ahhhrrgg: So I was going away to Spain... - Fibromyalgia Acti...

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ahhhrrgg

Onceabiker profile image
9 Replies

So I was going away to Spain for ten days for the benefit of my family and not looking forward to it but needed to order meds to carry me over the period away. I was told I needed a review but they would give me the meds.

Whilst away my 16 y/o son said he would like to try SCUBA diving as I am licensed but hadn’t dived for more than 15 years. I felt I had to go with him, to look after him, but I was quite nervous about it.

Got geared up on the boat and fell over as I just couldn’t carry the weight of tanks and lead weights (for buoyancy ) the guys on the boat looked shocked and asked my wife if I was drunk! Anyway, in we went and all was good down there, nice to be able to do something unhindered by Fybromyalgia once I was under water. Getting out up the ladder on to the boat at the end of the dive was very hard though.

Anyway, got home and booked my review by phone and had it a couple of days later. He said I could have my meds for another six months but was concerned that I sleep so much and booked a face to face with my GP for 9th September. I did sleep for 17 hours the other day but the Nortriptyline gives me nice colourful dreams so I don’t mind; the dreams are better than real life. As many of you will know Fybromyalgia can give you anxiety and I suffer from that badly and only go out of the house once or twice a month. I’m doing less than 2000 miles a year in my car, and usually going out revolves around being Dad’s Taxi. I am reluctant to have to go to the Dr’s surgery as it is a drive away at rush hour.

I tried to order my meds again as they run out in a couple of days and a block has been put on them until the 10th when I will have seen the Doc. Well, that’s no good, how do I manage until then?

Vent over, be as well as you can.

R.

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Onceabiker profile image
Onceabiker
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9 Replies
Dinkie profile image
Dinkie

I've had this problem with my mother's meds. I phoned and explained the problem to the receptionist and then also spoke to the pharmacist and between them they arranged for a prescription to be issued for a small amount of drugs to see her through to the appointment date. Just explain these are not meds that can just be stopped without any problems. Good luck

Onceabiker profile image
Onceabiker in reply to Dinkie

Thank you. I’ve just been to the satellite practise in my village and the way the receptionist spoke to me you would think it was my fault!

Nice.

Dinkie profile image
Dinkie in reply to Onceabiker

Do you have a regular pharmacist? They have a hot line to the GP surgery and are treated as professionals and more likely to get the result you need. Wish more receptionists would actually listen. Problem is they are overworked and have to be the front line and the first day back after a bank holiday they are probably inundated with requests but that doesn't excuse their behaviour.

Onceabiker profile image
Onceabiker in reply to Dinkie

Both my GP’s surgeries have pharmacy’s within them so they have known me for many years. Don’t think they should be grumpy with customers though.

Thanks.

Yassytina profile image
YassytinaFMA UK Volunteer

Can always vent here , glad you went too Spain with your family , I know the feeling of being anxious as there is talk of ,my family going next year and anything out of my comfort zone 🤣I have not flown for over 8 years now as Fibro and other bits pieces are not so good now, I would differently ask for something too calm me if it happens. A nuisance as your surgery is so far away and yes the dreaded rush hour traffic, could they possibly help you with a better time slot for your appointment? In a way a face too face maybe good too have a proper chat about meds etc, I hope it all goes well , in the mean time take care .

Onceabiker profile image
Onceabiker in reply to Yassytina

Thank you..

Twin4Life profile image
Twin4Life

Have you tried ordering an emergency prescription through 111? You should be able to get an emergency supply of a few days worth of medicine through the NHS 111 service.

I have used it to get venlafaxine because I stupidly forgot to order a refill and couldn't get any from my normal pharmacy because it was closed the day I ran out. I got that emergency refill through the online 111 service. However, if you need a "controlled medication" such as pregabalin you will have to call 111, which is what my sister had to do about a month ago because her GP was being difficult about refilling it.

Onceabiker profile image
Onceabiker in reply to Twin4Life

I didn’t know you could do that but it’s resolved now.

Thanks all.

Fibroplus profile image
Fibroplus

depending on what they you cannot just stop them like that and some you are weaned on and off them You really need to tell the person on the phone to put it forward to your dr Stand your ground

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