Support group in your area - Fibromyalgia Acti...

Fibromyalgia Action UK

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Support group in your area

Rob172 profile image
8 Replies

Hi there wondering if there was anything advise out there on support group and access to hydrotherapy therapy pool in different areas of the country ? I live in the Edinburgh area and there is no fibromyalgia support group near me and limited access to hydrotherapy pools.

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Rob172 profile image
Rob172
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8 Replies
Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Cannot help with hydrotherapy services, but this link shows you details of support groups registered with FMA UK

fmauk.org/latest-news-mainm...

Rob172 profile image
Rob172 in reply toHazel_Angelstar

Thanks for the link my nearest group is in West Lothian its a bit to far for me to travel unfortunately, take care 🙂

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply toRob172

If you look up More than Fibro, I think they have a group in the Edinburgh area (not registered with us, so not on our map)

Yassytina profile image
YassytinaFMA UK Volunteer

Hi Shame there is no support group where you live, I’ve found one near where I live and meets once a month , I am yet too give it a try , i am wondering if your doctors surgery can refer you for hydro pool ? I would love too try one but again like you I hear hard too get in . Glad to see you’re using the forum it’s a good place for advice and information.

Rob172 profile image
Rob172 in reply toYassytina

Hi thanks for the reply yeah can't get a referral from gp for hydrotherapy in my area now unfortunately, hope you get a chance to attend that support group near you soon take care 🙂

Blearyeyed profile image
Blearyeyed

Have you tried looking at the websites for your local NHS hospitals to see which has a hydro pool , or ring the physio departments to see if they have one , and if you can self refer to that or need a referral via the GP.I had to do this as my GP had no idea our hospital had a pool and I could be referred to it.

Sometimes University Medical departments have hydro suites for sports science and research into treatments which they often lend out to chronic illness groups , so you may find that the local Arthritis or AS group get an exercise session in the hydropool. You may be able to find out from one of these groups if you can go to their sessions even for a taster or see if the Uni itself will help you get access to hydro there.

You may even be able to get access to a suite in a larger sports or football club if you are " canny" and feel confident enough to speak your case. There's no harm in trying !

If there aren't any local Fibro groups to go to face to face you can still take part in online / Zoom meetings with your nearest groups , even if they have gone back to regular meetings most accommodate the chance for those to I'll to attend in person to take part via computer. It may not be the ideal if you looking for face to face contact but it is better than no contact at all.

It's also worth looking up if there are any closer support groups not just for Fibro but for Chronic Pain , Managing Pain or Pacing yourself.

Or , you could contact the charity or go on Facebook and put out a request to see if there are a number of Fibro sufferers in your area that want to meet up , it's likely , and you could all meet and consider starting your own group together , registering with the charity for security and support.

Hope that helps , Bee

JustAnotherOne1 profile image
JustAnotherOne1

Hi Rob, I enquired about hydrotherapy but there is no service in my area, Cardiff. Also not much in the way of support groups, there is a Men get Fibro group on FB that's good, but not much in person

rosie-2015 profile image
rosie-2015

Hi l live in Edinburgh and was referred to the medical health centre in leith, I was given a free pass for the swimming pool but hydrotherapy was mentioned but I thought that it might be to painful for me at that time, I hope this helps youRosie

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