Am I glad I found this website, are you? - Fibromyalgia Acti...

Fibromyalgia Action UK

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Am I glad I found this website, are you?

Sue15197 profile image
13 Replies

I knew only a few people who had fibro, on f/b I did go on a page but they rarely spoke about it, Here we can say how we feel, and no-one feels embarassed talking about lumps, bumps, boobs and doctors, OH what a find! lol

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Sue15197 profile image
Sue15197
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13 Replies

and bowels and anything else lol :)

Sue15197 profile image
Sue15197

Exactly, we are unafraid to get deep and dirty, um that sounded better in my head hahahahaha

lynz profile image
lynz

:) i love it on here cant wait to go on everyday lol soooo pleased that i found it

in reply tolynz

Glad you said that lynz, I thought I was a bit sad! LOL :) xxx

chorley profile image
chorley

Hi, i agree this is a great site, loads of good info and loads of laughs :)

CHORLEY :)

in reply tochorley

*Like* :( Doing my own Like button thingy. :)

diane63 profile image
diane63

i am just new to it at the weekend ( march 2012) and i love it to.. its so nice to have friends who dont judge u when u mention being in pain.. lovvvvvvvvvvveeeeeee iiiiiiiiiiiiiittttttttttttt lol

penny41 profile image
penny41

Yep fully agree yesterday was bad and I could sound off and people who really understand reply ...

Twiglet profile image
Twiglet

Your not sad sue1952 :), its become my life line. Im on everyday even if I dont post its so good to read all your posts. I feel like when Im on here this is the real world cos I dont fit in, in the other anymore.

in reply toTwiglet

Thanks Twiglet, thank goodness for that lol. I'm so glad this group was started, we're all very grateful.

Bless you, that sounds so sad that you don't fit in 'the other world' anymore. I understand what you mean though, we all understand what we're all going through. x

PickledCookie profile image
PickledCookie

I am so glad I found this page. I can chat and ask questions about all the nitty gritty stuff and it's just nice to know that you are all going though the same and I don't feel so alone when sat in all day with no one but the dogs lol

wiccamom profile image
wiccamom

hey i think this site sounds great so far, i struggle with so many issues i feel like i am a whinger!! I am only 37, single parent of 3 and sick to the teeth of my condition! it has affected my bladder, bowels, eyesight, not to mention all my motor skills, how am i supposed to move on as a human being??? i lose control of my legs on a regular basis and am in pain almost 24/7 even with my bupronorphine meds to lessen it, i hate to be a moaner but i feel useless! the worst symptomis my bladder issue, i am constantly wearing "nappies" at such a young age AAAAAAAAAAAGGGGGGGGGHHHHHHHHHH

trojosue profile image
trojosue

hi wiccamom

i have just been diagnosed with this i have thought for sometime that i had it but my dr just said that was wear and tear on my body so i replied that he should have my body for a week and see how he would like to be told its wear and tear needless to say he didnt say that no more i dont know what lies ahead but i certainly wont give in without a fight

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