I would like to know if anyone experienced a sudden onset of fibromyalgia.
In June 2021 I caught covid (delta variant) and the virus caused me afib (atrial fibrillation) but i was misdiagnosed for many months due to cardiologists' mistakes.
At the end of December 2021 unfortunately i got covid again. I was very ill and very weak for almost a month because the arrhythmia was very active during the illness.
At the end of January 2022 and when I was already recovered, I had an episode in the morning with a very high heart rate that almost made me faint, so I went to the hospital but unfortunately they ran all all kinds of tests except the ECG that would have detected my arrhythmia.
So searching the internet I discovered that I could run an ECG with the apple watch and I found out on the night of Feb 5th in February 2022 that I had vagal-type atrial fibrillation. At this time the arrhythmia was very symptomatic and every night I had afib in my deep sleep (which is what happens when it is of vagal origin and when my heart beats slowly). All the medicines that they gave me in the hospital did not work since the arrhythmia was very strong and was triggered by the vagus nerve (for which I had in a very high tone). I tried different medicines but nothing worked. Every night I slept only 2-3 hours and the arrhythmia lasted for hours until it went away. I developed insomnia. I had a lot of tension and high stress. I used a device for transcutaneous vagus nerve stimulation (tVNS) which was supposed to reduce the afib episodes. With very low intensity i could feel already the stimulation of my ear and vagus nerve.
At the beginning of March 2022, I looked for doctors to do a heart ablation for me and I confirmed that by mid-April I was going to have the ablation
Meanwhile I couldn't sleep, the arrhythmia was brutal and the only thing they prescribed me in the hospital to sleep was xanax (alprazolam) which gave me very strong secondary symptoms since I felt very strange sensations in my brain. All I wanted was to sleep and not a drug for anxiety to sleep. The arrhythmia continued to be triggered quiet often, every time I was lying down or after meals, as it is typical of vagal afib.
The months of Feb and March were of extremely exhaustion, I slept sometimes only 2 hours in 48 hours. I was extremely anxious and the arrhythmia was absolutely hellish.
At the end of March I started some new heart pills (disopyramide). So I started taking a new medication that seemed to be effective because it has very strong anticholinergic effects against the vagus nerve and is the medication recommended for vagal-type atrial fibrillation). I had a lot of anxiety and stress because I was afraid that the arrhythmia was going to become permanent and every time I had it I couldn't breathe well so I was very afraid.
Unfortunately a week before my ablation I suddenly began to experience widespread pain in my body, in the back, in the chest, in the belly... and very strong in the legs. I was in so much pain that it was impossible for me to travel anywhere.
I went to a rheumatologist and a neurologist. The rheumatologist had no explanation at first for these pains and the burning sensation in the back. He did all kinds of blood tests and there was no trace of immune disease. He agreed that it could be fibromyalgia but he had never seen such an acute case of fibromyalgia to develop in such a short time. The neurologist did different tests and through a qEEG could see that there is a dysfunction since the brain has overactivated the neural pathways of pain as it happens with fibromyalgia patients.
At the moment and unfortunately the pain and daily fatigue is still there. I haven't slept naturally for months, only with sleeping pills (zolpidem). I have tried many treatments but at the moment my body seems to be stuck in sympathetic mode. When i use now the same tVNS i need to apply the highest intensity to feel stimulus from my vagus nerve when before the onset of the fibro i only needed a low intensity to achieve the same. So definitely the parasympathetic system is in very low tone after the fibro.
In May 31st I had the surgery (ablation) for the atrial fibrillation.
At the moment I am trying to recover from the ablation and also trying to seek help from doctors to treat this fibromyalgia what is causing me daily pain and anxiety/stress
The whole fibro thing is somehow new for me but i have already read tons of books and applied lots of treatments. What i find most difficult is to cope with the idea that i suddenly developed fibromyalgia because i cant find anyone telling me they experienced such onset of the syndrome (just in one day and with lots of pain after the onset).
Has anyone experienced similar onset of the fibro?
thank you