Appointments : When last posted... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Appointments

Pastafox profile image
14 Replies

When last posted regarding my last appointment I didn't see that gp in person it was over the phone the craziest statement when she surrgestted I chat with my neighbours rather than call the practice 1 thing she did secure a ultrasound to look at my concerns of my trunk so I thought what total waste of time Stay safe Brothers and Sisters...

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Pastafox profile image
Pastafox
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14 Replies
honeybug profile image
honeybug

OMGOODNESS Pastafox 🤗🌿🌸🦋

While I’m elated to hear that you got an ultrasound scheduled I’m appalled over the suggestion that a chat with a non medically qualified neighbor is the solution to your problems.

😳😵‍💫🥴

I’m sure you’re brilliant enough to NOT follow that absurd advice.

Praying you’ll get answers and care soon.

Love and prayers

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Pastafox profile image
Pastafox in reply tohoneybug

Thanks honeybug I struggle to feel anything other than pain these days as for the ultrasound that was joke when spoke about my concerns he was took no notice of me and just skipped over me like speed boat so don't hold much hope stay safe honeybug ...

honeybug profile image
honeybug in reply toPastafox

OMGOODNESS Pastafox🙂🌿🌸🦋

I’m so very sorry you are suffering so much pain. I empathize with you as I too have gone through countless doctors that told me I was crazy or faking or even worse they refused to help don’t even look at me just ignored what I said and offered nothing to help but gladly charged too much money for their time. Back then I’d cry every time this happened. I wait awhile recover and find another doctor and most times the same thing happened again.

I have 70+ confirmed conditions most of them cause pain. I was blessed to get referred to a specialist who truly cared and listened to me. At that time I described how I felt by telling him if I had an off switch I would permanently fliip it in the off position. He wasn’t shocked or arrogant he truly listened to everything I said. He prescribed a meds called flexeril. It worked wonders for me. On one GP visit my doctor got angry with me because I revealed that I had decided that when cancer came for me (98% of my family/relatives have died from all forms of cancer and I made this decision at age 10) I wasn’t taking anything to treat it. Right after I said that he attacked me with the reflex rubber hammer right between my eyes and knocked my eyeglasses off. I was absolutely shocked he did that to me. I didn’t go back to that office or him for over a year. I quit all of my medication. I finally changed my care over to his partner but in doing so he took away my flexeril meds and I reverted back to severe pain and little mobility.

Apologies this is so long…

I endured another horrible experience with a brain specialist who only treated stroke patients. Not my fault my new GP made that mistake. On my first visit with her she became infuriated because of the many conditions I checked that I had/or did have. She was yelling at me while she vilolently waved my chart 1 inch rom my face. I went home defeated cried a lot got depressed etc…but I listened to my inner voice which told me to endure another visit with the strategy of being sickening sweet to her. She was tolerating me so much better and referred me to a University Rheumatologist Specialist who was excellent. Listened to my every word and prescribed me my gabapentin which has helped with my extremely severe neuropathy.

I’ve told you this length story to hopefully let you know that there are good/great doctors out there. I’m sorry that UKs are so overwhelmed but please don’t give up completely.

I’m praying that you will get the special one you need to help you too.

Take care. I’m here if/when you need me.

Love and prayers,

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Pastafox profile image
Pastafox in reply tohoneybug

Hi honeybug you have gone through all this and paid finance ,phisicaly and mentally my prayers go out to you sister Carful of gabapentin I stuck on them for to long I begged every gp I could in my last practice to get of them some refused while others said they couldn't because they were locums

Very scary stuff they had me 12 a day they help didn't with pain to begin so they were joined 8 Paracetamol on top when I asked how will they help they make a nice mix the Dr replied I felt spaced out looked spaced

And top it off I would get heavy rush in my head it was like a rough sea no clue when will stop

Stay safe...

honeybug profile image
honeybug in reply toPastafox

OMGOODNESS Pf 😳

Sooo sorry to hear of your terrible experience. Are you doing better now??? I see hope so.

