Hi, been awhile let’s catch up!

[Dash01]

Hi All

Been a while, I tend to do this go quiet and come back again when I’m feeling isolated and alone.

Anyone ever just think like it would be nice to just shut down for a day like a recharge?

I’m think of going back to my doctors, I’m on Naproxen (which is meant to be for swelling) but I don’t see the benefits of it, so I don’t see the point in taking a tablet that could cause stomach ulcers down the line especially with me being only 26! - but then I’m like is the doctor going to think I’m making it up anyone get like this before going to see their GP just feel like they aren’t educated enough.

I don’t remember a day where I wasn’t swollen and nobody seems to have any answers, I started to go to physio however they said they aren’t specialist trained so there isn’t much they can advise on, other than do exercise and lose weight, I’d love to if I wasn’t out of breath. I am moving house so I braved kneeing to paint the skirting board, I’m now bruised from my knee to my ankle and have swollen ankles, it’s not that I don’t try and be active and do normal household tasks, etc I generally am a positive person and I’m like it is what it is, but I’m feeling like my partner is doing so much to help us move house and I’m not helping much!!!

Suppose I’m feeling sorry for myself haha x

[misspicky82]

Hey DashI do the same go quiet at times, it's just when I have too much going on. I have children that have extra needs too so it's hard for me when I've no energy left to even engage with others or even myself.

I used to take Naproxen but I have asthma so I didn't tolerate it well and my stomach didn't like it either.

Definitely go back to your docs and tell them bcoz line you say, there's no point in taking medications that do nothing for you bcoz what's the point in getting side effects with no benefit?!

You have to learn to be kinder to yourself. It's hard, but I work with a psychologist and she is teaching me how to be kinder bcoz like you, I blamed myself and beat myself up over not being able to do much and feeling like a burden on everyone else but I'm getting there with it. Slowly but surely. Try to do things to help, but don't overdue it and your partner will understand that you can't, I'm sure?

I am starting physio in 2 weeks. I was supposed to start in November but I wasn't well enough that first day so they had to move me onto the next session in January. It's at my pain clinic. I'm hoping that will work better. Up to now, it's only opiates that work, but they got the better of me and now they don't seem to work when I take them, yet if I don't...damn... things hurt like hell so they must be working but I just don't feel it at the time. The docs wanted me off them but my pain clinic wrote to them and told them to stop weaning me off them bcoz I'm not really on a high equivalent dose compared to morphine and bcoz it does help, they don't see why I should be taken off them. I think it's just bcoz there's so much bad press about opiates now that the GPs wasn't everyone off them.

Anyway, chin up, be kinder to yourself and take things easy at all times. Never overdo yourself out of feeling like a burden as you'll only end up in a worse off position and then be of no help. Trust me, being kinder to yourself helps alot!!

Take care,

Angela xx

[Elaine200756]

Hi Dash and welcome back 🤗 It's hard to have to sit back and watch your partner doing most of the work when you can do nothing, or little, to help. You have absolutely nothing to feel guilty about. You are ill. You didn't choose to be ill. Can't change it. If you try to do more you will probably have a flare up and may end up worse than before. Your partner may end up being your carer and still having to do the work involved in moving house.

So really you are doing a great deal to help your partner by practising self care. If you were well enough to share the work I think you wouldn't hesitate. Do you worry about your partner thinking you should do more? I obviously don't know, but it's something I used to worry about.

I had a bad flare at the end of August and was housebound for 4 months. At the moment I have been trying to get out of the house but when I do I have to rest up for 2 days at least. So I believe in prioritising self care and recovery. Take care of yourself. With love, Elaine xx 😘

[pinot]

Hi dash I'm similar to you I often have to go offline to be able to cope with the various aspects of fibro and other conditions.i am eternally grateful for those who help out and thank you all for your kindness and support.. I'm trying hard to be patient after 3 mri scans found I have a brain tumour and recieved very little support from my GP and consultant. last mri scan was November to see if it had grown any worse no update it's so scary and I hate to put this on my family..I will keep you updated as and when I recieve news and any treatment.

[Cotswolds25121]

Hi Dash01, I feel a lot of people not only those of us with fibro and all the other issues it brings with it, let alone separate problems like anyone gets, all need to do this at times, I know I do. Its just a coping mechanism and everyone deals with things in different ways so there’s no right or wrong, just do what’s right and best for you 🤗I have finished with my physio just before Christmas and am missing having the acupuncture, I was extremely fortunate to have. I was seen at the msk pain clinic too and have my next appointment in March 😞too long in my opinion but that’s the way it works so 🤷‍♀️consultant said to go on turmeric and black pepper to hopefully get me off the naproxen eventually as I’ve been on them a lot of years but it’s the only thing together with co codamol that gives me any kind of relief from the pain for short periods. You must ask your dr to give you omprazenole or lanprazonol if you are taking naproxen, just in case you weren’t aware. As it protects your stomach. Obviously though it depends on which type and there maybe others available but definitely ask about them. X

[Yassytina FMA UK Volunteer]

It’s okay too let out feelings and yes agree see the doctor again and see if there s anything else you can try taking, I hope the house move goes okay and you can settle into your new home x