Who manages your Fibro?

[catleigh]

Is it your GP or a hospital consultant?

Only just been diagnosed and not too clear yet whether I will be managed by my GP or get a hospital referral.

[sarah-d]

im not really managed by anyone hospital signed me off years ago and i only see doc when family pester me into it when im having really bad spell but thats all the time at the mo

[lonewalker]

I have only recently been diagnosed and my gp manages mine. He gave me my meds and I am to see him in about 2 months time to see how I am managing it.

[joannieT]

Myself. Been told by the hospital there is nothing they can do. Nobody wants to take responsibility for me really

[rosehip]

my doc i see her once a monthx

[Hidden]

Hello there catleigh! I think at the beginning it's quite normal to see your GP and then get a referral to maybe a Rheumatologist at a hospital. That's what happened in my case. Once I had explained to my GP how ill I felt and for how long, I was referred and then had a consultation and full examination to check for tenderpoints etc. I saw my new Consultant about two or three times and now only see her when I need my medication changing or am worried about anything. My GP sees to all my medication, repeat prescriptions, increases or decreases. Fortunately my Fibro is quite well controlled now, but I did go through quite a while trying lots of different medications to get me to the point where I felt my pain was controlled and also my exhaustion too. I had sleep issues as well and this too was addressed.

Joannie, Just out of curiosity who did you see at the hospital, were you referred by your GP. Have you been back to see your GP after the hospital said they couldn't help you. It can be so frustrating can't it, trying to make people see that we are actually ill and not malingerers. I wonder if you were to go back to your GP and explain what happened at the hospital, then perhaps you could have a more specific referral which hopefully would lead to you getting the help and support you need. Please let us know about this then we can try and advise you on what path to take to try to get help for you. Take care

[Hidden]

Hi my gp initially diagnosed me but wanted it confirmed so went to rheumatologisst last july who conirmed it and discharged me there and then as there was nothing else he could do for me so now i just see my gp every now and then to update her and things i see her about every 6 weeks or so love to you diddle x

[catleigh]

Thank you all thats really helpful xx

[Rach1977]

I second Libby, the normal process is GP referring you to specialist, usually rheumatology and then your GP manages you from there. If your GP is unsure about anything they many refer you back to a specialist.

xx

[Hidden]

My doc is brilliant and she manages mine. She sees me every 4 weeks and checks how I am. She takes bloods every few months and said she will probably refer me to a rheumatologist just to be on the safe side.

[Hidden]

I look after it myself, diagnosed 5 ys now never been asked about it or how it affects me, as i have other medical issues the fm is non existent as far as i am aware in my gp practice, so if i go to gp its normaly to do with spondylosis or OA often wonder if they even know i have it?

[budgiefriend]

Nobody. They want nothing to do with it.