I have severe brain fog; forgive me if I repeat.

While I was working my final job I was doused in a chemical that caused nerve damage. I had just gotten prosthetics for my short leg and corrective shoes for my multiple other issues to the cost of $600.00. Due to the expense of these things I couldn’t toss them and replace them. So my body absorbed a lot of the toxins despite my best efforts to clean them up as best I could. End results of that accident was serious nerve damage/pain. Flexeril was taken away by my new GP (former one of 20+ years attacked me with a rubber reflex hammer knocking off my glasses and absolutely stunned me.) so I was blessed to see a 🤩 Rheumy who gave me gabapentin. It helps me survive my serious neuropathy; without it I don’t want to suffer , I’d rather be dead.

Thanks for the warning brother. Appreciate it much.

You take care stay safe my friend.

Love and prayers,

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Apologies for errors no time to proofread and correct. 🥴

Debsdelight72 profile image
Debsdelight72 in reply tohoneybug

Blooming ek, I am sorry to say I am a complete she-Hulk, I never used to have a temper as such, Now????!!! holycrap I would have given her a bit of a slap(punch) on the nose, I don't go out unless GP,Hospital etc through the anxiety,

I will be arrested, It's only because I hate the way a lot of people act like they just sat on a bee, and your the next person they meet, Not enough love and kindness, Where has it all gone??🥺

honeybug profile image
honeybug in reply toDebsdelight72

oh my Dd72 😳

You surprised me about being a she-Hulk. It is sometimes very difficult for me not to react…while working in a small medical clinic a pregnant patient seeing the OB/GYN doctor was trying to kill her toddler son by throwing him against the plate glass door of our clinic. I immediately went out and scooped him into my arms and took him inside the office to protect him from further abuse. After the abuser’s appointment ended she took back her son ( I had no choice but to give him to her) then she left. Without knowledge of anyone around me I reported the abuse to authorities. She was investigated and her next appointment she threatened me because she knew I reported her. I can tolerate bad treatment of myself because I was severely abused myself but I WON’T tolerate others suffering from it. As for myself I’m conditioned to withstand it I’ve learned to restrain my responses and vowed to love those who are unkind to me by treating them with loving kindness. Most times people will exhibit what they know if we treat them with the opposite it may be the first time they’ve experienced it themselves and hopefully will make a difference in their lives.

I agree that the times we live in are so difficult I miss the ways of the era of my youth where there was mutual respect abound

Take care sweetie

Love and prayers

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Yassytina profile image
YassytinaFMA UK Volunteer

I get being able too chat too people is positive but I’d never heard that one from a doctor before 😫🤣xx

Pastafox profile image
Pastafox in reply toYassytina

Sorry I don't find this funny am in a lot pain most days I have had change alot about myself and things am able to do am very limited ...

honeybug profile image
honeybug in reply toPastafox

🤗🙏🕊

Yassytina profile image
YassytinaFMA UK Volunteer in reply toPastafox

Sorry wasn’t being funny the emoji s were crying ,just said I’ve never heard anything like this before from a doctor , pain is horrid that’s why we talk too each other here it can be pretty rotten most days for people and life changing for a lot of us. I’ve been a volunteer here for 8years and being in pain most days now for a lot of us we truly get what it is like on a daily basis.

Pastafox profile image
Pastafox in reply toYassytina

Sorry to you Yassytina I have read into it the wrong way stay safe...

Debsdelight72 profile image
Debsdelight72 in reply toPastafox

I'm sure no-one meant anything negative, We all get a little sensitive because of our pains, We all need to be kind to each other (Not taking the mick out of anyone) There are some very loving caring people on this forum who support anyone who needs some extra hugs at times 🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗,

Take care x Debs

Yassytina profile image
YassytinaFMA UK Volunteer

I will, you take care too x

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