Scared to have 4th Covid booster. Gave me so many issues with my body ,Fibro and problems wih my shoulder which I still have. In 2 minds. Any advice ? Havent had Covid thankfully.
ADMIN: locked this post as it was going into covid misinformation and inaccuracies. Have posted a final reply that addresses some of the points that were made.
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Drink plenty of water so you stay hydrated before and after the booster. Also, keeping the arms in gentle motion (keeping blood flow up) after the injection helps to decrease sore arm and other potential side effects .
Try to exercise a bit, felt like Popeye, flu/covid booster at same time, in each arms, just had 4th vaccine, good advice LisaSnow, had bad reaction with AZ vaccine, but pfizer last one no problem! Like annoying bruises this time! Good Luck!👍👍
hi Lisa
thanks for advice. I got really unwell with fibro ladt time. Still have probs with shouder cant move up and down lots of inflammation. Other shoulder calcific tendonitis with impingrment need op but dr says i am am too high risk. I think jabs interferred too much.
i can't think of a mechanism that a vaccine would cause shoulder inflammation unless the administrator mistakenly stick the needle into the shoulder tissue, which is highly unikely.
Anyways it is a choice you must make on your own. I don't know the rates of infection where you live or your other risk factors, but if you fall in a high risk category, discomfort from vaccine side effects would be totally worth .
Unfortunately there have been reported cases of SIRVA (shoulder injury related to vaccine administration) this due to the unintentional injection of the vaccine into the subacromial-subdeltoid bursa (a sac like structure which reduces friction of the shoulder joint) rather than into the deltoid muscle. It can be reported here with the government's yellow card scheme: yellowcard.mhra.gov.uk/
Have you discussed this with your GP & asked for a physio referral?
As a retired physio, I'd recommend trying this as a first gentle exercise in the meanwhile. Stand & put the foot of your unaffected side slightly forwards so you have a comfortable base. Lean forwards, letting your affected arm hang. Now swing your arm backwards & forwards within your pain-free arc. Do this gently for a couple of minutes. Next try moving your hand in a comfortable circle first one way, then the other. Gravity thus helps aid movement, & you can increase the range as you progress, always moving your shoulder within your pain-free arc. Don't push through the pain as this just increases the pain cycle. Try this a little & often throughout your day.
As far as considering getting your Covid booster, I know some people have been advised, or asked to have it in their thigh instead, so that's an option.
Thank you . My left shoulder has lots of inflamation and my right has calcific tendonitis with impingement i need surgery but they say i am too high risk. I never had all this in my shoulders before covid jabs. I have been to physio given some excersises but they didnt help. My fibro is bad all over. I cant take pain relief so they wont operate to shave some bone so the impingement is easier. I have multiple chemical sensitivty to nothing works. I have had 3 cortison injects in my right shoulder for pain no more now. Do you have any more advice ? Ty
Sorry, no, the usual treatment for SIRVA is corticosteroid injections & physio. It will get easier, but unfortunately it can take time. It has some similarities with a 'frozen shoulder,' & the above gravity aided exercise should help, so I hope you will try it. Hoping you improve & have confidence in getting your booster.
Have the same prob from 11st jab was really ill after booster so not having the 44th one.
it seems your are damned if you do and damned if you dont. Many people are ok and lots arent. My shoulders arent the same since injections and i think it mucks up your immunity. Just stay safe
Hello there, having had Covid for the 1st time in July of this year I had my booster ,I felt so ropey when I had Covid I wanted too get it done in September , the next day I slept more but seemed fine after that. I wouldn’t wish having a bad dose of the Covid on anyone as it wiped me out for 3 weeks after so I differently think it’s worth doing for the protection it gives, hope this helped x
I guess we are all different. So your choice. I had my 4th early this week. Minor symptoms. I have an immune system that can turn on me so often find my fear of what might happen causes reactions.
This time I gently massaged and moved the arm more and took a steady walk in nature,Epsom salt bath followed by craft activity. Keeping distracted has helped.
mine was Pfizer this time.
all the best
Gigi
You could write a pros and cons list? Then see how you feel about each side?
Bearing in mind we now know the shot was never tested to stop transmission to others before being rolled out, (Pfizer rep Janine Small, admitted in EU committee questioning) and we all saw how in real time it doesn't seem to, this decision, this time around is only about your personal wellbeing, not about Killing Grandma! Or about what others think you ought to do.
I'm pretty sure even if we all say, don't be silly, shots don't cause shoulder injury, your lived experience will still be telling you different. I could introduce you to someone who believes the exact same thing due to what happened to her. I could then probably find you more folks to say she was being over sensitive and silly and all that junk. I think it's about how you feel and your trusting that. Or not?
I'd say, bearing in mind the current Omicron is less symptomatic and deadly, and you should still have some protection from your previous shots, a reasonably healthy person would not be putting themselves at a great risk by not having the next booster. Unless you are old and have relevent underlying conditions, in which case, you know ordinary colds and flu are an issue anyway.
