Not sure if i ever myself when i joined so Hi I'm Karen im 48 and was diagnosed in 2000, although everone agreed i have had it much longer. i first strated having health problems at 4 or 5, but knee problems at 11, had my first operation at 17 but always told dr's i had what i would call "bone joint" type pains and alo " tendon muslcle" type pain, after 7 operations i had my knee caps removed in 1996 which helped bone type pain but not other pain, so when i was diagnosed in 2000, it made sense and was initially a relief that i wasnt going crazy. I have had to put up with consultants saying there is no such thing as fibro its depression, and that the dosage of anti depressant i was on at that time, was useless and i may as well be taking smarties, thing was at the time i hadnt felt depressed and was actually on Prozac to help with my bulimia. Fast forward cos dont want to bore you with everything, but had shoulder problems suffered for 6 years knowing it wasnt fibro pain, but really wanting to make sure it wasnt before i mentioned to dr, was referred to consultant and after minor trreatment in December 2011 i had parts of my collar bone nubbled away to stop some arthritus and to allow a bigger space between the collar bone and arm bone because i had bursitus and the bones were pressing on the bursa and making it inflammed. The pain that i had prior to op went pretty quickly, but i had got this terrible bone pain 10 times worse than original pain that i have had at same intensity every day since. On Friday i went to see surgeon, saw one of his residents who was very nice, said i have a couple of ideas what we can do let me check with Mr Ahmed i could hear consultant mention Fibro and other dr came back and said you can either have pain killing injections under anaesetic or hope it improves, i politely said well after nearly 5 months of constant agonising pain i dont think it is suddenly gonna get better, so said i would have injection, he went out again, next thing nurse came in saying your having injection now, i said ok bit shocked as was on my own, but as i have hand controlled car and can't drive at minute i was on bus anyways so was ok. next thing my consultant came in saying this is why we dont operate on Fibro patients they never get any relief, i said but i have explained the original pain has gone, this is a total different pain which i have never experienced before, and are you then saying that fibro patients should never be operated on no matter what condition they have because your view is that they won't get pain relief, he just kept saying this is why we dont operate, pushed a few places on my shoulder i told him the 3 places where pain was worse, he pushed back of my shoulder said oh pain is from insision site stuck neeedle in said im discahraging you and pain clinic can deal with you and was gone, I was angry and upset, i know i should be used to this type of treatment, but why should we have to suffer what i class as 2nd class treatment cos some dr's have a set idea about us and our condition, The younger dr came back in and said sorry, i said i wish Mr Ahmed could suffer the pain i do just for a few days, maybe he would have a different view on the subject.
Anyways rant over i have been reading posts and replys for a while i hope to get more involved now