Charliebear

[Charliebear1234]

Hi there I havnt been on here for a while , I have fibromyalgia and im at a point where I feel like everything is collapseing around me, people dont understand the amount of pain every day and mental depression this courses, I just wont a friend who is in the same position as me to talk to 😞

[fmlife]

Thought would say hi,

how is your day going, have spent my day resting, .

then got inspired and warmed a marshmellow put it inside a crisp breads, was yummy, naughty, sticky and well made me smile.😁

[Charliebear1234 in reply to fmlife]

hi fmlife, I wish I could have yummys , I have celiac disease aswell so my foods not nice 😞but I'm glad you can enjoy your yummys bet it's the only thing you look forward to

[fmlife in reply to Charliebear1234]

hi Charlie bear

How is your day going today?

am gluten free so a naughty very nice, is very rare, tend to just eat the same, with gluten free ingredients. had a tuna salad gf wrap for lunch, was lovely.

look forward to the sun rise and the wild life's antics out the window, the birds are hopping about catching their food.

today have been plane trail spotting in the clear blue sky, it seems there been a mass movement of folks from the south today in the skies. was probably the same yesterday however we had cloud cover so did not see. its right strange to be sun bathing inside with sunglasses on today. Was thankful for the warm sunshine through window, vitamin d.

wishing you a less pain day

[Charliebear1234 in reply to fmlife]

hi fmlife, bless you, you sound like you try to enjoy the loveliest littlest things in life I need to think like you, I do try to enjoy the simplest things in life but always get smacked down with negatives of things like death there's something more serious as the pains are so bad sometimes, I know you know where I'm coming from here 🥹it's a terrible disease fibro , but I do really try it's just so dam hardmy flare ups are so powerful and frequent at the minute but I'm going to try and keep strong astheres lots of us going through this not just me, I carnt help but think I'm all alone in this and I'm not hope you stay as well as you can

[Charliebear1234 in reply to Charliebear1234]

sorry bout my comers and fullstops I'm not the brightest

[Petalpower]

Hi I fully understand it does seem overwhelming the pain, exhaustion and then having to put on a fake smile as though everything is alright when for you it is not!!! At least on here we can have a good rant and read how others cope, and know we are not on our own there are others going through the same thing.

[Charliebear1234 in reply to Petalpower]

🥲

[lanzarote55]

Feel for you. 🙏

[Charliebear1234 in reply to lanzarote55]

🥲

[lanzarote55]

Good morning, wpe ALL undstand how you feel, I've been up 1/2 the night with dioreaea, the pain in my stomach is overwhelming, but I'm still here, we've got a new baby boy coming in three weeks, so that keeps me going, maybe try to think of something that you are looking forward to, I know how hard it is. Just rest, maybe watch rubbish on the telly, I watched crossfire last weekend, it was good, takes your mind of the pain if only for a short while. Xx

[Fibrofog]

I can totally relate. I seem to be collecting conditions at the moment. And i have really bad fatigue lately. You can always message me anytime. I msy not answer straight away, but i will reply eventually xx

[Charliebear1234 in reply to Fibrofog]

Thankyou fibrofog🥲

[Jade0076]

hi I am jade I to have fibro and understand your pain it helps to talk to people who are in same boat always remember that can talk anytime

[Yassytina FMA UK Volunteer]

Morning, we totally feel your pain and how it can effect us on a daily basis, there are some lovely members here always up for a chat, have you seen your doc about the depression recently ? I know from personal experience how this can get hold and we can get too the point we need the right medication too help us threw, I hope you can get this with the pain as well , our practioner nurse is lovely and very in tune I’ve found and I can normally get my appointments with her that way she gets too know you more and your medical history I’ve found easier than not getting your usual doctor they seem too have more time too listen, sending you some wrap around hugs xx

[Alltheflowers]

Hi Charliebear, I get how you feel. I suffer with anxiety/depression along with the fibro and it's tough. If you want to message me anytime, feel free. I will answer as soon as I can.

