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Debsdelight72 profile image
22 Replies

Dentist tomorrow,

My remaining teeth are being removed, I dont mind telling you I'm very scared,

My dentist is a wonderful lady who does all she can to try and stop the pain,Last week we had a eureka moment after six loads of the numbing injection and I was still shouting out in pain, sorry to the people in the waiting room,

I'm by no means a woos.I have some pretty big tattoos on my back (unicorn and fairy) and my left arm (Flowers and dragonflies) No more, The tattoo artist and I agreed to a very small tester.

There was an awful lot of shouting and swearing (Again sorry to the people in the waiting room My teeth were beautiful before,I became ill,

Has anyone else had trouble with their teeth since diagnose?

Wednesday Is my appointment for the cronic Muscular skelital bods,

Then Friday Mental health geezers and gals, A diazapan week,usually 3 does the trick,

No appointments for a weeks or so and then BAMM 3 with only a day in between

I'm not sure how I'm going to manage at the moment,

Hope you all have a great weekend with minimum pain and gentle hugs

Take care

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Debsdelight72 profile image
Debsdelight72
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22 Replies

hi, sorry to hear you’re having so many problems, look forward to the good days and they will make up for it🤞

I have slowly been losing teeth over the last few years and have plates top and bottom, but dentist said next time they will all have to go, so I can sympathise 🤐

I had my last one out a few months ago and now my upper plate is loose, but no point doing anything apparently. He also referred me to the hospital dental specialist as he thinks I might have something called lychen planus? Long waiting list 🤦‍♀️

So not sure if anyone else has experience of this, I also have eye problems 🤷🏻‍♀️dry, twitching etc

I have fibromyalgia, chronic fatigue, me, arthritis, ptsd, epilepsy, so another one to add to the list 🙄 I just need a really good MOT!

Trying to enjoy the good days, and hope I can keep the last of my teeth for a little longer 🤞

You will be fine, take lots of painkillers before you go too and be strong

🤗hugs And all the best x

Debsdelight72 profile image
Debsdelight72 in reply to Tiggerlostherbounce

It's crazy how all these symptons can lead into such a cruddy syndrome,No matter how much she injects into my gums I still feel about 75% ish of the pain if I cant get through tomorrow I'll have to wait and get them done at hospital,

At least I'll be asleep

take care

CheetieCat profile image
CheetieCat

Yes, I do too! Issues with dry nose, mouth, throat & now waiting for my next dental appointment in June. 3 teeth to come out and a filling over 4 appointments! Did suggest taking them all out as I'm forever breaking them anyway but she deftly changed the subject on me and stuck her mirror in so I couldn't argue with her - rude Lol😬Hope it all goes well for you!

Debsdelight72 profile image
Debsdelight72 in reply to CheetieCat

I was meant to get them removed ,I had the appointment come through and syked myself up Then lock down, I didn't mind there were a lot of sick people who needed attention.My first dentist,a man that wanted to work at his own practise hardly spoke to me or Hubby.Usually my Hubby can talk to anyone and anything, My go to when anxiety kicks in is being or saying daft,

As I laid back and readied myself, I said to Hubby "Does my bum look big in this chair?" I am a big lady, The nurse,Hubby and I were laughing and he just told me to open my mouth,

Grumpy sod!

Thank you for you reply

Take care

ANJI-UK profile image
ANJI-UK

Can i ask, why you have been having teeth removed? R they actually bad or just a lot of pain from them but perfect teeth?

Tiggerlostherbounce profile image
Tiggerlostherbounce in reply to ANJI-UK

hi, for me the teeth have to come out because the gums are slowly receding and making them loose, this then causes infections and pain. My dentist has tried to keep the ones that have been relatively sturdy as long as possible, but I’m at the stage now where they are all either becoming loose or are very loose.

So the conclusion is it’s a more a bone/ gum issue? I will know more when I see specialist about lychen planus? Dentist diagnosed from white spots on my gums.

Hope that helps?

Maybe I’ll get a full set of the most amazing white teeth ever !😄🤞

Debsdelight72 profile image
Debsdelight72 in reply to ANJI-UK

Almost over night they started to hurt,bleeding gums and crumbling, I stupidly never went to any dentist for about 10 years

My own fault

take care ☹️

ANJI-UK profile image
ANJI-UK in reply to Debsdelight72

Are you using a dentist now? I told u i had the fear of god in me ever since i were a kid. They put that rubber mask over my nose and mouth, i couldnt breath had a full blown panic attack and started a battle with them trying hold me still.Thats what i were told,The nurses were clawed and black n blue. So that was the end of the childrens dentist for me, cuz Mr. tickle wasnt amused....yes, that was his name. But look what was my only option was in the very end......... a dentist. Get one and i hope hes a gentle one. Before he starts explain your fears and panic if u get them too? u got start to look after yrself BUT ALWAYS EXPLAIN YR FEARS,PANIC, ANXIETY. BEFORE YOU LET THEM TOUCH U. They not going know unless u tell em. They usually do their best to keep pain to a minimum ect GOOD LUCK

gemimafibro profile image
gemimafibro

Hi Deb! I hope your appointment goes well and you don't experience too much pain 😔

I too have lost nearly all my teeth at the age of 30, I only have seven remaining and three of those are being removed in June. Over the last three years they all just seemed to disintegrate. I too had beautiful teeth before I became ill. I was always so proud of them, I never needed braces and they were strong. It's been incredibly hard, mentally, to lose them all. I've been told by my dentist that if I want implants that they need to be done sooner rather than later, but they'll cost me £20,000 to £28,000 which as I can't work, I will not be able to afford. It's so stressful.

