Intro: I have had fibro for 13 years... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Intro

christe67 profile image
10 Replies

I have had fibro for 13 years but I am really struggling at present with pain everywhere really bad fatigue headache any ideas what may help. On pregablin at present and it has worked really well until now

Written by
christe67 profile image
christe67
To view profiles and participate in discussions please or .
10 Replies
Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Hi and a warm welcome to the forums. You can find general information on fibromyalgia at our website fmauk.org and our patient information booklets at fmauk.org/publications

moo196 profile image
moo196

Giving up diet coke and absolutely everything else with artificial sweeteners in was my best route to be pain free.Check everything from yoghurts to ketchup.

Worth a try?

christe67 profile image
christe67 in reply tomoo196

Thanks for the reply but I only drink coffee and a type 1 diabetic on a pump so I am very careful in moderation in what I eat and drink but will keep it in mind thank you

moo196 profile image
moo196 in reply tochriste67

a lot of foods have been modified since the sugar tax came in. Even a teaspoon of ketchup or a tonic water with aspartame can set me off

Yassytina profile image
YassytinaFMA UK Volunteer

Hello and just want too say Welcome, have you checked into the doctor recently and discussed this, fatigue headaches are hard and I find myself using head balm from a company called herbs on the hill (online, they use products approved by the NHS) I have 2 cool packs which I use on my forehead so I can swap over while one goes back in the fridge. Xx

christe67 profile image
christe67 in reply toYassytina

HiLike many others getting to see or speak to a GP is difficult. I am concerned that I maybe have something else going on. The headache are constant with the fatigue feel like rubbish. Like the ideas of the cool packs but unfortunately I don't like cold thinks I like heat.

Hi Christie67. I did intermitting fasting. 24 hrs. Just water. Amazing results.

bright-horizon profile image
bright-horizon in reply to

Hi India. I'm also new to fibro and exploring non medication therapies. Can you please elaborates more on your fasting regime? If you do 24 hours fast, how often do you have fasting days? Also, I guess you are not on any meds that must be taken with food? I am also being treated for GCA and PMR and still take prednisone which must be taken with food.

in reply tobright-horizon

Hi Bright-Horizon. Hope your ok. I alternate. Once a week, 12 or 24 hrs fasting. You could have a boiled egg/avocado before you take Meds. Then water through out day.hydration/fills you up. Rest of week (if I can) broth soup. Chicken, 'Root Vegatables', veg stock.you can freeze some if you have too much. So it is veg that's come from ground. Sweet potatoes not ordinary ones. Its delicious. Or you could have a meal I.e chicken., sweet potatoes boiled, veg. You can get lot of meals out of one shop for these items. Basically, its eating nothing with 'Labels' on. Hope that makes sence. NO Veg oil. Bad for FM. If your not sure,you can msg me to check. It really works. Only negative side was I lost a lot of weight. That was over period of 4-6 weeks. I found Aldi, best place for veg. No spays used on veg. X

in reply to

Oh and you can have 2 coffee a day 😋

Not what you're looking for?

You may also like...

Intro!

Hi my name is Kirstie. I've only just joined. I like in the UK. Job Centre in Hull has refused my...
kirstie232 profile image

Newly diagnosed

I've only just been diagnosed with fibromyalgia & osteoarthritis so don't really understand much...
barchenbear profile image

Hi all, just a quick intro !!!

Hello everybody!!...im a 49 yr old male, still in the process of getting a diagnosis, Fybro has...

Intro and little rant 😬

Hi lovely peeps, I'm Dawn and new to this group. I was diagnosed in 2018 with Fibro, suffered a...
Dragonfly43 profile image

Sorry folks

So sorry I am not around at present. My daughter took seriously ill again on October 25th and is in...
Ozzygirl64 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.