Fed up, Frustrated and Alone! - Fibromyalgia Acti...

Fibromyalgia Action UK

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Fed up, Frustrated and Alone!

poppy-03 profile image
5 Replies

Hi all, I'm new to this site but have been reading everyones blogs and it has helped me through the last few weeks for which I am very Thankfull to you all : D

I have 8 health issues as well as Fibro and over the last 18mths of fighting the Benefit system and trying to find the right congcoction of medication,sitting/ sleeping positions,becomming practically bed-bound and recieving an ever-increasing supply of equipment - for which I am gratefully recieveing - and working through frustration from my family and wonderfull hubby who has been on the receiving end of my mood swings and careing for me while having to undergo 5 operations of his own over the last 3 yrs.

I don't feel so alone with this Fibro now. All the side effects hat make you think you're going insane or doctors shaking their head as though not believing you!

I have to tackle my Doctor - who is actualy very nice and now understands me -

about the swelling of my face and the burning of my ears, throat and face now that I have read of some of you who are experiancing the same I know I dont just have to except this and there may be some more help for this.

The other thing we need now is fora new home to become available that I can then have an electric wheelchair in or outside so when I am feeling a bit better to take advantage and get outside because right now hubby cant push me in my manual wheelchair.

So Thank you EVERYONE! poppy xx

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poppy-03 profile image
poppy-03
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5 Replies

hi and a warm welcome to you i know it is lovely on here isnt it thart we can all get so much help and advice. everyone is so kind ans when ever you are on here there is normally a answer to your dilemma within mins anyway glad it has made you feel up beat and hope you come on a gain to chat love to you diddle x

poppy-03 profile image
poppy-03

Thank you Lynn and diddle xx

jazher profile image
jazher

HI poppy,

Its lovely to meet you. :)

I hope you get as much out of this site as i do, i love it. There are loads of lovely people.

hugs, kel xxxxx

Ang01 profile image
Ang01

Hi Poppy, just read your blog and wanted to say Hi and welcome. I'm sure you will find this sight helpful and inspirational, you will also see that you are not alone either in your illness or the way you feel about it. Lets hope you will soon be settled into your new home which sounds like it will be much easier for both your husband and yourself. Take care, Love Angela xx

poppy-03 profile image
poppy-03

thx Ang xx

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