constant face ache

[ellemar]

my face aches constantly around my cheekbone,does anyone else have this ?as my doc says fibro doesnt affect face!!

[Hidden]

I read there is Temperomandibular Joint Disorder which affects muscles and joints in the face (which is supposed to be difficult to diagnose if you have fibromyalgia). TMJD.

I have Fibro and problems with my jaw bone, teeth (all of top lot and checked not a dental problem) and sometimes pain at the joint.

Don't think your doc knows what he is talking about.

[ellemar in reply to Hidden]

thank you i will look into that.

[dimfunsize]

WRONG, fibro does effect the face. I have to wear a gum shield I got from my dentist. For months we thought it was my sinuses, I went to my dentist just to check there is no problems with my teeth as the pain was really really getting me down. When the dentist checked and had a look round, teeth perfect, but what I am doing as well as going into muscle spasm at night (when asleep) I also clench my teeth. My dentist said my face is going into spasms which makes me clench my teeth, with having fibro makes it even worse. She made a gum guard for me and week later I had to go back to get it. She showed me how to relax my jaw by yawning then I put the guard on over night. Guess what it works. She recommended to be referred to ENT hospital if it gets worse, but I have no problems now. When I feel my jaw is getting tight I just but my gum guard in for a few hours to relax. Hope this helps, but yes fibro does effect the face.x

[ellemar in reply to dimfunsize]

thank you.

[soulsusie]

Ellemar, I would ask to see another Dr in your practice.

HUgs, Sue x x x x

[ellemar in reply to soulsusie]

yes i agree and i m looking into it i have been struggling with this fm since 2008 and have still not got any proper answers or help from my doc,so glad i have discovered this site and im not the only one and im not going round the twist! x

[Hidden]

I agree with previous comments - Fibro DOES affect the face - I have to wear a shield for my teeth - as the Fibro pain causes me to grind and chip my teeth whilst I'm sleeping as the pain constantly has me tensed up! Try as I do - I get my jaw relaxed before bed - but whilst I slumber, my teeth are in over-grind! And lately, for some reason I'm constantly gagging on the guard and unable to breathe through my nose with it in my mouth - Dentist has no idea why. So I suffer the consequences

- Ahhh well!

Gentle hugs,

Carol x

[dimfunsize in reply to Hidden]

Oh I am so so glad that some one else has a shield as well. Some times I think its only me, and I question myself before I reply to any questions. With regards to yourself what about getting referred to ENT clinic that is what my dentist suggested. xx

[Hidden in reply to dimfunsize]

Hello dimfunsize, gentle hugs,

I finally had a light bulb flash over my head not 5 minutes ago answering lally!

I now know why the shield feels too big and why I cannot breathe properly! When I grind my teeth and pieces chip off, my teeth are left very sharp - so much so that I've bitten CHUNKS off my tongue - which in turn swells up blocking my throat and stopping my breathing! - I am so dense at times - I need chill pills to stop the tension - have asked for them but I never get them - not even a muscle relaxant!

xx

[ellemar in reply to Hidden]

thank you x

[Hidden in reply to ellemar]

Got me wondering now is I need a shield?

[ellemar]

ok great thank you.

[Abbeystead]

Your doctor doesn't know what they're talking about. I have exactly the same thing. As well as Fiobro I have Cervical Spondylitis which also causes me a to have a lot of neck and base of skull pain and this refers around to my face which goes red and also swells. Dont know how many times I've been to doctors so just accept it now. It is awful though and I can empathise with you. Hobbling around today with pain and all this damp weather. Anyone got a gun!!!!

[ellemar in reply to Abbeystead]

very true mr dr is crap! i have had that for years in the back of my skull neck and been hopitalised with horrendous pain down the back of my skull but never had an explanation for it! i cant even walk today save a bullet for me please if you get a gun! lol

[Abbeystead]

Your doctor doesn't know what they're talking about. I have exactly the same thing. As well as Fiobro I have Cervical Spondylitis which also causes me a to have a lot of neck and base of skull pain and this refers around to my face which goes red and also swells. Dont know how many times I've been to doctors so just accept it now. It is awful though and I can empathise with you. Hobbling around today with pain and all this damp weather. Anyone got a gun!!!!

[SHELLSTAR]

I suggest you see another doctor. I get awful facial pain, mostly in and around my mouth and jaw. I also have really bad facial spasms, the first time it happened I thought I was having a stroke. I also get severe pain in my eyes. They feel tired and strained, so I went for an eyetest because I thought I may need glasses. The optician was great, he explained that my eyesight was fine, the pain I was experiencing was due to my Fybromyalgia, as the eye is a muscle. He seemed to be very knowledgable on the subject, unlike a lot of GPs. It never occured to me that my eyes could be affected. Seems it can affect every single muscle of your body.

You should definitely try and find another doctor that has knowledge and experience of Fybromyalgia. Good luck, because they ar hard to come by. I'm lucky as my doctor is great, but I've heard so many horror stories of people that aren't as lucky.

[ellemar in reply to SHELLSTAR]

thank you. again another helpful answer so glad ive discovered this page.