extreme fatigue

[Martina777]

please tell me if you are struggle with fatigue every day, I wake up tired and stiffed. For most of the day I’m so knackered it feels like my body is shutting down. I have tried all possible supplements for that nothing works, caffeine, anything really but not effects. My bloods are fine no significant changes anywhere, I suffer with high blood pressure as well as FM but I take tablets for this and I didn’t feel like that at the beginning of my diagnosis which was last year I can’t even push myself do gentle workout as I’m that tired, sometimes every day can be a challenge in itself!my legs are getting so stiffed that I struggle to walk often Please advice if there is anything else I can try

[Golfer15]

Hi Martina77, you aren't alone feeling like this. I suffer from fatigue really badly. Just pace yourself. Do a short activity then rest. Fatigue is worse than pain for me. I feel like I am walking through treacle all day. Take care. David

[Princessfoo in reply to Golfer15]

I have been feeling exactly the same and my description was like walking in treacle too.

I have been trying to describe the pain in my feet . They are so painful , and i didnt realise the other feeling was stiff 🤦🏼‍♀️.

I am reducing my output to working only right now. I have had to stop everything else.

I havent showered or washed my hair in a few weeks. I have had a small wash every day. Which is disgusting in my head but i just dont have anything in the tank.

[Martina777 in reply to Princessfoo]

I’m sorry that you are going through this too, it can be really challenging. Yesterday I had a warm bath and this recharged me for a bit I love warmth! Especially since fibro i always wear layers and my feet needs to be warm non stop otherwise I get purpleish lips! Is so bizarre how life changes with this as**hole illness. I have been grieving it a lot since had a sympotoms and then diagnosis I used to was different person, now I like spending time at home 90% of the time with my furry babies that keeps me sane, I have even stopped driving now as the fatigue hits me so saddenly that I wouldn’t want to be behind the wheel when that happens. Sending you my love 🙏🏻

[Littlefighter82 in reply to Golfer15]

This is really interesting to hear. I find fatigue is my main issue too.

[Princessfoo]

rest and try not to stress ❤️

[smiile]

I would try going back to your GP if you are so exhausted and it’s got a lot worse. Not having the energy to shower is affecting your basic needs. I have to dig deep sometimes to get in the shower and wash my hair but once in the warmth I feel the benefit, take care x

[Fibrooh]

I too have really bad fatigue. I don’t think people we talk to about our symptoms appreciate the difference between tiredness and utter fatigue.

[ManDown-UfffFibro in reply to Fibrooh]

100%, but then they don’t live in a parallel world to us when they don’t have the disease. It honestly feels like it’s playing with you and messing your mind up. It’s almost like a game! Just for a minimal time on an occasional week you may feel okay this may be a better day, then it slams you all over and your off your feet again in a real mess. It’s so damn hard this journey, it’s the most awful disease as it’s kinda eating you up bit by bit…. You take care

[Martina777 in reply to Fibrooh]

Yes Exactly that! I can’t go out for drink or meal after 6pm literally is too late for me! As I know I would be exhausted by 7pm and want me pyjama and bed! I used to loved going out and had a social life massivly now is me and my dogs! Husband is working most of the time so we spend weekend together. Martyna that was funny and positive 4-5 years ago is gone, and I can’t stop grieving that

[Wobblygirl]

I hv bn in extreme agony with recent bouts of costochodritis as part of my fibromyalgia; it's a real flare up for me these past 4wks! I rested by the fire with wheat bag in order to truly rest over Christmas. I did nothing apart from helping prepare our evening meal...Heat was most helpful but required Naproxen too! Last week I returned home to a more normal routine with 2 days of social interaction and now I just can't stop sleeping!!! It feels like narcolepsy...

My pain is more intense lying down so night time is agony but I do sleep solidly once I fall asleep.

End of last year I had long bouts of insomnia, so this is v different!

Does this constant falling asleep so soundly ring any bells with anyone else coping with pain???

Thank you Martina 777 for allowing me to raise this additional issue...

I do hope you are coping with this hideous condition? I feel every breath I take is agony! It just never ends???

Any normal housework activity has had 2b postponed until I can cope to breathe without the pain, so the place is a pigsty but there's nothing I can do to hasten that end! I rarely get dressed because of the pain and cannot twist enough to put my underwear on!! It's a vicious cycle and one I'm desperate to get off...

Regards to anyone else suffering in this way...

[Martina777 in reply to Wobblygirl]

I do have issues with sleeping too, I mean is a strange one as I fall asleep easily but I can’t stay asleep at night, so I wake up often need to use toilet for wee, multiple times a night is so annoying! Even though I don’t drink anything from the evening until I go to bed I still wake up at least 5 times for a toilet. Pain is once worse once better, but most days is worse especially my hands, legs and lower back, that’s my worst parts affected. I do trip a lot or just walk on walls sometimes, I feel how you feel just know that you aren’t alone, is so hard to deal with this daily when not many understand! Only the ones that going through the same thing. Sending you my love

[Wobblygirl in reply to Martina777]

Bless you...It's so good to share, isn't it?

We are not alone but coping with the aloneness of our unique symptoms is really hard isn't it?

I think accepting the limitations of fibromyalgia makes you prioritise exactly how you want to use your time and feel that you're not judged...

It's a steady climb but aftr 20yrs I think I am at peace with the acceptance of it all!!!

It definitely leads to less sociability and learning to accept the quieter aspects of living that include solitary space...

I've lost a lot of friends+acquaintances and that really hurts, a lot!!!

My partner is very kind and gives me a lot of space to just be... However, he can't understand that some of the symptoms nvr improve and that I'm facing an incurable condition. I think it's pretty hard on those people who watch us suffer...

Thinking of you as we bear this awful condition, together...

I do hope you find some respite in the near future...

Wx

BTW the night time dash for the toilet is heartbreaking!??! I seem to hv become totally incontinent at night now...

So very distressing that those muscles have collapsed completely, despite months of bladder physiotherapy!

[Losing_sleep_xoxo in reply to Wobblygirl]

I am exactly the same I am always in pain it never stops and I am always so exhausted I fall asleep all the time I never feel rested or like ive slept I have slowly over the years got worse and worse with many health problems and now I can't even get out of bed, I am 44 years old and I can't even walk, sending you love and hugs from someone who truly understands exactly what you are saying x

[ManDown-UfffFibro]

I really feel for you Martina. I just hope you have a close knit circle to cushion you that you trust. I cut a lot of social things from my life over the last year in particular. It helped me tremendously to find some sense of balance with the world whilst fighting my daily struggle with this lovely disease

[Martina777 in reply to ManDown-UfffFibro]

Gladly I have a husband that is learning how to cope with my pain and the way how I am in general this days, it wasn’t easy at first as we both didn’t understand what is going on with me but now at least we can both learn how to cope he with me, and me with every day struggles. Although I haven’t accepted yet that is my life now, not too long ago I was such a different person and now I only find a bit of peace in my home with my furry babies, I don’t really have a social life massively, but im ok with this I like my solitude. I get tired so easily and so suddenly so going out especially in the evening is a no no for me anymore, I just hope this won’t progress any worse as I don’t know what will happen then. Sending you my love