Getting dizzy with appointments... - Fibromyalgia Acti...

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Getting dizzy with appointments...

trae profile image
trae
8 Replies

So went to the doc today as he sent me a letter asking to see me...

He was trying to send me back to rheumatology but the say they won't see me till I have a blood test comfirming that I'm getting worse ( oh and apparently I don't have fibro, just signs of fibro????)

If this lot of blood's don't show anything then I'm being sent to the unknown illnesses clinic.

So tired of running around appointments trying to find out what's wrong :( oh well at least my doc is adamant to find answers xx

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trae
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8 Replies
Ginsing profile image
Ginsing

How very difficult for you. I . Suspect you would rather have fibrous and know about it. There is nothing worse than . Indecision. I remember when the diagnosis was made I felt so much better for a bit. I hope they decide what is what for you and then your treatment can begin. Good luck. Xgins

tulips123 profile image
tulips123

For many years, I was used to doctors looking at me with expressions of absolute bewilderment. Until I found this amazing gp, and she seems to have access to the best consultants (plural!). A doctor who wont give up until they find some kind of an answer is the best possible to have.

Wishing you good luck. :) Tulip

Tusk profile image
Tusk

I do feel for you I am having the same problem right now. I have been ill for weeks now and back and forth to Gp and consultant, they thought it was polymyalgia then lupus but the bloods are all negative so I too am in limbo as to what is wrong. I wonder if I were working what they would write on my sick note!! It is awful not having a diagnosis when you know you are so ill, my GP knows, the consultant knows but they do not know why but depression keeps popping up and I am furious. Yes I am depressed but that is mainly due to feeling so ill. I hope you get sorted and seen to and feel better soon.

Tusk

trae profile image
trae

Thankyou everyone for writing back to me, it really means a lot xx

It does feel good to have a very adamant doc. I've got an appointment to see him a week after my bloods so fingers crossed xx

_Phoenix_ profile image
_Phoenix_

Just wondering- if you have the signs of Fibromyalgia, then why don't they think it is? As all Fibro can be diagnosed by is the signs (once everything else has been ruled out)? xx

trae profile image
trae

You're guess is as good as mine. She told me it was fibro but told my gp it wasn't. Confused isn't the word :( xx

_Phoenix_ profile image
_Phoenix_

Oh dear :( So frustrating when you're waiting for a diagnosis. Been through it several times myself with different illnesses. Hope you get some answers soon. Gentle hugs xxx

trae profile image
trae

Thankyou xxx

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