Do you get pain with your dentures? I get horrible pain if my top and bottom teeth are together and when chewing anything. I'm not able to chew my food to a decent digestible level and it really affects my IBS.

I completely agree with the appointments for things all coming at once. I've finally realised it's sort of my own fault though 😂 I wait and wait because I'm feeling terrible and then I try and sort everything at once when I'm having an alright day so all the appointments end up around the same time.

I'm rambling now. Sorry. I hope all of your upcoming appointments go well and your pain begins to lessen a little.

Gemima ❤️

ANJI-UK profile image
ANJI-UK

I ask your reason because there was nothing at all wrong with my teeth. But my pain was excruciating to the point i was banging my face/head against the walls. The pain had me in floods of tears and i was so, so close to doing the unmentionable because i couldnt cope with it anymore, i came >< this close to being no more. Ever since i were young ive had the fear o gd in me when it came to dentists. This is how desperate i was, i hammered on the door until they let me in, (closed for training , meeting or sumut i dont remember) The pain got the better of me and i collapsed right there in the doorway. When i came around, i opened my eyes to people gawping at me. A girl spoke first, but i insisted on talking to the dentist face to face as i didnt want to repeat my nightmare again and again. I explained about fibromyalgia and all the different pain i got with it 24/7. How i started to get a lot of facial pain, jaw, head, teeth like gravestones, gums so tender i felt like i had them skinned. Then after i tried to explain in the best way i could about my health and unhealthy pain, i thought id sneak it in there how i had the fear o' Gd in me when it came to dentists and how i felt this was my only option before i did something terminally stupid to end the pain..... and that alone, should show how desperate i was for help. He agreed to take a look at me while the surgery was closed. During this time someone had made me a coffee to try calm me down. I was a complete shaking wreck. He managed get me in THE CHAIR, and he talked me thru everything he was doing, all he had in his hand was that pin like hook they check and count teeth with, and i nearly jumped out the chair. He explained he had barely touched me, i couldnt apologise enough i got a scratch just inside my mouth from the tool where i had jumped, not his fault. H decided to try injections to numb me, told him i had a fear of needles and said if nurse agreed she could hold my arms down, Bought tears to my eyes but i kept reasonably calm. i had to wait, then he checked but i could still feel, in the end think i had 7/8 jabs to numb.Apart from a broken tooth he couldnt fine anything that would be causing this amount of pain. Sent me home with painkillers and come back the next day and he would see how far he got with a clean up. 2 patients left before i got out of there. I tried to explain to who were left that my distress was due to illness and NOTHING that the dentist was doing. After that i was booked in as last patient everytime. Fast frwrd, he was at a loss, no one had even heard of fibro then, i tried to search online for information, in the meantime, he removed 3 or 4 teeth to ease the pressure, yay i just had an achy feeling but i could cope with that, 6/7weeks pain strikes again, had me bouncing of the walls. rang the dentist and slotted me in at the end. I begged and i pleaded for him take the lot so nothing left to cause me pain, but he refused point blank, i didnt do ??years of training to rip out healthy teeth, i did it to SAVE teeth. He took 2 more in time, same again but lasted nearer 6 weeks, in the end the trauma was just getting to much for me, so i begged and pleaded for him to arrange to take the lot in 1 foul swoop so i wasnt put through anymore stress. Hospital appt made and ALL BARR 1 were removed, i came around to the feeling of someone pulling my head up by my tooth, felt like my head was being lifted of the bed. In the end he just said leave it, i think i were screaming, It was all crunched and broken and stayed like that for some time. Until my next nightmare, in short, very short, i seem to reject the teeth, i can cope for an hour or so then i just got get them out as my head starts pounding until they r out....... and im still going thru that, i keep trying to wear them, but end up in pain and have to remove them. Not a pretty sight toothless female. But it was a crisis call at the time that i didnt think i would get thru as long as the teeth remained. I still get ''toothache'' and pain in my gums and up side my head, which is like snowflakes against the avalanche of hell i was going thru.

