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And where now? ESA.

fibrosam profile image
9 Replies

So I've been placed into wrag for ESA. Which expired yesterday. Long story short? I'm screwed. No money incoming - feel like death an have a drs apt in 15 mins To try to see if they hav found a new miracle. Where do I go now? What have I got left to do? I'm appealing but no doubt that is going to take months. I'm going to be starting chemotherapy soon and I just can't cope anymore. I really can't. That's it! I quit!!!!

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fibrosam
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9 Replies
rosehip profile image
rosehip

hi why did your money stop yesterday thought you got esa for a year x

hi i am sorry about your money but you must appeal can you go to citezens advice or dial if you have one in your area put it in google and it will come up if you have , please talk to your doctor about all of this and how it is affecting you

the other thing is you could get the macmillan nurses on board a lady round the corner from me lost her husband last year to a very aggressive cancer but dont want to focus on that all i am saying is she and he were in touch with macmillan when he was alive and they helped her and him with lots of benefits etc so may be worht calling them as you are suffering at the min and having chemo soon jus again go on the net and get the one for your area and call them and jus see i they can help you through worth a go love to you diddle x

lollypop profile image
lollypop

you can go to jobcentre&ask for hardship grant,so my hubby just informed me.if thats a small help fibrosam.its not fair when anyone is suffering so much to have to fight for money just to live.hugs &xxx

annemcc profile image
annemcc

Dont give up Fibrosam that is what they want everyone to do, keep appealing, keep on at them. love anne. xxx

fibrosam profile image
fibrosam

Hey guys. Thank you for your support. Doctor has put me on much higher dose of codeine and diazepam to help me through this latest drama. I know I have to keep fighting.. But I dunno. Most of the time I feel I'm hitting my head against a brick wall. A lot of the time I feel no one in my family understand, my boyfriend got angry at me for getting upset as he said "you knew it would be another fight when the result was through" which is true... But it doesn't stop you wondering if maybe you are just a weak feeble excuse for a person who needs to get a grip..

I've been on ESA a year, it just took them all this time to actually get around to doing my work capability assesment. I rang DWP earlier and they said they are "not allowed to comment" which seems to say to me they know it's unjust, as it clearly states in the medical report that I will not be fit for work for the next 12 months, but due to the governments stupid new rule.. I guess I'm screwed.

I'm going to be doing my appeal soon but with the help of CAB, so fingers crossed eh? It just annoys me that there are such discrepancies in the report. My boyfriend was there and both of us clearly remember the conversation about my impending chemo - something which the woman stated there is no evidence I would be having. She also states that I sat in the chair happily for 45 minutes.the interview only lasted 40 minutes total, I had to stand part way though due to pain, and there was obviously the physical examination which would have taken time... It just shows it is full of lies. I regularly black out, again I told her about this, and she has stated I have no problems staying conscious during the day. She also has put in that I had no issues during physical exam bit, when my boyfriend said I was in tears and asked her to stop because I was in too much pain...

WHY DON'T THESE PEOPLE LISTEN?!,?,?,??

Do you guys ever feel like crawling up into a duvet and never coming out? They don't get it. It hard enough fighting against your health, without having to fight the system too..

FibroSam

P.S. *disclaimer* I will be starting chemo for an immune disease not for cancer, so it's not as serious as it sounds. But it is (am I allowed to swear on this forum?) freaking scary!

tillyflopp profile image
tillyflopp

ive just had my little brown letter that my ESA will stop end of April a bit of a shock.its a hell of a lot of money to lose in one-fell sweep every month. just dont know what to do about it.

bumblebee57 profile image
bumblebee57

Hi all. the more I read on this group page, the angrier I get. Ive got Fibro,arthritis,high blood pressure and a few other bits n bobs, and I feel like crap most of the time,which brings on my depression big time.Ive felt like "checking out" coz Ive had enough. Yesterday,I had a vertigo episode,which i HATE.Its left me feeling low,very tired and fuzzy. But theres obviously lots of you who are worse than me and you STILL cant get the help you deserve.Its obvious now from all your blogs that the medical assessments are a joke, but I dont see anyone laughing.Quite the opposite. So many people,me included, are SO worried about what our futures hold. So why isnt anyone taking notice and admitting its all going wrong(the government,I mean).

hi, my medical was also a joke fortunately my friend came with me so was able to witness and she was shocked/amazed when I wasn't awarded any points, I appealed and was given 6 points, then when I got all my paperwork back and read the comments from my medical it was a total joke. I went to tribunal yesterday and again my friend came with me, and after all the questions concerning the medical which they asked my friend how she thought it went... I was then awarded 35 points, but unfortunately put in the wrag group...so hey no money from the end of April.

I think the tribunals are seeing that the medicals for us fibrorites are not satisfactory, so whatever you do make sure you go through to tribunal.

Does anyone know if you are able to appeal to go into the support group and if so how

soft hugs to all xx

Sam, please don't give up. You're not alone. I think we must have been born on the same day or something because I am in exactly the same position. My wrag ESA runs out at the end of the month and I'm being treated for breast cancer. I hope Citizens Advice are able to help you with your appeal. I think this is all due to new changes due to our current government of fascists (oops). My letter says 'by law' they can only give wrag ESA for one year so I don't expect this to change but have asked MacMillan benefits adviser for help again anyway.

Good luck with everything and hope your chemo helps with your immune disease. Wishing you all the best. Christine x

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