Warm Weather Issues

[Macdoual]

Hi all, hope everyone is doing as well as you can. I have just got back from holiday in Fuerteventura with beautiful weather. I usually love the heat on my body however this time was so different, my body just couldn't relax and was constantly having to move around, it was as if my body was constantly agitated. Does anyone else experience this, I'm just not sure if it's fibro related??

[Sleepyhead_]

Hi there yes I get spouts of intense aggitation usually when over tired the heat makes me tired which makes me aggitated - catch 22 - I guess moving would help release the energy and then perhaps try to relax - take it easy 🦋

[Macdoual in reply to Sleepyhead_]

Was laughing at your name, that's what my daughter calls me. Thank you for replying, I was over tired as didn't sleep too well.

[Sleepyhead_ in reply to Macdoual]

Hey its was the first thing that came to mind with not sleeping properly of late 🦋

[Yassytina FMA UK Volunteer]

I hope you had a nice time there, I do tend too have too move around after a certain time as I get uncomfortable in one position and have a stretch, the thought of warmth is lovely though after having such a long Winter xx

[Macdoual in reply to Yassytina]

Thank you for replying, I had a great time thank you.

[Cockerspaniels2]

Hi, yes in the heat I’m extremely tired and can’t sit or lay in it even over here in England it’s the same. My problem is I feel as though I have a million ants crawling and biting my body. I try to stay as cool as I can to avoid, just another symptom of Fibro sadly.

[Macdoual in reply to Cockerspaniels2]

OMG that's exactly how I felt as though something was crawling on my skin and also felt as though drips of water were falling on me at times. Thank you so much for replying.

[1whitestar]

Yes I find this if it is to hot.

[Macdoual in reply to 1whitestar]

Thank you, I was actually thinking I was losing the plot lol.

[Itgoesonandon]

I too suffer with heat now during the summer months, I can't enjoy my holidays like I used to either. Time to relax, no way, the longer I sit, the stiffer I get, it can be so painful just getting up. I do have Fybromyalgia, diagnosed finally in 2018 after suffering same symptoms since 2007. Blood test showed normal, rheumatoid factor showed normal, therefore the doctors say you are OK.Finally I was so down with it all, they would see the inflammation in parts of my body, hands, legs and ankles mainly and tell me it was the heat of summer but I had it all through winter too. I was referred to a rheumatologist many times, still no diagnosis until it was recognised by GPs. I had touch tests and I have 13 tender points out of the 18 they say is affected. I have just changed from amitryptiline which later down the line seemed to make the pain worse so I am on 60mg of Duloxetine, so far it has helped but boy nothing helps me sleep so with the tiredness comes the flare ups I go to work for my sanity, to keep me moving but it all catches up on me, forever suffering, some good days but real bad days too. I so sympathise with you all, take care x

[Macdoual in reply to Itgoesonandon]

Thank you for replying, it eases my mind knowing its not in my head. I so wish all of us didn't have to go through this. I was diagnosed just before covid as I demanded to be referred to a rheumatologist. I was with him for about half hour and he told me I had this since 2003, when I had my daughter. It all made perfect sense, my GP was blaming my pain on my mental health and I knew it wasn't. Well done for managing to continue working, unfortunately I lost my job of 29 years due to my health. Gentle hugs.

[maggiemay16]

I am in desperate need of sunshine. I love the heat of the sun on my body. Even if I get lightly sunburn, it's still better than the fibro pain. I live in Scotland, we don't see the sun often!!

[Macdoual in reply to maggiemay16]

I'm in North Lanarkshire so I know exactly what you mean. I tried to sit out in the garden yesterday and enjoy the sunshine but I just felt the constant biting feeling again. This is a new thing for me so I hope it doesn't keep happening. I love sitting in the heat.