In my experience, when my spidy senses say no to something, I've found it hard to come to terms with the fall out of not going with those feelings. But that's me. Good luck!
very nicely put thank you
It's a definite 'no' from me. Co(n)vid is the second greatest con ever performed on the human race. Don't continue falling for it. I'm amazed that billions of people chose to have subsequent "vaccines" when we were lied to about the first one; and Pfizer tried to have their research data locked away for 60 years (nothing suspicious about that all). Apparently Santa had Covid...
100% agree with you.
I don't believe Covid is a courtesy n and am for people being vaccinated. However, unfortunately I reacted badly to both 1st and 2nd vaccine and developed Fibromyalgia. Which I reported to yellow card scheme. My doctor said I could react the same way again. So I am not having boosters. I was almost in need of carers, and have fought long and hard to establish some mobility and to use hands without too much pain. It's an individual choice. I was I was able to have the vaccines like my friends and family, but I daren't risk it.
i am same reacted for a long time to 3 vaccines nobody understands the probs fibro brings. Wish you well x
Was it Astra Zenaca? That's what I had. But someone I know with M. E. reacted to Pfizer
i had 2 astra zen. 1 moderna
ditto here… I’ve now got fibromyalgia and I didn’t have it before the vaccines. I went from being totally fit & full of life/energy to being most days completely unable to do anything. It’s changed my life in a horrible way. The constant pains are excruciating and no way to get rid of them 😞. No way am I having another jab. My body clearly rejected it. I caught covid in July and shy of sheer exhaustion for a week, I was totally fine, and afterward it almost felt like my body had a ‘hard reset’ and I almost felt totally healthy & normal for 2 months… but i can feel creeping back in again now that the colder weather is setting in.
I was offered a second booster recently along with flu vaccine. I took the flu vaccine but refused the booster as it was Moderna. I am off on Tuesday to get Pfizer, which should give me no more than a sore arm, as Pfizer is the one I've been having from the start. You have a right to question what you're getting and refusing anything that disagrees badly with you.
I’m seeing here that many of you believe Pfizer to be the better vaccine Re reactions. In my recent post, where I mentioned getting the first 2 doses with reactions to both, that vaccine was Pfizer.
I don’t see my first post!
I think you need to carefully weigh the reactions to the vaccine vs. the effect of the actual virus.
Personally I have no gotten any of the boosters. I had bad reactions to the Pfizer shots: the second worse than the first. Both reactions started 5 days after the shot with increased fibro pain, muscle weakness, and fatigue. The first dose lasted 3 weeks. My gp didn’t believe it was shot related and ran a battery of tests to check for malaria, Lyme, mono, West Nile, etc. all came back negative. Despite that reaction, I had a second dose and had severe pain; especially at night that made me cry, along with fatigue and weakness. That reaction lasted 6 weeks. I thought it would be permanent. Not taking a risk of that with any boosters.
You need to do what you feel is right for you and have a clear conscience. Don’t be bullied into doing something you dont feel good about. You are the one living with the consequences (booster, or the real thing), not the people pushing one thing or the other.
Hang on.... my 3rd jab was Pfizer, (the first two AZ - all fine) and THAT was the one that did for me - sent me deep into fibro with symptoms I hadn't had for years. Suddenly a normal life was off the cards again. It's an individual response that is not the fault of any specific brand of vaccine. Don't lay the blame on a specific brand of jab. It's more likely that certain individuals, many of whom are members of this particular unhappy club, are more prone to react to any vaccine. I also had a mumps vax just at the beginning of the pandemic in UK, and that one caused me no end of grief, too.
I am taking part in the ONS (office for national statistics) research programme. Each month I do swabs and blood tests and each month they send me my results. I had a booster last December and have still got a high level of antibodies. All the vaccines I had were Pfizer. Felt a bit ropey the day after but other than that no other problems. I took the decision to have all the vaccines in part to protect my husband who was shielding and having chemo. Everyone has different reasons and needs, only you can decide what to do.
I'm also in this study and I still have "high level antibodies". I had the initial 2 vaccines in Dec 2020 and March 2021 but none since. I also had covid in February this year.
I work in clinical research, so it's nice to be on the participant side and have access to the tests that prove there's no reason for me to have "boosters".
Hi, I am having the same predicament☹️Even though my gp says I should have my 4th I’m scared to because after my 3rd I had to call an ambulance in the night as I couldn’t breathe 😫I was petrified and am worried it may happen again or worse 😢any advice lovely people x
🤷♀️🥰
Omg! This is appalling to say the least. 🤦♀️🤦♀️I wish you well. I have witnessed many who had the jabs get it twice or three times over and yet strangely my friends/colleagues who chose not to have not had it at all 🤔 x
I had terrible shoulder pain after my first Covid injection (had pre existing issues) and discussed with my consultant. He said it was a thing and I was not the only one. Advised me to have the future injections in my thigh. No more issues since doing that.