Please remember you're not alone with this. 💜

[Charliebear1234 in reply to Alltheflowers]

Hi alltheflowers, yes iv had depression and anxiety for 20 years its terrible it runs terrible in our family bipolar and adhd with my son im 53 now so my life should be more laid back, it is with my disease because laid back is all you can do isnt it lol, Iv been having bad time as my flare up has lasted 6 weeks now and it feels like I have been in car accident and I im just at the point of going hospital begging them to give me morphine intravenous its that bad when you think it carnt get worse it does as you know thankyou for messageing me 🥹x

[Alltheflowers in reply to Charliebear1234]

Hi Charliebear, it sounds as if you've got a lot on your plate to deal with and I know how hard it can be. Depression was a big part of my family growing up and I've had anxiety and waves of depression since a child - made worse with the fibro. Every day is different regards the pain or fogginess - but we do what we can with the self care don't we? I know what you mean about feeling as if you've been in a car accident! Either that or trampled by a herd of elephants! I hope you get some relief from the flare soon as they can be really horrible. 💜

[Charliebear1234 in reply to Alltheflowers]

hi alltheflowers, yes today been a better day my flare up has calmed thank goodness🙂, pain never goes but we can handle so much carnt we as we have no choice but thankyou for our chat

[Tracy792012]

Hi, I am a single mum with two children who also have medical problems and issues which affect them daily. I have fibromyalgia and depression amongst other things. I feel so alone some days. If anyone ever wants to chat they can reach out to me. I hope everyone reading this has a good day.

[Blaaland]

Hi Charlie, I’m sorry you are feeling so bad now.

I’ve got a (very small) bit of housework done, and looking forward to spending after lunch in front of tv in blankets. At the moment just focusing on sound of rain and wind outside and how good it is to be dry. I won’t say warm as heating still off for as long as we can 🥴

I did nothing at all, all day Friday so this is a better day for me. In case this is where you are, I get that too.

Keeping myself out of the past and future is trickiest thing for me on those days, sometimes breathing excercises/meditation music, or any music I love helps

X

[Charliebear1234 in reply to Blaaland]

Hi blaaland, thankyou for messageing me I love my blanket afternoons I seem to have them quite alot ,you know when you think pain carnt get no worse, bang it does I feel like iv been in a car accident and its just not easing at all 6 weeks now and iv litrally been having break down thinking can I really carry on through with this terrible disease, I will because I know theres alot of people that dont have the choice to live and I do, its just really hard as you know thankyou for messageing me 🥹

[Charliebear1234 in reply to Blaaland]

hi blaaland yes today is better day for me to my flare up has calmed 🙂, always in pain but we handle it don't we as we haveno choice, yes I love music to it does help

[Buttercup2022]

hi Charliebear, I’m so sorry for all your pains and struggles, I totally empathise with you, life is not easy for us. Friends have abandoned me as well. Maybe try this, a warm hot water bottle where it hurts has helped me to improve the pain, or to have a hot shower, it helps also with the stiffness. On a sunny day try to sit outside so you get the heat from the sun and if possible play some nice relaxing music. Hope this helps you in some way too

Sending you lots of hugs x x x

[Charliebear1234 in reply to Buttercup2022]

HHi buttercup2022, I do my hot water bottle is with me all the time I try everything, I have had a few break downs though 6 weeks this flare up as lasted feels like iv been in car accident and im thinking is this going to ease for me iv never been so bad in all my life total melt down its so bad I feel like going hospital begging them to put me on intravenous morphine just to have a break for this horrific flare up didnt think it would last this long, I do feel like giving up sometimes but I know theres people out there that doesnt have choices to go on with different diseases so I do go on 🥹thankyou for messageing x

[Whiteclouds]

dear Charlie bear, Sorry to hear you are having a bad time I fully understand what your going through, I too have been having pain issues and sleepless nights I’ve also now started having issues with my gut running to and fro to the toilet can’t run as struggling to walk . My goodness what a life I must have been bad in my last life to have all these issues. I’ve learnt to live with most of the health issues I have but it’s really hard work. People don’t understand what we are going through we look well but they don’t feel our pain. It’s like someone has a doll image of me and is doing voodoo on me sticking me with needles burning me breaking my legs and arms and all of my fingers and thumbs. I have a terrible headache have had it for 3 weeks and my entire face hurts I have blurred vision and going to get my eyes tested tomorrow as requested by my doctor. I have to be grateful as there is always someone worse off than me. I hope you start feeling better soon. Take care of yourself. Xx

[Charliebear1234 in reply to Whiteclouds]

HHi whiteclouds, thankyou for your message I have the same pain as you described my face headaches my back neck I literally feel like iv been in bad car accident its such a struggle as you know iv been breaking down quite alot to be fair especially with flare ups they seem to get worse you know when you think things carnt get any worse they do🥹but thanks for getting intouchx

[Whiteclouds in reply to Charliebear1234]

dear Charlie bear I do hope you start to feel better sending gentle hug x

[Charliebear1234 in reply to Whiteclouds]

hope you are ok too and thankyou for our chat

[Ninapod]

Sending hugs

[Charliebear1234 in reply to Ninapod]

🙂