Sick of feeling this way.: Hi all, I am... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sick of feeling this way.

20 Replies

Hi all, I am a new member of this site and also the thyroid site. I am 48(nearly 49) married with kids.

I was diagnosed with an under active thyroid some years ago and my meds are still not at the right dose, each year can be different, anyway I digress, I have had physical pains for many years as I have always had a physical job but back in 2007 I had a minor head on collision(I was stopped and somebody decided they didn't like my car) lol, anyway after that I started getting pains in my right side of my ribs and thought I had a pulled muscle and being a typical man tried to ignore it, well time went on the pain got worse, got nagged from the wife to see the GP, went for various test, got prodded and poked, the outcome is that I have Osteoarthritis of the thoracic spine, arthritis of the lower spine, scoliosis, and because of the pain I am in continually was diagnosed with Fibromyalgia.

It is really nice to find others with the same conditions, I also suffer with depression, fibro fog, painful knees, weight gain, god just shoot me now, what is there to be happy about, I rattle when I walk (with the meds I am on) which is not very far or for very long, every day seems worse than the last, forgetting things, not being able to do the things I used to do etc, these conditions really do knock ya for six. Some days I think what the hell, why me, what have I done to deserve this, probably what everyone else on here thinks as well. God don't I moan...lol.

I am sorry for boring you all with this blog, never written a blog before, just got carried away...

Steve

xx

20 Replies
gypsycrafter profile image
gypsycrafter

hi steve, nice to hear from you. i too have under active thyroid, osteo arthritis if hips, knees and other bits, spondilosis, fibro and a heart condition. most of us have multiples on here. the natives are friendly and supportive and we have a moan and a laugh. have a good night . will talk again sometime?

xx

in reply to gypsycrafter

Thank you..

xx

Rubberman profile image
Rubberman

Hi Steve also got underactive thyroid plus back problems

I know just how you feel every thing a grind to anything

done , been realy struggling today.

thought I would say Hi

Bobby

in reply to Rubberman

Thanks Bobby..

hi and welcome to the site i am glad that you have found it and am sure yu will get so much from it you really will for one you can rant off it doesnt matter you can laugh cry scream it all goes and i think you will find so much support on her love to you diddle x

Hi Steve and welcome to this great forum :) You can have a good moan on here and a laugh too as Diddle said.

I've got an underactive thyroid and IBS and RLS and osteoarthritis and of course the dreaded fibro too. I'm 'lucky' in that I'm not as bad as most on here, I'm still working but it's getting harder and harder (I'm 60 this year) so I have to carry on as I'd never get DLA or ESA.

Sue :)

jazher profile image
jazher

NIce to meet you steve,

You carry away, I too have underactive thyroid and fibro plus many other things.

Also problems with weight gain. :(

I went on the thyroid site, but everyone was too technical for me lol. I am useles on taking in info when they are talking about blood levels etc.. ia m thick lol.

Theres a few men on here,

Quite a few people have fibro due to a car crash too.

hugs, kel xxx

gypsycrafter profile image
gypsycrafter in reply to jazher

u not thick at all kel = dont put ur self down lol

Hi Lynn, thank you for your reply. well the meds I am on for my Fibro are Pregablin, Amytriptyline, Ibuprofen, Co-codamol, I am also being treated for IBS so taking buscopan for that, while typing this I got my results back for a Vit D blood test and have found I am deficiency in Vit D so going to pick up a prescription for that, I am also on Citalopram for my depression, I am taking 150mcg of levothyroxin for my under-active thyroid so as I said I rattle...lol.

I am no longer doing my job or any job of any kind at present, I had to give up my business last year as no longer able to do it.

I do not have a flare plan, I have read about this from other members and don't really understand what it is, no body has even mentioned it to me, I went through a pain clinic to get my Fibro diagnosis but they discharged me when the diagnosis was made and they had put a name to my condition. Nobody has mentioned a pain management clinic to me. I live in Cirencester in the southwest of england. My wife has suggested that we start going swimming which may help. I get the high rate DLA with low rate care but my condition is getting a lot worse and I have more bad days than good days of late but I don't show it to my family as they would only worry more.

I hope this answers your queries Lynn and gives you a better picture.

Once again thank you for your reply.

MissKittycat profile image
MissKittycat in reply to

Hi Steve and welcome! I'm on all your meds apart from Pregabiln, but will be starting that soon. And I have the same problems as you so understand how you feel, and about the rattling!!!!

