Appointments : When last posted... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Appointments

Pastafox profile image
9 Replies

When last posted regarding my last appointment I didn't see that gp in person it was over the phone the craziest statement when she surrgestted I chat with my neighbours rather than call the practice 1 thing she did secure a ultrasound to look at my concerns of my trunk so I thought what total waste of time Stay safe Brothers and Sisters...

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Pastafox profile image
Pastafox
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9 Replies
honeybug profile image
honeybug

OMGOODNESS Pastafox 🤗🌿🌸🦋

While I’m elated to hear that you got an ultrasound scheduled I’m appalled over the suggestion that a chat with a non medically qualified neighbor is the solution to your problems.

😳😵‍💫🥴

I’m sure you’re brilliant enough to NOT follow that absurd advice.

Praying you’ll get answers and care soon.

Love and prayers

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Pastafox profile image
Pastafox in reply to honeybug

Thanks honeybug I struggle to feel anything other than pain these days as for the ultrasound that was joke when spoke about my concerns he was took no notice of me and just skipped over me like speed boat so don't hold much hope stay safe honeybug ...

honeybug profile image
honeybug in reply to Pastafox

OMGOODNESS Pastafox🙂🌿🌸🦋

I’m so very sorry you are suffering so much pain. I empathize with you as I too have gone through countless doctors that told me I was crazy or faking or even worse they refused to help don’t even look at me just ignored what I said and offered nothing to help but gladly charged too much money for their time. Back then I’d cry every time this happened. I wait awhile recover and find another doctor and most times the same thing happened again.

I have 70+ confirmed conditions most of them cause pain. I was blessed to get referred to a specialist who truly cared and listened to me. At that time I described how I felt by telling him if I had an off switch I would permanently fliip it in the off position. He wasn’t shocked or arrogant he truly listened to everything I said. He prescribed a meds called flexeril. It worked wonders for me. On one GP visit my doctor got angry with me because I revealed that I had decided that when cancer came for me (98% of my family/relatives have died from all forms of cancer and I made this decision at age 10) I wasn’t taking anything to treat it. Right after I said that he attacked me with the reflex rubber hammer right between my eyes and knocked my eyeglasses off. I was absolutely shocked he did that to me. I didn’t go back to that office or him for over a year. I quit all of my medication. I finally changed my care over to his partner but in doing so he took away my flexeril meds and I reverted back to severe pain and little mobility.

Apologies this is so long…

I endured another horrible experience with a brain specialist who only treated stroke patients. Not my fault my new GP made that mistake. On my first visit with her she became infuriated because of the many conditions I checked that I had/or did have. She was yelling at me while she vilolently waved my chart 1 inch rom my face. I went home defeated cried a lot got depressed etc…but I listened to my inner voice which told me to endure another visit with the strategy of being sickening sweet to her. She was tolerating me so much better and referred me to a University Rheumatologist Specialist who was excellent. Listened to my every word and prescribed me my gabapentin which has helped with my extremely severe neuropathy.

I’ve told you this length story to hopefully let you know that there are good/great doctors out there. I’m sorry that UKs are so overwhelmed but please don’t give up completely.

I’m praying that you will get the special one you need to help you too.

Take care. I’m here if/when you need me.

Love and prayers,

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Pastafox profile image
Pastafox in reply to honeybug

Hi honeybug you have gone through all this and paid finance ,phisicaly and mentally my prayers go out to you sister Carful of gabapentin I stuck on them for to long I begged every gp I could in my last practice to get of them some refused while others said they couldn't because they were locums

Very scary stuff they had me 12 a day they help didn't with pain to begin so they were joined 8 Paracetamol on top when I asked how will they help they make a nice mix the Dr replied I felt spaced out looked spaced

And top it off I would get heavy rush in my head it was like a rough sea no clue when will stop

Stay safe...

Yassytina profile image
YassytinaFMA UK Volunteer

I get being able too chat too people is positive but I’d never heard that one from a doctor before 😫🤣xx

Pastafox profile image
Pastafox in reply to Yassytina

Sorry I don't find this funny am in a lot pain most days I have had change alot about myself and things am able to do am very limited ...

honeybug profile image
honeybug in reply to Pastafox

🤗🙏🕊

Yassytina profile image
YassytinaFMA UK Volunteer in reply to Pastafox

Sorry wasn’t being funny the emoji s were crying ,just said I’ve never heard anything like this before from a doctor , pain is horrid that’s why we talk too each other here it can be pretty rotten most days for people and life changing for a lot of us. I’ve been a volunteer here for 8years and being in pain most days now for a lot of us we truly get what it is like on a daily basis.

Pastafox profile image
Pastafox in reply to Yassytina

Sorry to you Yassytina I have read into it the wrong way stay safe...

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