I had covid last January I have RA and Fibromyalgia. I was given a infusion so I wasn’t serious I’ll but even so I tested positive for covid for 2 months after initial test.which meant I couldn’t see any health professional So I’d definitely have your booster. I’m having my 5 jab on 25th . Better to have jab than risk being seriously I’ll
Hi, sorry I'm late replying. I had booster 3 days ago (Moderna). Bled a bit which is unusual but the man doing vaccinations at chemist seemed hesitant when injecting, inserted needle then stopped shifted angle & pushed harder. About 80 mins later, taste was affected, then hrs late felt I wasn't well. In the night I slept badly because I felt unwell & got up at 3.40 with awful nausea. 48hrs of just feeling below par but today not been so bad. I take painkillers a day before vaccination & for 3 days after to reduce the arm pain. GP doesn't agree that my body is sensitive to medication despite previous rapid reactions, so, I think you know your body, how it reacts and use this knowledge whilst weighing up what's best. It's us living with all the pain, hyper sensitivity, reactions, not the "experts". I'm 64yrs old & fed up of being thought "anxious & lonely". Best wishes
SIRVA is recognised, &, as I've mentioned, as has TeddyandGimli, there's the option of having a further Covid vaccine in the thigh if SIRVA has been implicated with a prior injection. Important to realise that vaccines help protect us, including Covid-19 ones, & the majority suffer no ill affects at all. SIRVA is real, but it's only the minority of people who will suffer from this.
I continue to be guided from the science available in the UK such as here: assets.publishing.service.g... which says, 'The decline in protection appears to be mainly driven by older people (over 65 years) and those with clinical risk factors (including immunosuppression). For Omicron, protection from primary vaccination appears to decline to very low levels by six months after all three vaccines used in the UK.'
This shows that boosters are important, as the vaccines only last so long, & not to forget that Covid-19 thrives when it's colder, which is why this roll out of boosters have been offered this autumn.
Important too to realise that with social media, we hear the worst stories from vaccines to benefits as people talk about their worst experiences from what they've read on social media.
Fullfact is a good resource to 'check' facts. With regards to this winter they say,' This winter could be the first time we see the effects of the so called ‘twindemic’ with both Covid-19 and flu in full circulation, so it is vital that those most susceptible to serious illness from these viruses come forward for vaccines in order to protect themselves and those around them.'
However to Cotswolds25121 I would say if you had an anaphylactic reaction to your vaccine, then you probably shouldn't have another, yet your GP seems OK with this, so, undoubtedly scary as your breathing problems were, be guided by your GP's medical understanding, & talk to them more about this.
There are several opinions in replies that are based on misinformation that I feel compelled to clarify. The new bivalent vaccine HAS BEEN TESTED in over 900 humans and data demonstrated good safety and efficacy especially against its target, the BA.4 and BA.5 subvariants. Press release can be found online, actual data is in the process to be published. I am a PhD scientist who teaches at a medical school. It is important to me that people can differenciate facts from opinions and not mistakenly influence the readers to make aw wrong call, leading to irreversible consequences.
unfortunately what you said about the new vaccine is wrong. Just not factually correct.
What is factually incorrect exactly? The bit about they're not traditional vaccines? They are not. Or that they're not fully FDA approved? They're not, and only have emergency approval only. Or that these MRNA spike protein substances do not stay in the injection site? They don't, and it spreads all over the human body, including into Mother's breast milk. Or do you know of my Mum's severe adverse reactions post jabs , or my friends & families too? Keen to hear what you claim to be factually incorrect about anything I have said.
i had the 4th covid vaccine yesterday. Woke up unable to move with the mother of all fibro and arthritis flare ups. That was almost 13 hours ago. I just struggled massively to get my meds, a large cup of tea and filled my water bottle. Got back in bed, took my meds and and just slept as I was just tired beyond belief. This happens each time I have the vaccination. I hate it but need it as I have immune issues too. I'm almost back to normal but can still feel the fibro pain and just believe each time that I will be OK in the next 24 to 48 hours. Hope you'll be OK
I have removed some posts and turned off replies to this post as it was veering into misinformation in regard to vaccines. Information that has been proven false by fact checkers was being shared.
Some points:
The Yellow Book and VARES scheme are alarm systems and not a direct link between cause and effect. They gather a lot more signals that actual related triggers. On VARES someone was able (almost. Not submitted due to the reporter's own action) to report that they were changing into the Hulk as an adverse effect.
# Vaccines are effective.
# Covid is real
# Better to have the vaccine than covid particularly if you are in a risk group
# Side effects do happen but are normally (vast majority) short and mild.
# Adverse effects of covid can be long, are frequent and can be as bad as fibro or worse
# Vaccines are tested and have moved beyond emergency use
# Vaccine will not cause fibro but there will be more people diagnosed with fibro as a result of covid. More with ME as well.
# AstraZeneca vaccine is still being used around the world but in booster trials the mRna based vaccines proved better in a booster capacity. Novavax is being used for those that cannot take mRna. Risk of Blood clots was higher from covid than AZ.
There is a lot of misinformation out there and on this forum, we will be science led and each of the statements above is based on evidenced studies. Individual choice is still an important right, and you can choose what you put in or do not put in your body. But anecdotal data points are not the same as evidenced research.
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Covid & fibromyalgia 
just like long covid
Got the Covid
covid 19 December 2023
