Hi all i have had fm for about 3 yrs... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi all i have had fm for about 3 yrs my meds dont really help with pain so i am going to see a rheumatologist,

bruiser profile image
9 Replies

and i hate hospitals so can anyone tell what to expect? thank you

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bruiser
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9 Replies

hi dont worry i went lsrt july to see rheumatologist i was really nervous jus not knowing what to expect and jus t the expectation of it all . any way they called me in on time great start went in lovely doctor jus had 5 min chat about me how it started the symptons ( i wrote out a list of all my symptons and whenit started etc ) it was a godsend as you get in there and forget half of them anyway had a chat then he pressed my pressure points (ouch 0 got me to sit on bed and he done my reflexes he then printed out a letter and said yes you have fibromyalgia give this letter to the receptionist outside and here is a pamphlet on fibro thankyou and that was it all done and dusted in 20 mins max the letter said discharged on it so it was hi /yes you got it/bye have a nice life !!!! so dont get too worked up there is nothing sinister at all but i felt reallt let down and deflated ihad been so looking forward to this appt thought i was gonna be in there a good forty odd mins and it would be more in depth but no never mind your experience could be completely different to mine but that is my story good luck and write it all down it will be so helpful to you and then love diddle x

Mattjam profile image
Mattjam

My experience was exactly the same xx

Butterfly54 profile image
Butterfly54

I had the same hun,few quick squeezes in all the right places,then he told his little machine I had fibro.Then he gave me a history lesson about it.

I told him I had been diagnosed with fibrositis at 16,I`m now 58.Was told that was the old fashioned name for it.Given a pamphlet a handshake and off you go.

The rest was sorted out with the g.p.

Good luck Hun Hugs butterfly xxxx

bruiser profile image
bruiser

wow thank u all so much not quite sure what to expect but now it doesnt seem quite so sinister, il let u know how i get on thanks again xx take care all

funny mine was the same it was walk , in talk some answer q and then said to have a bone scan and come back , so following week had the scan went to my appointment and was in and out of his office clutching the living with fibro leaflet within 10 mins( the scan was because I had recently had a mastectomy for cancer so checking incase it was that) thankfully it wasnt, and from that day I have just got on with it and the letter i got a copy said this lady scored 18/18 pressure points

and has been given a leaflet and the name of the support group, am ashamed to say i went to 1 support group and ran out of there as did not accept what was happening to some of the people there, and now 4 years on i know why they looked and felt like they did so this is why I like the forums its easier than face to face, well for me it is

nuttytartuk2003 profile image
nuttytartuk2003

I went in she asked me a few question, gave me a quick examination said I have fibro and m.e then told me the only treatment she can offer me was a psychologist then discharged me back to my GP, she gave me no leaflet, I'd never heard of fibromyalgia so I went straight home looked on the Internet and that's the first time I knew about the illness. Since then I've studied everything I can possibly know about fibro and m.e and probly know more than the doctor that diagnosed me.

There's nothing to be worried about, it's more disappointing than anything because you think your going to see somebody that can help you but most rheumys know nothing about the treatment of it, although this is changing and you may have a rheumatologist that does know something about it and can help you, some do, some don't.

Irene x

Artyrosie profile image
Artyrosie

Same here - but you can't imagine the RELIEF I felt having a proper diagnosis. At least I knew what I was up against! It is hard to be immediately discharged because they can't help, but I suppose its only fair that they give their time to people they can treat.

bruiser profile image
bruiser

Thank u all so much for this, i think the worse thing is not knowing and having a fear of hospitals dont help, but D Day tomorrow, i was under the impression they might tell me what other medication to take as i really need some sleep il keep you all informed and thanks again x

bruiser profile image
bruiser

Hi all well i went to see the rheumatologist, ok it wasnt as bad as i expected but im sure that is all down to your kind words, he agreed with my gp it being fibromyalgia and he also told me i have osteoarthritis in my hands at the moment, in the last 8 months i have lost 4.5 stones on some tablets from my gp but you cant get these at the moment so im dreading putting it back on, so he said i could be referred to th hospital who run a dietician group, and will also try and get me into a hydrotherapy session so all in all not bad, but he did say i should try another drug but (lol) i cant remember what he said it was called, so will have to wait to hear from my doctor. all i can say is thank you all once again for your time and encouragement. but i still hate hospitals x

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