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waste of time

eirwen profile image
17 Replies

finally got 2 see a rhumatoligist, he examined me told me it seems you got fm, i dont want 2 see you again go back 2 your gp & ask for amtripiline.. where do i go from here???????

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eirwen profile image
eirwen
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17 Replies

Well, you've had a diagnosis then Eirwen, I suppose it's back to your doctor to have a chat with him about which meds he will put you on.

I'm sorry, I've just woken up from a sleep on the settee and I'm not with it yet.

I didn't get any meds from the rheumatologist when I saw her, I'm not sure if they give scrips so you need to go and chat to your GP again.

Sue x

crissy profile image
crissy

Just watch amitriptyline it makes u put weight on! Best of luck eith the g.p

I think Gabapentin has put weight on for me too.

Could be the chocolate biscuits but I like to blame the meds. :)

trisha64 profile image
trisha64 in reply to

i have a thing for boost bars im not a great chocolate lover as a rule but i sat and cried ,, really did cry coz i didnt have any ,,, im on gabapentin but got underactive thyroid so now im fatter with hot flushes , freezing cold and inhaling choclate ,, they shoot horses for less than us lot have lol x

in reply totrisha64

Same here Trisha. Underactive thyroid and getting fatter and hot flushes sometimes. I am a great chocolate lover!! :) And biscuit lover, and cake........ xx

lollypop profile image
lollypop in reply to

sue&trisha laughed at your comments,i too have underactive thyroid,hotflushes,on gabbenpentin&amitriptyn,so iv no chance of being a size 12 ever again(10yrsago i was 9stone)now must be aprox 13!oh well im not going to worry too much &carry on having abar of choc on saturdaynites!

in reply tolollypop

Only on Saturday nights?! Aren't you good lol.

Sue xx :)

squidley profile image
squidley

I have only just renewed my blue badge form but I had only to fill in some of the form as it was a renewal and I didn't need to contact my gp or consultant. Good luck squidley xo

eirwen profile image
eirwen

thanks all xx

Ang01 profile image
Ang01

If GP doesn't give you much information there is plenty on this site for you to browse through. You can also put fibromyalgia into Google and you will find lots more info. My GP hasn't prescribed amytriptilyne, it seems that there are lots of different meds people are on when you read all their blogs and sometimes it is trial and error as what suits one doesn't suit another.

Anyway Eirwen, all the best and it lovely chatting to you. Take care xx

trisha64 profile image
trisha64

to be honest i find the gp care far better than the hospital ,, the gp sees us far more and is able to alter the meds as and when they need to instead of waiting for the hospital ,, x

well the balls in your court, if I had the info and benefit of this forum 4 + years ago when i was diagnosed i may have found out how to cope how to live with it and what to do when things get too much, so i had the same yup score 18/18 you have fm and your discharged as there is nothing we can do, i left cluching the how to live with fm and cam home.

#hubby said well what was it then and even me with a medical background said no idea what it is, and from that day no one including my gp practice has ever mentioned it, so like many i live with it and learn from it and get the support you know is genuine here from the people who have it and live it so althought some get support from gps some dont but here everyone will support you i am very new to this forum but have already found some valuble items to help.

so come aboard and join us in helping each other

x

well that is me to a tee that is exactly what happened to mw word for word lol are you me ??? ha ha well that it where do you go i am afraid on here and get the support of your gp llve to you diddle x

MissKittycat profile image
MissKittycat

Hey sweetheart, from the people I have spoken to, and also to the consultants at the pain clinic, its normal not to get prescriptions from them, they usually send a letter of recomendation to your doctor to suggest what tablets to put you on. I have just got mine from my consultant at the pain clinic, saw my GP on friday and have now started my new meds.

I would make an appointment to see your GP and also ask him/her to refer you to the pain clinic, it can be helpful. There are all sorts of things you can do, and if I can help in any way to send you links to things that affect your personal situation, I'm happy to do that. Please let me know.

Hope you have a peaceful Sunday!

Gentle hugs, Tracy

willowgirl profile image
willowgirl

hi there, i was the same rheumy said you got fibro, gave me a leaflet on it an said see gp. was on tramadol and sertraline among others but he had letter from rheumy suggesting which meds might help. started me on 10 amitryptyline, which didnt do anything, went back he upped them to 20mg amytriptyline,must say am now sleeping a whole lot better, pain still there but sleeping, hope this helps xxxx

Mattjam profile image
Mattjam

Hi my experience exactly the same think its pretty standard the consultant says you have it then you go to doc for best way forward for you, in my experience they started me on amitriptyline but that didnt work, i have had various tabs but now on 175mg of pregablin in morning, 275mg at night and 6 strong co-codamol throughout the day, pain not gone but certainly helps a little unfortunately this much tablets is causing other problems in my life but hey ho its about finding a balance and after 17years im still trying to find one. I wish you all the luck in the world and i hope your doc is better than mine :) love and prayers are with you xxx

eirwen profile image
eirwen

the tpo & bottom of it ive been signed off incapacity benefit and im waiting for an appeal,, if the consultant didnt take me seriously what hope have i got for my appeal.. i have no idea what to do next or what to expect in the appeal..

i have always worked sometimes 3 jobs at a time, i would love 2 go back to work ,, meeting & talking to people,, im just a hermit stuck in the house...

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