Hello, I'm new here and it's really wonderful to have a safe space for questions and support.
I have been struggling with fibro for about 2 years now, I had to give up work, my social life has become non-existent, and I'm pretty much housebound. I also struggle with addiction, so I'm in recovery, but I've not managed much long-term sobriety (I'm not giving up though!)
I've recently reached 2 months without using, and there was a noticeable improvement in my symptoms which really helped my willpower with staying clean and focusing on getting better. I found some great tools that started working for me, like spirituality practice, tai chi, using a TENS machine and avoiding certain foods. About 2 weeks, I had a massive improvement in my symptoms! I was able to think clearly, I had physical energy which allowed me to clean and reorganise the house and even go for a few walks. I really thought I might have turned a corner in my fibro management, though I tried to make sure I was thinking realistically - I made sure not to over-do it and reminded myself that it might not last.
However, the symptoms crashed back with full force. I've been in so much pain, completely fatigued, feeling foggy and dizzy, and absolutely no motivation. I tried to prepare myself for this but the reality has really knocked me for six that my improvement has gone. I'm not sure how to cope anymore or how to get back into a positive and healthy mindset; I just feel really disappointed and disheartened.
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Retnefel
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Hi I've had fybromyalga for 8 years now when I first got diagnosed I was very anxious and would try and keep up with house work garden/ shopping/ helping people but the pain got worse and I was living with flare ups constantly. I brought a lot of stress on myself for quite a few years and resented family and friends when I needed help and none was given or very little.medication wasn't working and at times felt life wasn't worth living So I started to learn how to pace everything sometimes I still overdo things and pay the price with pain and depression. I also had to learn I had no control over people places and things.It took a good while and still comes back the hurt I felt over people letting me down
I to am an alcoholic so the first few years of your sobriety will also be about learning about your emotions so with your sobriety and fybro you are doing well take it one day at a time or even one hour at a time .Remember not getting everything done in one day does not mean you are lazy it's having no motivation fatigue fog brain and many more problems associated with fybromyalga So my advice / suggestions is use this site regularly take notes on what members are sharing regarding information on how they cope with situations you will be amazed how these members can get you through hard painful times.If you are a member of aa like myself stick at it when I first started.
.the promises was kept me going and make this saying stick in your head IT IS THE FIRST DRINK THAT DOES THE DAMAGE ALCOHOL TO ALCOHOLIC S IS CUNNING POWERFUL AND BAFFILING KEEP THE FAITH YOU ARE A FYBRO WARRIOR XXX
Thank you for sharing what you’re going through. I know it’s not easy to open up about something so challenging, but it’s truly brave of you. It’s completely normal to feel disheartened after experiencing some improvement and then facing a relapse. However, I want to remind you that you’re not alone, and there are ways to get through this, step by step. Here are some ideas that might help:
1. Rest Without Feeling Guilty
Your body is asking for a break, and that doesn’t mean you’re failing or going backwards. Resting is normal, especially when you’re going through a tough time. Listen to your body without judging yourself.
What can you do?
Find a comfortable position using cushions or pillows to relieve pain.
Take moments to close your eyes, breathe deeply, and remind yourself: “Resting is part of my recovery.”
If you feel frustrated about not being able to do much, remind yourself that even rest is a step towards feeling better.
2. Do Small Things That Bring You Joy or Relief
Doing something simple that makes you feel good can help you get through the day. While it won’t erase your symptoms, these small moments of joy can make a big difference.
What can you do?
Listen to your favourite song or calming music.
If you have the energy, watch something inspiring or funny.
A warm bath can relax your muscles and provide some relief.
Even if you can’t move much, imagine a peaceful place that makes you feel calm, like a beach or a forest.
3. Slowly Return to the Tools That Worked for You Before
You’ve already found things that helped, like tai chi, using a TENS machine, or making changes to your diet. Even though you’re feeling worse now, these tools are still valuable. You just need to ease back into them gently.
What can you do?
If you enjoy tai chi, try gentle movements or focus solely on the breathing techniques you’ve learned.
Use the TENS machine in short sessions to relieve pain in specific areas.
Stick to the dietary adjustments that worked for you as much as you can, but don’t stress if you can’t follow everything perfectly every day.
4. Set Small, Achievable Goals
When you’re feeling low, big tasks can feel impossible. Focusing on something small and manageable can give you a sense of control and accomplishment.
What can you do?
Instead of thinking, “I need to clean the whole house,” focus on something smaller, like tidying one table or washing a couple of dishes.
If you don’t have the energy for physical tasks, set goals like, “Today I’ll make sure to drink enough water,” or “I’ll write down how I’m feeling.”
Keep a list of even the smallest achievements. Seeing them written down can motivate you.
5. Talk to Someone You Trust
You don’t have to carry everything on your own. Talking to someone—a friend, family member, or even a support group—can help lighten the emotional load.
What can you do?
If you find it hard to start the conversation, say something simple like: “I’m not feeling well today, but I needed to tell someone.”
If you don’t feel like talking, try writing your thoughts in a message or a journal. Sometimes putting your feelings into words helps you process them.
6. Check in With Your Doctor if Needed
If this relapse feels different or more severe, consider speaking to your doctor. Sometimes adjusting treatments or exploring new options can make a difference.
What can you do?
Keep a record of your recent symptoms: where it hurts, how your energy levels are, and any new issues like dizziness or extreme fatigue.
Ask about new therapies or adjustments to your medication that could help.
Don’t hesitate to share how you’re feeling emotionally too—mental health is just as important.
7. Remember, This is a Process
Recovery from a chronic condition like fibromyalgia isn’t a straight path. Relapses don’t mean you’re going backwards; they’re just part of the journey, even though they can be frustrating.
What can you do?
Remind yourself that this is temporary, even if it feels endless right now. Think about the days when you felt better, and trust that they will come again.
Use affirmations like: “This doesn’t define my journey; it’s just a pause.”
When you feel better, write down what those days were like so you can revisit them during tough times.
8. Take Care of Your Mental and Emotional Health
Stress and negative emotions can worsen symptoms. Prioritising your emotional wellbeing can help you manage relapses more effectively.
What can you do?
Try mindfulness or meditation. There are plenty of free audio guides to help you start, even for just a few minutes a day.
Write a gratitude list, focusing on small things like having a moment of peace, feeling a bit of sunshine, or a kind gesture from someone.
If you feel overwhelmed, give yourself permission to cry or release what you’re feeling. You don’t have to be strong all the time.
A Final Message for You:
You’ve already shown so much strength in facing both fibromyalgia and your recovery. Even if today feels like one of your worst days, remember that you’ve overcome difficult moments before. This relapse doesn’t define you, nor does it erase the progress you’ve made. Take things one day at a time, gently and without pressuring yourself. You’re doing your best, and that’s more than enough.
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Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Fibromyalgia medication 
Just feel like I need to get it off my chest!!
Help with fybro
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