I'm just about to start swimming, the chap at the pain clinic says its very good for fibro peeps, as it takes a lot of the strain away from excsersising (excuse spelling a bit foggy this morning) and helps the muscular pain. Hope it helps. Something worth checking out - you might actually be able to be referred by your GP for swimming because you're on a low income, I'm doing this in Oxford, and it will help as I'm not getting any money at all even though I won my tribunal... have a word the next time you go. And re the thyroid tests, you should be having three monthly not yearly - I'm a bit worried about that! Again, speak to your GP.

glospain.nhs.uk/01HomePage/...

The above link is to the pain management clinic near you - hope you don't mind me posting a link!

Gentle hugs xx

jazher profile image
jazher

Ha thanks you two lol.

kel xxx

in reply to jazher

Naughty Kel! You are NOT thick! xxx

rubywhiplash profile image
rubywhiplash in reply to

I agree you have an invaluable amount of support for peeps on here and I think you are great so don't put yourself down. xx

jazher profile image
jazher in reply to rubywhiplash

Aww thanx ruby. :)

jazher profile image
jazher in reply to

Haha sue, i do have days when thick fibro fog comes over me lol. xxxx

MissKittycat profile image
MissKittycat in reply to jazher

I'm feeling thick today!!! You are great with support Kel xxx

jazher profile image
jazher in reply to MissKittycat

Thankyou miss kittycat :) xxx

rubywhiplash profile image
rubywhiplash

Hi Steve

A warm welcome to this great group you really will find so much help and advice, the pain management plan is based on the 3 P'S Pacing Planning and prioritising I went to the RUH in Bath and had Hydro as part of the course was brilliant would love that a few times a week, if you go swimming you should make sure the pool is warm as in general peeps with fibro don't tolerate the cold I love a steam room so I can sit or lie on the warmth of the marble or tiles fantastic feeling! I was advised against swimming due to my severe whiplash and it does really hurt on the very rare occasion I try!

I also had to give up my own business as wasn't able to function, re your family you should tell them that you are getting worse as they can help you, you can assure them that although you are getting worse and I am sure they know! that it isn't terminal just something we have to accept that is the hard part, I also have an underactive thyroid on 200mgs thyroxine take Pregabalin on 100mgs am ,pm but need to up it but worried about weight gain as even my G.P agreed that they do also take Zapain cheap co-codamol and blood pressure tablets in an IBS flare today also suffer with loads of other stuff seems the norm with fibro so you are not alone keep popping in and blogging and you will see!!

Anyway take care Hugs Ruby xx

in reply to rubywhiplash

Hi Ruby

Thanks for your message, up until last week I was on 175mcgs of thyroxine but now on 150mcg, I also take 300mg pregablin twice a day, yes I take Zapian co-codamol 500/30mg plus all the rest, I have my own chemist in my house...lol as my wife suffers with her own ailments which is one of the reasons that I don't let them know how bad I really am. I am seeing professional help for my depression but that is not regular which when you are seeing somebody over depression seems strange to me :-(( I can hide my emotions quite easily and I do have a high pain threshold but as you know yourself things can get really bad at a moments notice and when your look ok it makes you think that people think you are making it up when you say that you are in pain.

Oh here I go again moaning, I am worse than an old lady at times...lol

Take care Ruby and thanks

xx

rubywhiplash profile image
rubywhiplash

Hi Steve

You are welcome I suffer from stress big time hence my IBS flare all due to my O/T visits and the fact I have to have all these stupid aids to help me, that coupled with the fact we are looking into going into a bungalow now where would all my stuff go and am I really ready for it not really it's like admitting defeat (am 51 OK 52 this year!) but feel 90 some days so was awake all night getting really wound up over it, think I will just fill in the housing forms and see what happens I can't see us leaving as my husband will have nowhere to store all his stuff. And I know all about depression hun just climbed out of a big black dark hole myself I actually. admitted to my Dr that I say I am not depressed but that this was a real bad patch he did offer me Antidepressants but said no as getting there slowly and have been on Ami for years after coming off it don't want to go back really.

I know you are seeing a counsellor but have you been on a site called "Living life to the full" also mood Juice and mood gym just a thought, might be worth a look.

So sorry that your wife has her problems too does make doubly hard for you I can see as trying to be strong, but as they say a problem shared is a problem halved! But only you can gauge the situation and hey you have us here to have that good old moan too and don't forget you are ill and in pain so we are in the same boat so go ahead and get it off your chest if you can vent some of your frustration here I think it will help especially seeing how so many of us are suffering some worse than others yes but really think the support will do you good.

OK sermon over I am off to bed see if I manage any sleep ha-ha I can hear fibro already chuckling at me! pass me the sledgehammer!!

Take care Hugs to you and your wife Ruby xx

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