What to help with pain and sleeping - Fibromyalgia Acti...

Fibromyalgia Action UK

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What to help with pain and sleeping

Sore-feet2019
Sore-feet2019

I have been diagnosed with fibromyalgia 2 months ago after years of nobody really believing me. So i was wondering what would help the pain in my feet and wrist especially at night. Doctor has prescribed Paracetamol and codeine but really makes me feel sick and gives me a headache. Cant win lol. Also doctor has given me 1 month sleeping tabs but that gota last me three months at my wits end. Sorry I'm grumpy but not sleeping.

13 Replies
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Hi

How are you feeling today?

Not sleeping sucks,I get about an hour tops!! I have many conditions. My pain meds are zomorph, oramorph, duloxetine, paracetamol and cuprofen!! Please take care. Love and hugs Lynne xxxx

Sore-feet2019
Sore-feet2019 in reply to Hidden

Thank you

Mdaisy
Mdaisy in reply to Sore-feet2019

Although many patients end up going up the Analgesic pain ladder, strong Opioids are not recommended for Fibromyalgia long term pain as the risks outweigh any potential benefits plus concerns of possible addiction:)

I’ll find the EULAR Recommations link to share with you in a bit :)

Hidden
Hidden in reply to Mdaisy

Hi

I didn't know that they weren't good for fibromyalgia so thank you for that. I must have been put on them for my other conditions. Everyone take care. Love and hugs to you all Lynne xxxx

Mdaisy
Mdaisy in reply to Hidden

Oh Lynne I wasn’t trying to say that it should never happen but they are trying to avoid it more now due to risks and Opioid crisis in the UK.Sometimes and I understand it is needed, having myself Oramorph in hand if I desperately cannot tolerate the pain. They have a duty of care to ensure the patient is a pain free as possible.

I personally think (not on behalf of FMAUK Des will confirm his thoughts I expect) the powers that be should be more open to medicinal cannabis as we’ve heard countless reports on how CBD Oil has helped people with Fibro. They can not deny people in pain meds without finding alternatives like this or LDN maybe.

Emma :)

Hidden
Hidden in reply to Mdaisy

It's ok, I know you weren't trying to say that. Your means a great deal. Love and hugs Lynne xxxx

Welcome to the FMAUK Community! :)

As a newbie, I’ve noticed you’ve not locked your post and doing so will probably generate more replies. Here’s a link how to do this;

healthunlocked.com/fibromya...

Also, I take Pregabalin & Tramadol (an exception to the rule of Opioids as has a Serotonin pathway) and Mirtazapine has been a game changer for sleep with occasional Zopiclone.

Sorry you’ve been through so much, many of us have experienced the same from general public or dismissive Health Care Professionals.

FMAUK can send a Medical Pack to your GP practice if you complete this form:

fmauk.org/information-packs...

Hope this helps

Emma :)

EULAR Recommendations for Fibromyalgia - healthunlocked.com/fibromya...

Hi, I've had fybro now for 20 years and am well used to the pains and strains that come along with it. My thing is sitting with my feet over the bath and running cold water over my legs/feet just before bed. It's not 💯% but it does help calm things down. Also running cold water over my wrists. Hope this helps.

I was prescribed amitryptaline as soon as fibromyalgia was diagnosed. I get a decent sleep since starting them. Only downside is I feel groggy 🥴 in the morning but for me they have made a difference.

I find less is more I take half co codamol with 1 paracetamol effervescent if pain is bad I take again. Less or more though the day. Being doing it for 5 years

I used valerian tablets (one 75mg) for a while. They did seem to help, but I needed to take them early afternoon. If I took them before bed I was (more) groggy in the mornings.

It's interesting blue-eyes uses cold water, I've always gravitated to heat. I've used hot-water bottles as pillows for a long while!

Restless leg syndrome - I believe part of the same spectrum of pains. Have you read my other posts? Focusing on your Base-Line pelvic floor rectus abdominis muscles? The other thing I'd recommend trying!

hi, there is nothing worse than not sleeping and also having pain.

I take amitriptyline it helps with pain and sleep, although makes you feel groggy in the morning. I tend to take mine early evening.

dosage usually starts 10mgs

hope you find something that helps you.

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