Just been told that I have Fibromyalgia

I have just got back from my appointment telling me without further tests it looks like I have fibromyalgia so relieved that someone now believes me that I am in pain and that I am not moaning all the time that I hurt and can't move. However they have asked me to take amitriptyline at night but I am nervous about the side effects of gaining weight. Can anyone tell me if it actually works?

I have also taken this week off work to rest is this a good idea as at the moment I am permanently in pain what else can I do to stop the pain ASAP.

12 Replies

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  • It is for nerve pain and helps to make you sleep if worried see your gp

  • I take 50mg every night and don't suffer any side effects, as for what stops the pain - good luck as we all would like to stop it. Didn't mean to sound flippant however there is no known pain killer or treatment to stop it only can dull the pain for a short while xx

  • Hi Pfoster welcome to the forum, I'm sure you will love it as we all do and you have come to the right place.

    I'm sorry you have been, as good as diagnosed as having Fibro & you are in pain. I take amitriptyline & have had them for many years & couldn't live without them. That's not saying they are good for everybody, we are all different and some people can't get on with them. It's up to you to try them. What mg have you got.

    Please go look at the main site, where you will find lots of information on Fibro & lots of useful links.

    Look forward to chatting to you

    fmauk.org/

    Peace, luv n light

    Jan x

  • I have been prescribed 25mg but I have to snap them in half which was very funny as they were so small and my hands hurt so much it was the pharmacy that told me about pill cutter which I have now bought. I have taken them for 2 nights now but today have woke up and hands and fingers are really sore as well as other places

  • Ok strange dose, I think the lowest dose is 10mg tablet so that means your taking 12 & half mg. They normally start ppl. On 20mg and then it is slowly increases until you feel the benefits but they do take a while to work so it's bit early to tell yet maybe. Obviously everyone is different & they don't work for everyone.

    They normally make you feel quite sleepy at first but you do get used to them & when you see doctor again, you will have to tell him your still getting pain.

    Luv Jan x

  • I'm on them and find them very useful. Start on a low dose and work up gradually. If you feel drowsy the next day take them earlier in the evening.

    Unfortunately I have not found any fibro medication that doesn't make me gain weight. Sometimes it is a choice between pain and sleeplessness or gaining a few pounds.

  • Hi pfoster welcome to the forum. I have been on amitrytiline for quite a while. I have no side effects and cannot sleep without them. I take mine at 6pm each night as not to feel too groggy in the morning. As for pain relief we all try different things. I recommend you read as much as you can on fibro. We all have varying symptoms (ie I have most known symptoms but not IBS) if you can read up on as many posts as you can and also ask as many questions as you need to. You'l read treatments that work for some that may help you. Good luck

  • Hope your feeling better soon, i was given amytripteline only for a short time made me feel very drowsy next day, im now on butrans patches and much happier no weight gain lol

  • Hi there

    Welcome to the forum ☺

    Many of our forum friends take Amitryptyline as it helps with pain low mood and sleep.

    We all react very differently to medication so the best way of seeing if it suits you is to try it.

    I personally did not gain any weight on it.

    It is especially important to take it around 6pm otherwise you will probably feel extremely groggy the next day if you take it just before bed.

    Good luck with it. I hope it helps.

    Lu x

    Administrator

  • Hi Pfoster

    Welcome to the forum and it is wonderful to make your acquaintance. I do not take Amitriptyline myself as I am not able too. I have it's sister drug which is called Nortriptyline. I have not put any weight on with this drug but i have with other medications that came afterwards.

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • You must be relieved to get some sort of diagnosis and explanation for your awful symptoms. That's half the battle won - to be believed! It can also feel quite daunting if you don't know much about the condition.

    Was your appointment with your GP or a Rheumatologist? Were you given any information (leaflets) on Fibromyalgia?

    When they say it is 'likely' you have Fibro, I sometimes think they mean we can't find anything in your bloods so far, - take this medication, if it works for you and you start to feel better, then it's probably Fibro. If it doesn't, we may need to review your symptoms again. This is what happened with me.

    Do you have a review date? If not, may I suggest you take the meds for a month to six weeks and report back. Everybody reacts differently and individually to meds, I did Not put on weight but a chap at my doctor's surgery says he has.

    I also take and have taken in the past, various prescribed pain meds including Tramadol, co-codamol, duloxetine, naproxen, morphine patches, etc etc. and over the counter meds including paracetamol, panadol etc. I've now cut right back (I was worried that my kidneys, liver and other organs would not thank me in the long run - having to deal with all the side effects) and although I'm in constant pain, feel somewhat better and more in control - most of the time.

  • I'm pleased you have a diagnosis at last, but equally sorry you have this horrible condition. You will receive a lot of support and information here. Everyone is very friendly.

    I started taking amitriptyline when I was first diagnosed about 7 years ago. They worked for me initially but then gradually stopped working, it used to help me sleep but never did anything for the pain. This doesn't mean that they won't work for you. Everyone is different.

    Let us know how you get on with them .

    Take care. X

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