Debsdelight72 profile image
Debsdelight72 in reply to ANJI-UK

Hey Anji-uk,

I am writing a new post,

But I wanted to say directly to you. Please don't take that route, I've been there and can honestly say I may again,but I know that if I do, I know to get help sooner rather than later, There will be more than you think will also have had thoughts about it. Find yourself a good suport group or ask your GP

Please

Take care

ANJI-UK profile image
ANJI-UK in reply to Debsdelight72

I've suffered depression most my life so its quite deep seated. I have learnt to deal with it and control it up to a point, but i have my bad episodes where i get to close to the edge, but somehow i usually manage to drag myself back. All these yrs and i have never worked out what my 'trigger' is that saves me on the days like that? Never thought id get past 21 im 58 this august. So i must have been doing something right to safeguard myself. I tried and failed some yrs back...after so many i just couldnt swallow anymore, no matter how much liquid i drank, i just couldnt stop choking or breath, throat was clogged. I dont like heights, i dont like pain, lived with it over 25/30 yrs with it. ..... and i cant stand the sight of blood. Oh and i cant swallow now either So im quite limited dont you think lol

Debsdelight72 profile image
Debsdelight72 in reply to ANJI-UK

Mine began when I was 7 years old thats how back I can recall anyway, Physical,emotional and sexually, we're sorposed to look up to and protect you. so we have to be strong and keep fighting just to continue,

There are many many more of us who suffer mental illness and should seek help,

I've often wondered where I would be If Hubby wasn't here love of my life,

Take care

Blue_Clay profile image
Blue_Clay in reply to ANJI-UK

Hi ANJI-UK

I’m so sorry to hear of all your problems 🫤

After reading through your post however, it sounds to me like you may have/have been suffering from Trigeminal Neuralgia. Is this something your dentist has investigated/mentioned to you?

I’ve included a link below for you to have a read 🙂

nhs.uk/conditions/trigemina...

Kind Regards

ANJI-UK profile image
ANJI-UK in reply to Blue_Clay

SOUNDS PRETTY MUCH LIKE IT, BEEN SOME YRS NOW THNQ FOR THE LINK

Debsdelight72 profile image
Debsdelight72 in reply to Blue_Clay

Thanks for that Blue_Clay, I'll have a look at that,

I'm still in a lot of pain if anything I'm eating or even my tongue goes on the side I go through the roof, Not amused, have another appointment on Thursday . My main worry is, I stopped taking my clodywhatsit Blood thinners about a month back in readiness for dental work. The doc says it's ok ? If it's okay then why do I take them?

I've told hubby if I have a stroke, I did everything I was told😪

Janepain69 profile image
Janepain69

I totally understand how ur feelin, I have so much anxiety wen it cums to the dentist that I have to have my dental work under conscious sedation, it's the only way they can get anythin dun, I am seen at a sedation specialist who only deals wiv nervous patients and he is amazing, have u considered that as an option? I have found that my teeth r very weak but my diet is very poor so it's hard to work out if it's bcos of my health conditions, my meds or my poor diet! I also have dental checks every 3 months instead of every 6 in the hope of spotting anythin b4 it gets to bad.I hope it goes well for u, I will b thinking of u!

Debsdelight72 profile image
Debsdelight72 in reply to Janepain69

Thank you for your kind thoughts Janepain69, I wasn't aware we had a sedation specialist?

I'm in the UK, Are you? I still might have to go to the hospital under general, but at least they can remove all of the roots that are still in. Oh well there's nothing else I have to be doing 🥱

Latics1989-90 profile image
Latics1989-90

HiHow are you feeling after your dental appointment?? I used to be frightened of the dentist because I had a couple of bad experiences as an adult. I've always been scared of having any teeth removed but one dentist last year put my mind at ease. He gave me loads of injections and I didn't feel a thing when he removed one tooth. We thought that would be it but I was still in agony a week later. Another x-ray later, this tooth was cracked right down the middle so had that one removed!! Don't know whether this is to do with my fibro or the many meds I take!! I do have lots of conditions which also doesn't help!! Anyway,I will keep smiling 😊 because moping around won't change anything. Hope your pain has settled more now xxxx ❤️🫂💜🫂💟🫂😋🫂

Debsdelight72 profile image
Debsdelight72 in reply to Latics1989-90

Hi Latics, Thanks for reply, I'm writing a fresh post

Latics1989-90 profile image
Latics1989-90 in reply to Debsdelight72

HiYou are very welcome xx

Debsdelight72 profile image
Debsdelight72

Thank you all for your replies, Things did not go to plan😪 I had 4 teeth removed each one crumbled or split, I could'nt handle any more,Hubby puts pressure on my big toe (socks on)

I don't know how he does it but I,m glad he can.I felt every single jab each more than the last, I go back on the 18th she says she might refer my back to hospital.I stopped smoking and drinking 8yrs ago, otherwise I'd be having a large glass of southern comfort and probaly chain smoking, glad I don't I'm still in so much pain even after taking paracetamol,Ibuprofen and a warm hot water bottle on my face,I've also taken my tramadol a little early,

I really need to sleep tonight (I dont sleep so much anyhow why would i possibly think any different) 😪☹️

Take care peeps

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