupid to know better, I just feel for them, to be blinkered, I'd rather be me and have my problems than to ever not be open minded and trust people know there own emotions and bodies better. I'm not saying this to be mean or bitter, thats not me but this really has held me back and knocked my confidence, I'm sure I'm not the only one and hope others can benifit from knowing their not alone even if others (maybe not intentionally) leave feeling that way.

I hope I dont offend anyone, everyone seems so nice and this website is helping me feel more at ease with myself.

xx

[Hidden]

hi i think we all at first not so much feel embarrased but find it easier to kkep quiet about our fibro and not really tell people exactly what it is like me people used to ay what is that the and i would say this stupid thing that gives you pain etc where i should have told them EXACTLY what it is but it is ans was easier to brush over it and i think that also i was aware of me looking ok you cant see fibro so they prob thoughtor basically got bit of an ache lol

you have not offended me at all these are just your own thoughts

take care love diddle x

[Hidden]

Hi

I am fairly new to the site & fibromyalgia. I was just diagnosed in Feb. I was glad to be able to put a name to what I had.

I'm finding it difficult with regards to people understanding what I have especially family. Think I'm only comming to terms with it myself.

Well done you for comming out and being able to talk about it.

Luv Jacie xx

[Lynfran]

I am new to this site so this is a bit of a long Posting but it is a brief look at my FB. When the Hosp first diagnosed me and gave me a leaflet about FB, I sat on the Station with my 15yrs old Son read about 2 pages and put it in the bin and said I am not having that, he thankfully took it out and just said Mother you have it, No. I put it in a draw and was in denial for a couple of years. Then one day I took it out read it through and thought I am not going mad with all these strange symtoms I have FB. I joined the FB magazine, now Family, and bascially try little by little to keep it undercontrol. I have other problems Arthritis, Diabetes couple of others but I find when the FB flears up it takes over. I make my Husband read certain things in my monthly newsletter from Family and slowly slowly he is getting it. Thats the main thing making people understand I am not making this up and I am now actually saying to people when i forget my next sentance I am sorry I just cant remember what I was going to say I have FB and thats what happens. I found most people actually listen and believe and want to know more. My Sisters and some of the rest of the family now understand, my Sisters actually make me rest when I am with them and ask are you ok to do this, which helps a lot. Pain I find I can deal better with but the not the gnawling pains that runs through my body when trying sleeping and even if I do managed to sleep 2-3 straight hours it never restful sleep, the fatigue is a killer and the memory thing is very frustrating. The best advice I have had is to listen to your body, if it hurts to rest, dont try to carry on. You can get FB to a level which you cope with it, over doing it or getting stressed causes flares up, you cannot avoid all. I am 2 years into another flear up, Hubby had a stroke, but I am getting there and I have learnt if I have a day, week really bad not to panick it only makes it worst. I have had FB for around 20yrs and have good times and bad with FB but I am still standing as they say. Thanks for staying with this ttfn Lynfran xx

[Lynfran]

Hi Chris,

So good to hear what you said.

I think we all go through the same thing and to have someone like you there just to say that FB is real helps a lot.

We all need a little boost, you do question yourself constantly if FB is real.

Many thanks

Lynfran x