My lovely Occupational Health Visitor left, and left me with someone who barely touches you when she shakes hands. I didn't like her very much at the beginning of the meeting and like her less now. My doctor told me this week that I have Fibromyalgia but because she doesn't have it in writing from someone who specialises in FM she doesn't believe me. She wouldn't listen to what was wrong with me, warned me that I may lose my job as they have done everything they can blah blah blah cut my hours, see my doctor and get him to begin the tests from the start...blah blah blah. Great. I have spent months trying to get to work and do my best. My mother and my doctor think I should not be working at all. I have been through the wringer and all of the tests last year and because they were inconclusive as to whats wrong they have to begin again. What hurt me the most was the revelation that a so called friend at work had passed on information about me to my manager and she had a copy on file! It was something I had written when I was feeling misunderstood at work and had become rather depressed. It didn't last and things picked up - until I began having problems with my back.
My FM seems to be moving up and down my right hand side, which includes my back and makes it too weak for simple tasks so I keep straining it and then taking time off to recover. I have taken a lot of time off. I have had to. I am not a malingerer and I do not want to go on benefits or anything like that, but my body is letting me down bit by bit, and for a so called friend to do so too - well it made me cry.
I want to talk to my Union, but what do I say? What do I ask for?
I contacted my Rheumatologist's secretary who said 'oh yes, he did say he wanted to see you and should have sent you an appointment' This was in last October!
What do I do? I have been advised 'don't reduce your hours because when you do leave, the disability pension is less' - but the OH doesn't believe I have FM so I am not disabled, but I cannot walk far, sleep at night, cope with the pain, trust my hands, stand for more than a couple of minutes, remember things, learn new things! If I lose my job, who will employ me? I won't get benefits because if I am not disabled the DLA will take my mobility scooter away! I will be stuck in my home with no way other than being taken of going anywhere.
What do I do now ;( ?