Am I allowed to pass on this sites ad... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Am I allowed to pass on this sites address to my doctor please?

Sarah-Jane profile image
9 Replies

I think my doctor, who is brilliant, would also benefit by being able to see the variety of ailments and worries experienced by FM sufferers. The more medical people know about us the better say I.

What say you? Permission please - or reasons why not.

Soft hugs :)

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Sarah-Jane profile image
Sarah-Jane
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9 Replies

I'm sure that would be ok Sarah-Jane. Anyone who has an interest in fibro and wanted to be supportive to the group would be acceptable if he/she wanted to become a member. However, some posts can be viewed by anyone. You just have to be a member to be able to post. I don't have fibro, but have a daughter who does. One of the reasons I joined was to learn more and to be more understanding of the problems fibro brings which is exactly why you want your GP to know about us. Spread the word!

MrsOtter profile image
MrsOtter

Yeah go ahead I say :) a doctor who is interested in finding out more about Fibro is great, my doctors just try to shrug me off lol.. xx

Sarah-Jane profile image
Sarah-Jane

In that case MrsOtter maybe you should tell your doctor of this site and tell him he needs to educate himself further! I am sure I can have a dig and useless doctors!

Unless I get reasons why I cannot tell my doctor I will do so the next time I see him.

Thank you.

Soft hugs

Butterfly54 profile image
Butterfly54

Hello Sara jane,my doctor has this site,and when i saw her today she told me that herself and another doctor in the surgery who HAS fibro,have had a good look. And have been appaled at some of what they have read

And will be telling patients that it is here.

My own G.P bless her said she now understood why I stick my head round the door and say "sorry it`s me again".

I`m not to do it anymore as she says it is all trial and error till we get things right.

I was also diagnosed with Sjogrens Syndrome at the same time as fibro,back in Jan this year.I contacted the organisation and they kindly sent me info on it.Part of which was a booklet about it to give my G.P.

This I did and she was very graciouse,and appologiesd for the fact I had had to tell her what eye drops I needed.I have now decided to wait and see the rhuemy again before I have anymore medication.

The more Doctors can learn about us as people who, suffer very real pain the better.And I feel that as the old cumudgeons that should have retired years ago,and younger ones come up in the ranks.Then the better the understanding will be.

There have been huge headways made over the years.I have been in pain since a child I`m now 58 and the changes in just the last decade for chronic non specific pain,has been enourmouse.

Love and hugs Butterfly xxxx

Butterfly54 profile image
Butterfly54 in reply toButterfly54

I think that should be enormouse do you know it just doesn`t look right but I cant be botherd to try and open my thesoruse,Even thats wrong I give up and I`m off to bed,

Night night hugs Butterfly xxxx

Sarah-Jane profile image
Sarah-Jane in reply toButterfly54

To be brutally honest Butterfly, although I am a teaching assistant and have a degree in English, your message was refreshing and made me smile.

It is rather annoying when my fingers decide to type something totally different to whatever it is I am trying to say!

Soft hugs Butterfly, hope you slept well!

sheelagh profile image
sheelagh

I am glad you can i was talking to my gp when she rang ME to see how things was i told her about this site and she said to me

It should give you confort to know you are not on your own everyone needs help outside your family so you dont think that your heads is going

She knows my sister Geraldine is my rock and she said to me everyone needs a Geraldine in there lives.i used to hate going to the doctors but she is so lovely and tells me that i have to think of my health before i think of others and to start putting me first she is so lovely. I am so so glad my doctor retired and used to think he was understanding but i have been suffering 27 years under him

We should a right the link and hand it to our GPs they can like it or NOT

Sarah-Jane profile image
Sarah-Jane

Thank you, your response was the one I was most hoping for. I shall make sure my doctor knows all about it but please let me know when this leaflet is ready!

I have got a poster for the surgery already!

ginge profile image
ginge

i see you said that the gp would have been sent a pk about fibro, have all gps had one??????

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