lupus

[jeevan05]

I have had lupus for around 10 years now managing on a daily basis but, last three weeks on my whole left hand side head, neck face I have been experiencing pain.

Thinking nothing of it I kept eating pain relief which temporary took away then pain Yhe doctor said was virus I did not think this and took it on my self to go AE as the pain is excruciating 😣 could not do normal things.

I had CT scan which showed miagraines can’t believe they can go on and on. Anyone else experience this getting up with banging headach it. An come anytime.. I have been given simutriptan which relieves short term. Not sure how to manage this?? Cancelled trip to Budhaphest as can’t travel like this, even though doctors said I can go

[CheetieCat]

Hi jeevan05 any mention of a daily preventative treatment from your GP like a beta blocker or similar? Total game changer for me, still have the triptan for attacks but they are way less severe and easier to cope with.

[jeevan05 in reply to CheetieCat]

No hospital gave no follow up if this is long term they need to be managed.. thanks I will make an appointment

[CheetieCat in reply to jeevan05]

Best of luck! Let us know how you get on

[Dinkie]

I attended the pain clinic and they gave me injections into the back of my head, it was really for spinal pain but it cured my migraines/headaches for months. May be worth investigating

[jeevan05]

thanks for advice

[Cat00]

Migraines can be daily and for a lifetime, but that doesn't mean yours will go that way. GP's are, apparently, better equipped these days to deal with migraines. I would start there. There are a huge amount of options a GP can work through before you need to see a neurologist. However if it is out of character I would make that clear to them from the outset.

[RedLottie]

Hi, I get cluster migraines and they can last for weeks. Starts with a bad headache that goes on for days, and sometimes weeks until I have a massive migraine that then eases the headaches. Migraines are the worst, be kind to yourself and I hope you feel better soon x

[jeevan05]

Thank you got up really bad the mornings seem to be the worst..going gp tomorrow see if they can give spray to help start the day..as hospital gave to me and it worked..unfortunately did not get any to take home. It’s taken me 4hours to get up today..